New here: extreme hip pain and fatigue

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New Member

Date Joined Jun 2012
Total Posts : 10
   Posted 6/12/2012 3:30 PM (GMT -7)   
Hi everyone. New here read fibrous 101 but not finding anything. Diagnosed. With fibrous in 2012. However I believe I have had it for over 20 years. This past week was exhausting. I am a flight attendant on furlough working as a waitress.this last week my left hip pain has been horrible to the point of tears.along with that my feet have been swollen and the left one feels as though I cracked the bone on the outside but the next day feels better only to repeat the cycle everyday. I have also been so exhausted I fall asleep on the couch watching my favorite show. I sleep 8 hours a night have 2 cups of Java and fall asleep for another 2-4 hours of dead sleep. I am wondering if I may actually have lupus I am on 400mg gabapentin and cymbalta 60 Mg.I stopped amyttiptaline after having anger issues. Pains include hip buttocks and leg pain foot and lower back all on left side.numbing. of hands both sides. Neck and shoulder pain. Foods trigger flu like pain.eyesight and heir changes . IBS and bloating. Insomnia and extreme fatigue.leg cramps. In extreme. Cold temps my toes and fingertips turn white and loose feeling. Migraines with nausea and light sensitivity.
thanks for any help you can offer confused
I identified you as new in your heading, notagain, so that more people would notice and greet you. 
Debbie, moderator

Post Edited By Moderator (Acheybody) : 6/12/2012 9:49:40 PM (GMT-6)

Veteran Member

Date Joined May 2012
Total Posts : 619
   Posted 6/12/2012 5:45 PM (GMT -7)   
Hi notagain and welcome :) I'm sorry you are in such pain. Have you had an MRi done of your back and neck? It sounds to me (i am not a doctor this is just my opinion) like you have some disk problems. the fingers turning white is called Raynaud's phenomenon (I have that too) and it's a circulatory problem. I'm not sure about the rest. Have you asked your doctor about all this?

There's a post on here called Fibro 101 and it has some great information. There are also a bunch of nice people on here who can help you.
Chronic pain, Depression, Fibromyalgia, Tennis Elbow (both arms), Arthritis (knees and fingers), Diabetes. Ruptured disk L-4, Severe degenerative damage L5-S1, ACDF C6-C7

New Member

Date Joined Jun 2012
Total Posts : 11
   Posted 6/12/2012 6:27 PM (GMT -7)   
Hi I'm also new to the site so I'm reading as much as I can to "catch up". Notagain has named some of my symptoms, but I have the opposite sleep problem; I can't sleep without meds. I'm commenting on your post because I haven't seen these particular symptoms in any of the other posts I've read. I have had multiple symptoms for years including all the ones you named and many more. I discovered a topical drug for the hip/leg pain that was like a miracle drug for me. My pain goes from my waist down my hip, bottocks, back of my thigh, down my calf to my foot in my left leg. I had some injections but they didn't last long and you can't get them forever. When my Rheumatologist gave me a sample of a topical drug I didn't think it would work but tried it. It was like a miracle drug. Valteral Gel is supposed to be applied 4X a day but after using it 2X a day for a few months I now only use it at bedtime. I also learned that this pain is caused by a band of muscles and/or (? brain fog) ligments that run down the outside of my leg. A sports Dr. told me that not many doctors recognize that this kind of pain can come from the long band that goes from the outer waist down the hip, buttocks, thigh and lower leg and into the foot. It's all connected. It's a kind of bursitis, but no one I've talked with who has been diagnosed with bursitis has been told this or given Valteran. Most get injections. My fingers also get very white. Sometimes it's just a couple of fingers on one hand and sometimes it's a bunch on both hands. This is most often a circulatory problem called rahynoid (sp? brain fog) Pronounced "ray-noi". My medical background makes me wonder if there are spasms in the nerves that cause the vessles to contract and close but have never thought to ask my Dr. There's usually no need for diagnostic tests for this because it's fairly common and easily recognized. I have it year round; not just in cold weather. Back when I was able to go grocery shopping; after I'd been in the store for a while with my hands on the buggy bar my fingers would get white and numb. Sometimes now they even turn purple which is a little disturbing because I wonder if the feeling is going to come back or if the circulation has been cut off forever. I also have migraines and am sensitive to light and noise, which by the way are common symptoms of fibromyalgia. I could go on for hours about all my symptoms, but I've said enough. Thank you to all who write on this site. It's wonderful to finally find a good source of knowlege and support.

New Member

Date Joined Jun 2012
Total Posts : 10
   Posted 6/12/2012 7:02 PM (GMT -7)   
Thanks for the responces. I have had mri's Cat scans all tests. Regenerative discs in loser back plus a scar from epidural done during hystorectomy in 2000. Lupus came to mind after this episode. And reading this and other blots on medwell. It seems naprosen helps s bit with pain but causes other issues. The hip pain is the worst. And when I fly I get sick all the time and my feet hurt so bad. Plus I also wound up having shingles. Too
One thing after another

Forum Moderator

Date Joined Nov 2008
Total Posts : 5948
   Posted 6/12/2012 8:54 PM (GMT -7)   
Hello there, notagain...welcome! I'm sorry you're having so much pain. I have sciatica from a disc problem, as Kaely mentioned, so that would be where I'd start investigating. What livinginthepresent mentioned was interesting, too, the bands of muscle running down all the way from the hip to the foot.

Moderator, Fibromyalgia Forum

Fibromyalgia, herniated disc L4-5, (recent discectomy), extensive spinal deterioration, Hashimoto's, IBS, migraines, tachycardia, hearing loss, (probably Menieres) chemical sensitivities

ak angel
Veteran Member

Date Joined Apr 2011
Total Posts : 3197
   Posted 6/12/2012 9:56 PM (GMT -7)   
Notingan- welcome to the fibro forum. All the hrs you work must be very hard on you. Your description of the hip pain sounds like bursitis. The steriods injections once a year help me so much. The topical gel others were talking about is wonderful also. The only thing is there is a shortage of it and you can't get it right now. Plus you have to apply it several times a day, but it does work. Have you had a checkup for osteoporosis? Sometimes that can occur and cause the bone pain in your feet and other places. The Intolerence to the cold on your extremities is probably raynauds. I have it real bad and living in Alaska just makes it worse. I buy wool socks and I just try to protect my fingers and toes. There is a med that you can take that helps some with the raynauds. I don't take it because I have heard that it really doesn't help that much. The fatigue can be very hard to manage and with your hours, it will be always a challenge. I know that sometimes we have no choice, but work many hrs. to keep food on the table. Sounds like you have been through a lot of testing already. I use to think I had lupus for many years. My mind would tell me how could fibro alone cause all these symptoms. Many years ago I was told I didn't have it. Sometimes I wonder still. I hope you can find some relief soon. Glad you shared your post.

New Member

Date Joined Jun 2012
Total Posts : 12
   Posted 6/13/2012 9:17 AM (GMT -7)   
Hi there. I am new here, too. One of my most painful symptoms is my hip pain. It started after my hysterectomy. If you google Hip pain after hysterectomy, you'll pull a ton of articles and discussions about it. It is very common. Some attribute it to the position during surgery. Others, to tears and nerve damage. I am unable to sleep on my side for more than one hour at a time. I have to switch a lot a night. Both hips cause extreme pain when I bear weight on them or walk a lot. I have not found a solution and my research so far has not come up with any surgery or treatment that is effective. It's a shame that so many women are not informed of the horrible after-effects of hysterectomy. The is also a lot of info on the HERS website. I have stage IV Endo, so that can cause hip pain as well. However, my hip pain was next to nothing compared to before my hysterectomy. So sorry you are in pain. I have only managed mine with pain medication and stretching. Hot Epsom salts baths in the night help when I am having a really bad night.

Veteran Member

Date Joined Aug 2011
Total Posts : 934
   Posted 6/13/2012 7:08 PM (GMT -7)   
Amitryptylene made me have anger issues after only 3 days too. I get pains (bad sometimes, really bad!) in my hips. Google 'Bursitis stretch' - the stretching really helped after Tramadol & muscle relaxant did nothing. Within 10 minutes the stretches brought me relief. Now when I feel that feeling coming on, I do the stretches right away & it heads off the problem, hope it will work for you.
46F, Fibromyalgia, Vitamin D deficiency, Sleep Apnea/CPAP therapy, allergies/multiple chemical sensitivities, possible Chronic Fatigue & occasional IBS symptoms.

I take vitamins, Tramadol for pain, Flexeril as needed.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17501
   Posted 6/14/2012 10:03 AM (GMT -7)   
Hi, and welcome!  I would suggest that you see a who believes in fibromyalgia.  Be sure to ask if they treat fibro patients before you make your appointment.  They would do a work-up on you and see what is happening. 
I had terrible hip and leg pain this winter, saw a rheumy, and now I'm 100% better.  So do get checked out.  We are not doctors here so we don't really know anymore than you do.  I wish you luck in finding out the source of your pain.
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Nana Monster
Veteran Member

Date Joined Jul 2009
Total Posts : 957
   Posted 6/14/2012 6:38 PM (GMT -7)   
Hi Notagain....You've described most of my issues. The pain is from the sciatic nerve being pinched. Mine swells and my leg will
go numb from the waist down. I do understand the wanting to cry at work...I've actually started blatting as it gets so bad. I've
lived with pain since I was 7 years old and have a high threshold but some days it just gets too much. The volteron gel does help
as does DMSO or topricin for topical pain relief. Volteron is prescription and the others are herbal shop. I also have lupus along
with the fibro and arthritis. Mix that with scoliosis, sciatica, upside down heart, 2 trashed knees, spinal stenosis and degenerative
arthritis and bone spurs in spine, and 2 discs out of place...a recipe for bunches of boo boos. There's a shot called deprol
medrol and for me it works for the pain. I just got one 2 days ago and was able to climb mountains yesterday. They're doing
nerve blocks for the spine next month.

The Reynauds seems to run in families as both my sons have it and so does their father and grandfather. Good luck with your
issues, I'm lucky and do hydrocordone and skelaxin for most of my issues. I find Super Cissus RX, malic acid, Co Q-10
bio-sil, beta alanine and true calm help a lot. I'm looking for a good amino acid blend to help with most of the issues and
hopefully will have to use a lot less of dr drugs.
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