hi all,
   in march, i was diagnosed with chlymydia, and pid (pelvic inflammatory disease). i also have fibromyalgia, and anxiety. right now, i'm having a hard time sleeping, a lot of changes going on. i've been treated with anti-biotics, and have never been the same. even now i'm having real bad pelvic and abdominal pain. doctors have given me two ultrasounds, a cat scan and a colonoscopy. they've since given up. they've prescribed prozac and thorazine, which i can't stomach..i have an appt. with a new psychiatrist for psych meds tomorrow. also, no one believes me and i know it's not in my head!! it's awful, and never goes away. i suffer everyday. and they won't even give me anything for pain. what they can't see, they ignore. i have good doctors, and the best of care, and they've all given up on me. then, now they all say it's 'stress' and that psych meds are for 'stomach pain.' i really maintain, and have a good attitude..they want to lock me up, in a psych ward..only to get more psych meds (and shots) i can't refuse, and it's real and physical. i think what i have is 'pid scarring', which is very common..anyone can find it doing a google search, but not a single doctor has heard of it. TWO different ob doctors, have to call 9-1-1, every three months, if i do get my period. (pid has made me irregular), i'm grateful i have a beautiful healthy three y.o. son, because i wouldn't be able to get pregnant now..glad to be here, all & any feedback is welcome..

Posted 9/1/2012 11:31 PM (GMT -6)
hi deepwell,
thanks for the feedback. yes, it's very frustrating. i know having pid can cause long term chronic pelvic and abdominal pain. but i'm not sure what can be done. i'm not giving up though. right now, all i'm taking is risperdal, an anti-psychotic, which i'm not sure i need. i've have bad side effects from psych meds. i did ask for 'ambien', to help me sleep. they prescribed hydroxyzine, can take up to (six) a day!! it's a cold medicine, and i'll take one at night once in a while.
they say it's 'psychosomatic', because it's invisible pain. but i also can't complain too much, i'm afraid they will lock me up, and i'll be stuck with whatever drugs they want to give me.
i'm going to find a support group, or other women who have this problem. thanks again for the advice..
Posted 9/2/2012 12:43 AM (GMT -6)
Welcome to the forum. Your not alone with Dr's thinking that our symptoms are somatic. I have been told how could one have so many symptoms. Lol I wish they could live in our shoes for a month. I hope you never give up. It really makes a difference if you find a Dr. that believes in you and you build a good relationship with them. I finally found one. Hopefully you will find that right Dr. for you.

Maybe you will get some ideas that will help your fibro. I remembered I suffered from PID when I was young. It finally went away. This is common in fibromites. I finally stop doing all the big scopes, X-rays and test because they were all normal and all it done was make me poorer. I finally went a more productive route and began to find ways to manage my fibro. It wasn't through Dr's for sure. I learned it from this forum. I hope you can pick up some new treatment ideas from here. It made a world of difference for me. I am now so much healthier and happier then I ever have been. The support is great here. I hope we continue to see you around.
Posted 9/2/2012 7:09 AM (GMT -6)
I'm so sorry for your pain...welcome to the fibro family.

Finding the right doctor and getting an accurate diagnosis is not always easy...it took me years. The search usually begins with our primary care doctor. If they don't run the appropriate diagnostic tests you don't get a referal to a specialist who can help.

I found out the more proactive I was it was easier to develop a relationship with my docs....they actually started listening to me. It sounds as if you are educating yourself about your symptoms and that is great. I try to ask my doctor plenty of questions concerning certain symptoms, if he can't answer them he provides a referral to a specialist...I then get the appropriate tests to see what is going on.

If you are being ignored it is time to look for a new doc. It is important to have a doc and patient relationship built on mutual respect.

Wishing you the best...there are good doctors out there. Good doctors do have time to listen to your concerns and will not tell you it is all in your head.

Hugs, Robin :-)

Fibromyalgia, Heart Disease, Pulmonary Hypertension,
MCTD (Lupus, Scleroderma and RA)
Raynaud's, Degenerative Disc Disease, Osteoarthritis,
Osteoporosis, Hypertension and Migraines
"Where there is a will, there is a way"
Posted 9/2/2012 4:46 PM (GMT -6)
Hi pid. I am wondering...have you had symptoms of psychosis that the doc is giving you Thorazine? I am really concerned about this med.

Or do you have a history of psychosis?

Deepwell has given you some good advice as how to present yourself to doctors. Even though, you may want to spill over into tears of relief that you finally may get some help, it is still good to present a rational, problem solving-like mentality to professionals.

Sending you thoughts of healing and support...
Posted 4/19/2013 1:16 AM (GMT -6)
I know this is kind of an old thread but reading your post hits way too close to home to just pass up. I have Fibromyalgia and also had PID two years ago....I also have endometriosis though....and have this pain that is in my upper left side of my abdomen that is there 24/7 that hurts extremely bad and am at my witts end and don't know what to do anymore....do any of your psych meds seem to help with pain? Another thing to have you tried getting on tramadol? I know it's not that strong of a medication but almost all doctors are willing to prescribe it and it does make a difference.....oh also has your ob considered giving you surgery to laser the scar tissue due to the PID? if not you should ask about it. It could make a world of difference

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