Hello fellow FMS friends.
The only reason I even feel the least bit qualified to share some of this info with fellow FM is the fact I am now 66 and I have lived with with severe FMS since I was diagnosed at age 21... following a head on collision when a 16 y.o. kid hit me when I was 4 mo. pregnant. He totaled my car as he ran a red light and lost control of his car and drove over the top of my hood, then over the roof of my car and down the trunk end before hitting another truck behind me,which stopped him. I felt blessed to walk away from that. However, I was injured with severe muscle damage. By the 7th month of pregnancy, I was in constant pain all over my body...as I know you all can relate to, too. So, after doc after doc, Chiropractors and my primary Dr. it became clear none of them could determine what was wrong and wanted to wait until after I delivered my baby to treat me.
At 6 weeks postpartum, I was referred to the top Rhuematologist in the medical community then...who the first visit...after pressing on all my tender points...diagnosed me with "FIBROSITIS," which was the medical term assigned to those patients diagnosed with Fibro back in the mid to late 60's thru mid 70's. However, that diagnosis changed in the late seventy's to early 80's, when the Arthritis Foundation got involved with "Fibrositis" and determined " our condition" was not named properly, because the term, "itis", meant in the medical community, "inflammation." That meant, then, that the term "Fibrositis" meant inflammation of the muscles-which was determined to not be true in alll tests performed, but inflammation was seen in "Arthritis or Rheumatoid Arthritis,' and allowed as a medical dx. since " itis" meant inflammation. "Fibrositis" was determined to NOT be an inflammatory process, so the name was changed by the American Medical Association to the term: "FIBROMYALGIA" since "myalgia" means "muscle aching." Which, I know all of us with this painful dx. know just how badly we really do ache: ESPECIALLY IF IT RAINS.
I know before the weatherman knows that snow or rain is coming.
After delivering a healthy daughter after that head on crash, I felt blessed she was ok. I stayed home with her until she turned 2 when I started working as a Medical Assistant for pediatricians from 1970 to 1979 and then I went to nursing school and In 1981, I became a RN and for allllllllllllll those years I was on my feet constantly. I eventually became a Director of Nursing I have never had a day that I have been totalllllly pain free since that head on collision in 1968 I have tried sooooooooo many meds, supplements, and Heaven only knows how many other things I tried,like: Heat treatments, exercises, soaks, wraps, muscle stimulation; steroids (which nearly killed me) ointments, yadda yadda. If anyone wants info about turmeric, what works, what doesn't (for me anyway during these 45 years of living with this dx.), just ask me and i will share.
What has helped me the most given years of research and trial and error? 8 Hour Tylenol=I use EQUATE brand from Walmart, but you cannot consume any alcohol if taking any form of acetaminophen since it can lead to severe liver damage,even total failure.) Tumeric extract seems to work really good for me so I prefer buying that and other supplements from Vitacost.com: 1) Vitacost Tumeric Extract, 900mg.with Bioperine; 2) ENZYMATIC 'Fatigued to Fantastic' Daily Energy B Complex, 120 veg capsule; 3) Vitacost Multiple daily vitamins for Women over 50; plus several other supplements seem to have made a huge difference in my pain levels, plus other supplements, I'd be glad to share, if anyone is interested. While I am never totally free of pain, the difference is I was at 8-9 level of pain most days and now I am around a 3-4 pain level . I hope this is worth sharing with those of you on this site and helps you as much as researching and using these herbs and supplements has helped me to have better days. It surely was a good day it was when I read about Tumeric and the rest of the herbs I now take for my FMS most of which Ido buy from Vitacost or Walmart, (but I wait for best sales) .
Given I was dx. at age 21 and I am now age 66...and worked until I was 65, I can say that despite how terrible we feel most days, Fibro won't kill you...but some days it sure can make you have fleeting thoughts of how you feel so terrible you might wish you were dead, if truth be told. But after lots of research and more self talk, I have become determined to find ways to enjoy my good days and just find ways to live thru my pain.
My hubby who has arthritis and I both sleep on a very fullllllllllllll, hot, kingsize waterbed tho and I just cannot travel because any other bed makes me fee like i am lying atop a bed of rocks.
My wrist hurts now from the keyboard. But I love this site and all of you I hope have more pain free days. I am so glad I found this educational site.
WILL SHARE MORE LATER.