Hi, Sue, and welcome! WOW! Isn't there something besides Prednisone that they can give you for the PMR? I had to take some Prednisone for Crohn's disease a while back and also for another autoimmune problem and I got quite sick on it. I don't take it now and probably won't, either.
Also, PPI's like Prilosec, Nexium, Protonix, Prevacid, if taken long term, can cause thinning of bones, too. I also have a moderate case of osteoporosis that I firmly believe was caused by my long-term use of Prilosec. Just a heads up. I haven't broken any bones and I've fallen on the sidewalk quite hard, too, so so far so good for me. BUT, I do eat foods that help the bones remodel (creating new bone) so I think that helps a lot, too. I do not take osteoporosis medications.
I don't know a lot about polymyalgia rheumatica so I looked it up and it sounds somewhat like an illness I was just diagnosed with, ankylosing spondylitis. Both are rheumatic illnesses. AS affects the entire spine, including the neck and causes a lot of pain and the spine can fuse, also. My ESR and CRP showed high inflammation for me. I'm using ibuprofen with food and extra strength tylenol for the inflammation. I also take a muscle relaxer and that has made a significant difference in my pain! I'm even sleeping so much better. I would be up usually 4-5 times a night because the pain would wake me and I had to get up and move around and try to loosen the muscles so I could go back to sleep again. Now, I wake up once a night to use the bathroom. Yes, I have a little pain when I first lay down, but it is slight. I also keep moving and that helps me a lot, too. If I sit or lay too much, I'm stiff as a board and have more pain. I walk daily and swim in the summer to help, too. So perhaps this type of regimen could help you. I sure would stop the Prednisone if you are breaking bones like that! That is terrible and I'm surprised your doctor has you continue with that therapy with that type of side effect....just my humble opinion.
Here is a link about polymyalgia rheumatica from the Mayo Clinic. This talks about various treatments for PMR. I know my rheumatologist wants me to take Humera or Remacaid infusions and I won't do that, at least yet, because I'm doing better with the regimen I use. They are surprised at how the Robaxin (muscle relaxer) has helped me with the pain.
I also take malic acid/magnesium supplements and vitamin D3 supplements that help with pain and fatigue from fibro. These might even help with some of the pain of AS. These supplements have helped some members on the forum.
Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there. Good starting links are called Symptoms and A Thorough Explanation of Fibromyalgia. You just might see yourself there. There are also links about the malic acid/magnesium and vitamin D3 supplements and how they work in your body. All of Fibro 101 is good so do read it. It could help you, too.
I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.
Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7