Thank you so much to all who replied--it is so appreciated. I'm going to try to answer any questions and comment to all those who replied.
zeebraaM, I have had my thyroid checked...I have Grave's Disease (auto-immune over-active thyroid), which has been in remission for over four years, and I get it checked every three months, so I think I can rule that out, but thanks for the suggestion.
I take fish oil because of its anti-inflammatory properties, as I have rheumatoid arthritis, and I take magnesium because I'm a type 1 diabetic, and diabetics often have low levels of this mineral.
BarbF, I have occasionial migraines, but they're the same headaches I've had for years. My hands, and to a lesser degree, my feet, feel swollen (but aren't) sometimes, and I get pins-and-needle sensations when that swollen feeling happens. I don't get that "deep in the bone" feeling generally...I've had it on occasion with the rheumatoid arthritis, but I haven't noticed any increase since all of this other stuff started.
ak angel, I did speak to my rheumy about this (I already see one for RA), and she wanted to give me neurontin right away, so I guess she was on-board with fibro as a possibility. I declined, because in addition to all of these fibro-like symptoms, I'm having swollen lymph nodes (which puzzles her), and I don't want to start taking additional medication when I'm not even sure what my problem is yet. As a matter of fact, all of this crazy stuff started for me with swollen lymph nodes--I had that and nothing else for two months before the more fibro-like symptoms showed up.
My doctors are all puzzled, but my rheumy said that if my nodes are still swollen when I see her next (which is April 12th), she's sending me for a CT scan of my left armpit, which is the worst spot, although the right one isn't far behind. (I did have a mammogram on both sides, and an ultrasound of my left armpit when this all started, as my GP wanted to rule out breast cancer. No cancer showed on the mammo, and the ultrasound showed an enlarged lymph node "consistent with infection", but nothing that looked cancerous.)
The weird thing is that I never had any other kind of sickness one might expect to have with swollen lymph nodes, and the blood tests for inflammation came back normal--it's the strangest thing, but I'm going on five months of dealing with this, and I want answers! My rheumy also told me that she'd send me for a lymph node biopsy if the CT scan looks "suspicious". (Initially I was worried about lymphoma, as I take Enbrel for my RA, and that's a possible side effect, but I don't have any other symptoms of that either, thank God!) But it's very mystifying and disheartening to not know what is going on, and I know many of the people here have been through that.
Red_34, I've had the dagger-in-the-shoulder-blade sensation before, but from my RA, and not really with what I'm dealing with now. I can sure understand you fighting the diagnosis of another chronic illness, but I'm ready to find out what the heck this is.
Artsinthepark, kudos to you for doing all that you do with fibro! I am a problem solver, but I seem to be stuck in the stage of figuring out what the problem even is! Once I know, I will educate myself and weigh my options, and then plot a course of action. You mentioned gluten sensitivity...just before all of this started for me, my husband and I read a book called Wheat Belly...it's by a preventive cardiologist, and he advocates getting off of (especially) wheat, but other grains as well. The hubby and I decided to try it (the author makes a very compelling case), and it was about ten days into this "diet" that all of my problems started. I can't see where there'd be a connection, but the timing is odd.
I deal with fatigue a lot, too, sometimes the sudden-onset that you describe, but that's been going on for years with the RA, too. (I'm 52 now, and have had RA since age 26). As I know many here can attest to, sometimes it's hard to know what to attribute a symptom to when you've got multiple things wrong.
msnova74, I have a somewhat of a sensitivity to light, especially bright headlights, but I don't know as it's any worse than it's been for the last year or so...at my last check-up, my eye doctor told me I have a cataract forming in one eye, and she said it would make me sensitive to light sometimes. Noise does bother me on occasion, but again, nothing really new...sigh.
KayC04201231, my pain runs the gamut...it can be mildly annoying, or it can be very bad. Exertion does play a part--it's definitely worse after I've been more physically active. I'm like you in that I just can't figure out what else it can be, but it seems like it's either fibro plus something else, or it's not fibro at all. My armpits hurt so badly sometimes, and my breasts will burn severely, as will other parts of my body...just so odd. I hope we both get better answers as time goes by.
Well, I thank you one and all for taking the time to share your experiences with this nasty conditon. I will keep you posted on what I learn as my appointments come and go, and I'm saying a prayer for each one of you!!