what should I do feeling hot/cold at same time shakiness and numbing of hands and feet

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New Member

Date Joined Dec 2011
Total Posts : 1
   Posted 12/11/2011 9:35 AM (GMT -7)   
Hello everyone! Looking for some advice on what steps i need to take. Fiancee has been in turmoil for past year. It all started with numbing and tingling in hands and feet. Which was determined to be a gluten allergy. Not the gold standard test just was told she had the gene for it. So she has been on a gluten free diet for about 8 months now. Symptoms have gotten worse she has been told she has fibromyalgia. Read alot of topics about the feeling hot throughout your body she is getting hot and cold at the same time. Is that something that is associated with fibromyalgia? She also gets flu like symptoms with nausea, vomiting, diahrrea, dehydration. What do you do when this symptom occurs. She is very distressed when she is going through this anything to make it easier on her and I would be greatly appreciated. As we have some really poor insurance any suggestions that avoid going to hospital or doctor would be appreciated too. Thanks

Forum Moderator

Date Joined Apr 2005
Total Posts : 17499
   Posted 12/11/2011 10:46 AM (GMT -7)   
Hi, Tim, and welcome!  Has she gone through a lot of testing?  This is done before a diagnosis of fibro is given.  We have many of the same symptoms as quite a few other illnesses but there is no definitive test for fibro.  So they have to rule out the other illnesses before fibromyalgia is diagnosed.  If the diagnosis was just "thrown out" to her, she needs to find another doctor.
I would suggest she call a rheumatologist.  Have her ask first if the doctor treats fibro patients.  Believe it or not, there are still a few doctors in the Dark Ages about fibro...even though it's recognized by the American Medical Association, the American College of Rheumatology, the National Institutes of Health, and the World Health Organization to name a few.  These doctors love to tell us the pain and fatigue is all in our heads.  NOT SO!
Be sure to have her read Fibro 101...the second thread on the forum.  There are links to good info about fibro and she will learn a lot there.  Good starting links would be the ones called Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia.  She will probably see herself there.  That, alone, makes a person feel better because this illness can be quite frightening until you see that these things are "normal" for us. 
See if she will come on the forum.  She can ask questions and we can try to help her the best we can.  We are not doctors here so she still needs to find a good doctor that has a good understanding of fibromyalgia.  I hope to see both of you soon!
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Veteran Member

Date Joined Aug 2011
Total Posts : 934
   Posted 12/11/2011 12:19 PM (GMT -7)   
I am sorry to hear of these troubles. Some of the symptoms sound like what I just read about today. I had the misfortune of being nice (lol) & dogsitting for a friend. Turns out, the dog has worms. Of course with 4 kids, I had to read up about the risks to the family & how to recognize if anyone in the family has worms. I read so much that I can't remember which type of worm caused what, but I read a lot about roundworms/hookworms. In humans they can cause diarrhea, nausea, vomiting, anemia and dehydration. It is just a thought.
46F, Fibromyalgia, Vitamin D deficiency, allergies/multiple chemical sensitivities, possible Chronic Fatigue & occasional IBS symptoms.

I take vitamins, Tramadol for pain, Flexeril as needed.

almost medfree
Veteran Member

Date Joined Jan 2004
Total Posts : 2386
   Posted 12/11/2011 1:20 PM (GMT -7)   
Hi Tim,

Sorry to hear about your fiance's health issues.

If I don't eat right I get nauseated and/or stomach cramps and a headache, diahrrea/constipation, and shakiness. Sugar especially causes me to feel shaky and caffiene too. If I don't drink enough water I feel dehydrated.

I eat a bread called ezekial bread that is high in fiber with no gluten. I have to eat a lot of fiber. I eat brown rice pasta and healthy lean meats (not red meats), and avacados, and fish especially salmon is good for you, and salads, no sugar, no caffiene, and no fried foods. I also use extra virgin olive oil for cooking.

I also take a regiment of supplements that help me deal with my fibro without taking meds.

Good luck to you and your fiance.
Fibromyalgia, CFS, multiple chemical sensivity, herniated disks, spinal stenosis, osteoarthritis, ADD, sjorgens, sleep apnea. I am happy to say the only medication I take is ibuprofen at night to sleep along with my supplements for sleeping. I am on a regiment of different supplements, I eat very nutritiously, and ever since my injury years ago I have been doing my prescribed stretches x2 daily.

Regular Member

Date Joined Nov 2011
Total Posts : 52
   Posted 12/11/2011 3:11 PM (GMT -7)   
Numbness of the hands/feet can be caused by a Vitamin B1 deficiency, and, seeing she was eating gluten at the time, her gut may not have been absorbing her B vitamins or vegetables. I would recommend getting her on a good multi-vitamin. www.iherb.com has great prices. I would recommend taking a capsule as it's more easily absorbed and taking B12 in a lozenge or injectable. Shakiness is a sign of hypoglycemia, eating more frequently, every 3-4 hours with a protein at every meal will help.

It sounds like she may still be eating foods that she reacts to. There are foods that gluten sensitive people are cross-sensitivity to, like milk, cheese, chocolate and potatoes. She could also get a IGg food panel for food sensitivities, although that runs about $200. The best bet would be for her to keep a food diary and examine what foods she ate 24 hours before her symptoms of gut pain or diarrhea. Reducing her diet to basic foods the re-introducing new foods one every week will help her determine what she reacts to.

If she has a fever with these symptoms, then she needs to see a doctor as she likely has an infection. If she feels hot and cold, tired, without a fever, then she needs a T3 and T4 thyroid test. A vitamin D test is also worthwhile. Also, it's important to have a rheumatologist diagnose her for fibro. Not an easy road as her digestive symptoms are similar to IBS that a lot of fibro suffers have. Can you describe her pain as the pain of fibro is unbearable with no breaks in feeling pain. It's possible she has CFS if she's tired all the time (ie cannot get out of bed). Anyways, if it was a regular doc who diagnosed fibro, it's worth the money to go see a specialist for a second opinion.

When researching on the net, use search terms like celiac, gluten sensitive, or gliaden.
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