I never had the bulls eye rash, but many with lyme, never get the rash. I for sure was bitten by a tick when I was 13 or 14 but never got the rash and went on with life. I became ill a couple of years ago and had to have my gallbladder removed. Right after my surgery, I started having crazy symptoms of vibrating/tingling/pulsating in legs, numb patches in face, feet and toes, trembling, horrible anxiety, terrible pain in feet/toes and hands, on and on. A few neuros told me this was all in my head. Finally, my GI doc suspected early onset of MS. He sends me to UCSF. They discover 20 lesions on my brain through MRI. I kid you not, the first question the neuro asked me was "have you had lyme disease". I had suspected possible lyme before but tested negative through labcorp.
Anyway, my lesions were not typical of MS lesions but they did a ton of other testing including a lyme test during my lumbar puncture...negative. Everything was negative and normal except for that MRI. So, they said, this is not MS. I went back six months later for another MRI....no changes...not MS. So, I started doing more research and being totally frustrated, I drove myself to Igenex Labs in Palo Alto and had myself tested. This is a lab that people from all over the world send their bloodwork to. Unlike Labcorp who looks for antibodies (which our bodies stop making after a while), they look for bits of DNA from the bacteria. Anyway, I tested positive for Lyme with a co-infection of erlichosis.
I found an LLMD and started ABX treatment. I have made a LOT of improvement. It's almost ten months later now...I'm still testing positive for lyme and positive for my co-infectino, but it is getting better. My symptoms have GREATLY improved. The numbness is gone as is the pain in my hands and feet. I still get the vibration and twitching when I'm herxing (when I have a die off of bacteria) but I am WAY better now than a year ago!
I have to agree with your sister...I bet you still have lyme disease. I would definitely be tested through Igenex (you will have to have a doctor sign off on blood work, but your best bet is to find an LLMD Lyme Literate Medical Doctor). I'll bet that the ABX treatment you had were not enough to completely kill all the bacteria and over the years, they are accumulating in your body. I didn't get my symptoms until after my surgery (and right after it). My doctor thinks that the surgery caused my immune system to not be able to handle the lyme disease and caused it to flair....makes perfect sense. My symptoms literally started overnight...from nothing to everything.
Karen, I would look into this. I'll bet that given your history and a known tick bite, that all your fibro symptoms are lyme related. With treatment, you could become a healthy person again. It's a long road to recovery and not an overnight fix, but you can get better. If you have any questions, let me know. The lyme forum here is very active. I'm usually over there.
DX with Lyme and Erlichosis in January 2010. January-August: Biaxin and Amoxicillian. September 2011 - ? on Rifampin and Zithromax. Symtpoms mostly neuro and have 20 small lesions on brain.