taking a poll:

oh and one more....

where are you having the most pain?

mine is neck, head, shoulders, arms

Diagnosed 2013
Use Baclofen (muscle relaxer) or Tramadol only when pain is level 7 or higher
Most of my pain is right lower side of back/right hip/and arms

I was diagnosed in 2010.
I take flexeril and hydrocodone as needed. 5 mgs of flexeril and 500/325 of hydrocodone. I do not take daily only when I can't stand the pain. I take a lot of vitamins too and a beta blocker daily for blood pressure. I use Midnite (a melatonin mixture with herbs) for sleep and it works very well with no side effects.

I have tried tramadol, lyrica, Cymbalta, Zoloft and I didn't like the side effects for any of it.

I never took topomax but did take Depakote which is similar for migraine prevention about 10 years ago and I gained 30 lbs on it which I lost as soon as I went off it.

I take the following daily:   magnesium, vitamin D3, fish oil, multi-vitamin, Midnite ( sold at Walmart or any drug store, melatonin with lemon balm, and other herbs) works great for sleep, sometimes B-12 for energy and bio-identical progesterone compounded by my pharmacy and vaginal estrodial (estrogen) for vaginal dryness and libido.  The magnesium and progesterone both help anxiety and the Midnite really gives me a good night sleep without drugs.  I also use the Headspace phone app meditations to help me relax.  There are plenty of meditation phone apps available. 

I only use Xanax a couple of times a year if someone dies or I am extremely stressed out.  I use flexeril occasionally as needed for muscle pain and hydrocodone occasionally for pain.  Excedrin migraine helps my migraines. None of these drugs are taken on a regular basis.  I do take a blood pressure pill everyday.

oh yeah - i take melatonin also for sleep...it works for me! Not for a full night, but gives me bursts of lovely sleep

1. I have had fibro over 20 years.
2. I take subutex for pain, magnesium, calcium, vitamin D, remron
3. Subutex 8 mg bid, magnesium 400 mg daily, calcium 600 mg daily, 50,000 units of vitamin D weekly, remron 30 mg HS.
4. I have change my meds many times only to find out the more natural I keep it the better I am. I use it take lots of heavy narcotics which caused me to come addicted to them.
5. I took topomax for a very short time for seizures. I hated it. It gave me terible side effects.
6. My pain is in my joints and mostly all over. Something always hurting.

Lainey- if you decide to drop your klonopin make sure it's supervised by your Dr. That is a drug you want to slowly wean off if you take it frequently. Good luck if you decide to change.

I just remembered on Topamax becareful. you need to taper up on dosages and also ween off it. IE: 5mg week 1 10 mg week 2 so on. Getting off IE: 10mg week 1 5mg week 2

laineyk said...
  1. how long have you had Fibro.?

Diagnosed 9 months ago. Had for 2 years maybe?

  2. What if any meds do you take?

Gabapentin, Tramadol, B12, B6, Folic acid, tylenol, D3

  3. At what dosages do you take these meds?

300mg Gabapentin, 50mg Tramadol, B12- 10,000, B6 ?, Folic Acid 800, Tylenol 200, D3 2 times a week 50,000 

  4. Have you had to change meds during your hx with fibro.?

Gabapentin was added

  5. Has anyone taken Topamax for Fibro.?

Nope

believe me, I know to wean off these meds slowly. been through it a couple xs.

so I take 200mg mag at night, should I add another 200mg during day?

I take fish oil, and nature made multi for ppl over 50

fish, will do

Myself; here it is in a NUTshell,lol

I 1st went on these meds for anxiety only. came off them because I thought I was able to handle the anxiety

went back on because I was wrong

Now am finding that the Zoloft no longer has ANY effect on me whatsoever, thus the need for clonazepam daily.

I think that the Kloni has caused me to have more issues and am scared that its ruined my chemistry in my head.

I will not have a definitive answer in regards to my having fibromyalgia until RA has seen me and runs tests. But if I do have it (which I am almost positive I do) I want to try to do this a more natural approach

28 years since dx

Meds:
I went through just about everything possible on the market about 15 years ago. From amitrip to Prozac to topomax and dozens I can't remember. Now, I live a relatively normal life and use orphenadrine and tramadol rarely as needed (1x mos, maybe).
Each of the hardcore meds I was on years ago, they tried low, med, and high doses. Now, I use tiny doses of what I do use.

Nutrition has been key - identifying food sensitivities and allergies, eating healthful natural - relatively few processed foods - (I had all the tests, but the best test is to remove foods from your diet and reintroduce one at a time and LISTEN TO YOUR BODY. The process took over 6 months, but it was worth it for the life I've lived since.)

I supplement with curcumin, magnesium, vitamin D, co Q10

I worked up to walking/running 1-2 miles 4x week (slowly!) over a few years.

I see a chiropractor - too often, but adjustments bring relief, and occasionally get massages

Pain: neck, shoulders, back... and just about everywhere else on the worst days (which are rare)