I know exactly how you feel! I have not had good luck with many of the meds used to treat Fibro mostly because they make me so tired I'm useless! My ex-husband admitted recently that he was extremely frustrated with my constant "laziness" and now he finally understands what that was all about
. I didn't know what it was all about
either, I just felt like a failure a lot of the time. It has caused me to believe that I am a bad person, and that I don't try hard enough. Something that is very hard to undo even as an adult.
I feel so relieved to have a NAME for this particular symptom of Fibro that really explains my situation.Snowbunny
, THIS: I used to sleep for 10..12 hours when I was a teenager and early 20's and never felt rested...Always exhausted...that bone weary...can't think...can't function fatigue.
THIS WAS ME. Sleeping through my morning classes, never had energy to dress nicely or do my hair, made me feel self-conscious. Couldn't explain it.
I loved Ambien! It was amazing. It worked perfectly for 3 weeks but stopped working for me entirely after 6 weeks and by then I had developed restless leg syndrome and very disturbing daytime symptoms of visual trails, tingling, shakiness, and rapid heartbeat, along with severe fogginess from the daily withdrawal, so I did not want to increase the dose. In fact, I have very similar stories of problems with Lyrica, Neurontin, and even Welbutrin (much as I loved that med). I mostly end up with shakes and rapid heartbeat that gets overwhelming and makes me feel like I can't breathe. (Ambien was extra weird for me.) And I was on some of these for a long time. If I were dealing with just pain, I think some of these would be wonder drugs for me!
I am very glad to hear you do not have as intense of an issue with fatigue. Especially that you can regulate your sleep schedule like that! I'd had conversations with two acquaintances with Fibro who both mentioned that they regulated their sleep and their Fibro went into remission very quickly. I was crushed when I tried it myself and only ended up completely crashing hard time after time. That was 3 years ago. I now sleep when I feel the need to, which is often 12 hours at night and with a 4 hour nap during the really bad days. I hope some day that I can be regulated like you are now. I'm still not sure why the fatigue is still getting worse. It does make me paranoid that something else is going on but the doctor's never find anything.
I would like to get my diet straightened out someday, but I barely get up to eat so I am stuck with easy-to-make foods and such for the moment. I do eat 6 small meals a day, and I love it. I recommend to everyone, healthy or sick.
I have a very sneaky suspicion about
the chemicals we put in our foods and I very much cannot wait to see what information we find about
the link to our health in the future. Either way, I truly believe they WILL figure out what is happening to us, and we WILL be taken seriously!!!
Post Edited (karona) : 8/15/2012 11:24:14 AM (GMT-6)