First of all, I'm sorry that you haven't found a lot of information on your condition thus far, and that its taken this long to get this other diagnosis. I do believe though that this may be an opportunity to find possible better treatment plans and solutions for you. Hopefully you can find a doctor who can help you walk further through this.
Please keep in mind I'm no expert and I'm just trying to figure this out for myself. I do lots of research but have no qualifications except for being obsessed with reading treatment-experiences and reading medical studies so take my advice for what it is: amateur advice from someone unqualified. Each FM person is different and our paths to wellness may differ as well. I hope, though, that I might be able to give you some food for thought:
I think that as you continue to do more research on your specific condition, you should focus on the sleep-aspect and how your quality of sleep might be being affected as well. I think that studies have demonstrated the connection between sleep and FM. I'm going to go into some of this below:
I think that if a person has a condition that is inhibiting his body's release of the correct amount of hormones like melatonin and other hormones, that might be one major cause of his sleep impairment. When sleep impairment is caused, I have reason to believe that this might be a cause of FM-like symptoms and pain (This is my non expert theory, given my research). There was a study done on *healthy* individuals who had no known health issues. These individuals were put through a rigorous sleep-deprivation cycles for day and weeks in which they were woken up before they could get into the deepest stages of sleep. Guess what happened to these *healthy* individuals after not too much time? They started to experience symptoms similar to FM! Pain, brain fog, fatigue, and the list goes on etc. Basically, much of what us FMers complain of. (I wish I had access to the study, but unfortunately I can't remember where I read it). That being said, I believe that sleep disorders may be *one* contributing cause of *some* people's FM-like issues and diagnosis. Perhaps not all, and perhaps not even most, but some.
And what can inhibit sleep? An imbalance of correct or adequate hormones. And what can cause an imbalance in hormones? Probably lots of things.
Another example of how the FM syndrome may be inter-connected with adequate sleep structure:
In a study, FM patients went on the drug Xyrem, which is one of the *only* medications known to correct and restore stage 3 and 4 stage sleep in individuals with stage 3 and 4 sleep impairment; their FM pain reduced in some cases over 30%, and their brain fog lifted and energy levels restored to a significant degree. Their symptoms were simply not masked, but reduced! This, to me, is a big deal. It demonstrated that you can alleviate FM symptoms for a significant portion of FM-patients when you restore deep sleep! And it also proves that a substance exists which can do this for a portion of FM-patients. I think correcting impaired sleep may be key in some FM patients, although perhaps not all. (I'm one to believe that not all FM patients are dealing with the same causes of pain, but that's my unqualified theory, once again)
(Xyrem is a heavy duty drug that isn't easily accessible and also has significant side effects, so I don't bring it up as a possible solution, but mainly to demonstrate the connection between sleep-disorder and FM)
I think balancing hormones might be key in some cases of sleep impairment or fatigue and pain, specifically when an FM patient is dealing with 'unrefreshing' or impaired sleep.
Admittedly, I don't know much about
your specific condition. I'm sorry if I'm speaking out of place. It seems that right now you are in the information-gathering stage. I only offer these thoughts as possible things to take into consideration as you continue to find the best plan for you, and to get your body into better balance. But, in summary - I believe you should continue to consider how your sleep might be affected, and whether or not the cyst may have any influence on that. Perhaps it may, perhaps it may not, but I think its worth some investigation as you move forward.
Once again, I'm no doctor, so always consider your doctor's advice.
Keep us updated!
Post Edited (CharmCityLady) : 11/8/2013 5:20:13 PM (GMT-7)