Connie....welcome to the site. I am fairly new myself and have found alot of encouragement and understanding. It is so nice to talk to people that really know how you feel and really know that fibro is real.
I was officially diagnosed in June but I am certain that I have had FM for many years. I am learning very quickly what so many think of this diagnosis!! Like you, I am finding that I just don't share that info with many people. I have been considering filing for SSDI due to a host of other ailments in addition to the FM. I spoke to an attorney today and he told me to "lose fibromyalgia from my vocabulary". He said most of the judges just sit back and roll their eyes at this diagnosis.
Can you believe that? He said to stick strictly with the descript
ion of pain and its
location. I told him I wish the judge could spend a few days in my chair....he would change his mind. I don't think he appreciated my sarcasm but it really made me angry. I have received an official diagnosis from a board certified rheumatologist and I am not allowed to list this as a diagnosis??? So yes, I do know where you are coming from.
My husband had surgery for Arnold Chiari about
15 years ago. I am very familiar with the symptoms of that. Did your surgery correct everything? He still had several issues ie: nastagmus, balance problems and depth perception. I would love to hear your story regarding this diagnosis.
So glad you decided to stop lurking and join us! I think you will be very glad you did. We can all relate and we share alot of information with a little humor thrown it to boot.
Best of luck to you and I hope to be speaking with you again soon.