Does This Sound Like Fibromyalgia?

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stereofidelic89
Veteran Member


Date Joined Sep 2011
Total Posts : 1990
   Posted 7/28/2012 8:03 AM (GMT -6)   
Since the last week of June, I've experienced pain in different areas of my body that lasts up to a week and then disperses to other areas of my body.

Starting suddenly with my hip flexor (I assumed I overstretched during yoga/hiking)
Then my hand palm/wirst cramping up in severe pain (I assumed too much computer time)
My shoulder (not allowing me to lift above my head)
And now both of my legs (surrounding knee cap areas).

The pain is at its absolute worst during the night. I wake up in pain, can not get comfortable, can't get back to sleep, have to take a pain reliever and eventually get out of bed.

The pains come and stay for about a week, and leave for a few days, like nothing ever happened.

The legs have been the worst, prompting me to see my naturopathic doctor. Extensive testing was done a few weeks ago with Metametrix Labs for gluten intolerance + gut function/immune system, because I do have crohns. And on my tests, my doctor said that my anti-nucleur activity is very low, as well as any auto-immune activity/inflammation, which rhumatologists and fibromyalgia specialists would use to indicate possible disease.

He assumes that I'm not being strict with my GLUTEN-FREE diet and urges me to give it more of a run-through. I can't pin point any activity or foods that could randomly be causing this! I try to eat an anti-inflammatory diet, and as it is I'm not eating refined sugars or fruits at the moment (for candida diet).

Does this sound similar to fibromyalgia? The pains jumping around part?
Meds: 2400mg Asacol daily
Dietary: Candida-Control Diet, Gluten-Free, VSL#3, Phytostan, ParaGuard, Similase, ADP (anti-fungals)
Amazing Herbs: Slippery Elm, Licorice & Marshmallow Root / Peppermint & Chamomile

Grad student, diagnosed severe Crohns/UC - Sept. 2011
In the past, SCD=remission, Metametrix lab tests reveal yeast overgrowth.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 42612
   Posted 7/28/2012 8:53 AM (GMT -6)   
Hi there,

And welcome to the forum. There is a thread called "fibro 101". It is the first thread on the forum. You will find a list of symptoms there and you can look and see what you think. Let us know...

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

nermada
New Member


Date Joined Apr 2012
Total Posts : 14
   Posted 7/28/2012 10:17 AM (GMT -6)   
Hi stereo,

You should see a rheumatilogist. What you're describing sounds familiar to me at least. And the excuses you've been making for your pain, might be the trigger because then again Fibro is famous for overexaggerated pain responses to even the smallest triggers. A few weeks ago, i was in the pool with my boys and their cousin tossing this little soak ball around. Next morning i woke up with incredible pain in my shoulder and arm that i couldn't move my arm without feeling like its broken for a couple of days.
as for the tests you've had done, they are to eliminate any autoimmune diseases such as lupus and rheumatoid arthritis...etc.
Fibromyalgia is not an autoimmune disease, it's a condition that is thought to be related to overactive nerves, whatever that may mean!!!
Anywho, definitely read the fibro 101 thread and try to make an appointment with a specialist.
good luck and try not to over exert yourself in the mean time.

stereofidelic89
Veteran Member


Date Joined Sep 2011
Total Posts : 1990
   Posted 7/28/2012 12:48 PM (GMT -6)   
Thanks. I have crohns disease so I'm familiar all that comes with it, but like I said my doctor suggests that it could be gluten-related pain. He was willing to set me up with a rhum. doctor but thats when he also said they would do very similar testing for all other auto-immune diseases, as I've just gotten extensive test results back from a highly respected lab.

I've already read the fibro 101 thread and unfortunately it was a miss, in terms of my symptoms.

One thing that really stands out is that pain is so awful during the night. I'll wake up, be in full pain (like where did that come from), have to take a pain reliever, have difficulty getting back to sleep and staying asleep. But as soon as I decide to wake up for the morning, pain is lessened (still there), and comes and goes for a few days in different areas of my body.

I'm a very slim-fit guy 22 years old, I've always been active, hiking, running, yoga, etc, this just struck me at the end of june.

I'm taking steps to help myself as I ask for help on here; i'm a regular member on HealingWell btw (Colitis forum).

-Taking Zyflamend night and day, turmeric, devils claw, boswellia, sticking to specific diets, switching to different mattress, and trying acupuncture again.

I don't have depression, don't feel tired, adrenals functioning normally, etc.
Meds: 2400mg Asacol daily
Dietary: Candida-Control Diet, Gluten-Free, VSL#3, Phytostan, ParaGuard, Similase, ADP (anti-fungals)
Amazing Herbs: Slippery Elm, Licorice & Marshmallow Root / Peppermint & Chamomile

Grad student, diagnosed severe Crohns/UC - Sept. 2011
In the past, SCD=remission, Metametrix lab tests reveal yeast overgrowth.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/28/2012 1:35 PM (GMT -6)   
I mashed my finger one day and my hands throbbed for two months. It took taking paxel to dull it down.
Joy
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