Posted 11/19/2013 9:18 PM (GMT -6)
Hi everyone, I've been reading the forums lately but been holding back a little. My name is Jennifer, and I was "diagnosed" with FM a little over a month ago, but I've had symptoms for the better part of 10 years (the doctor tells me I have FM, but refuses to note it in my medical chart). I've also had migraines for the past 2 1/2 years. I've tried so many different things for the migraines (Zoloft, Wellbutrin, Depakote, Inderal, Imitrex, Fioricet) which of course did nothing. The doctor put me on Effexor, Neurontin, Robaxin, and Naproxen...which isn't helping. I'm of course allowed to take Tylenol and Ibuprofen...which have the efficiency of tic tacs. I've tried telling him that since starting this treatment plan, I've had more bad days than good (I've had 4 good days in the past 4 weeks). I'm more depressed, my body constantly hurts, I don't want to do anything but sit on the couch...and when I force myself to actually do housework I pay for it later that night. I've had a headache for the past 2 weeks straight (but just keep throwing Tylenol and Naproxen at it, I'm sure it will eventually work! /sarcasm). My marriage is starting to suffer significantly because my husband is now doing the bare minimum that needs done around the house, and I've considered leaving him and my daughter recently because I'm so tired of being such a burden. On top of everything else, I have a strong family history of Psoriatic Arthritis and Lupus...double whammy. But yet my doc doesn't want to explore any testing for either of these. So I saw him today for my monthly checkup and I told him that this isn't working...I'm feeling worse than I did before, and I have absolutely no pain control (unless I take the odd Percocet when I'm at my mom's house). His plan? Take Tylenol or Naproxen. I started bawling, telling him that none of these work, I could overdose on both before I even see a dent in my pain. Then I made the mistake of telling him that the codiene worked...and the 2 doses that I did take, I was finally comfortable (and energetic) enough where I could actually clean my house. Now he wants me to see a Psychiatrist instead because he feels that the majority of my pain is in my head, not my body.
I'm fairly knowledgeable when it comes to FM thanks to being in the healthcare field for the past 10 years, and both my mother and my grandmother having FM for the past 25 years. I try and do some light exercise, stretching, things like that, but these aren't helping. I'm at the end of my rope. I don't know what else to do. Why is it that the things that help the pain are the things that (according to my doctor) are 'absolutely forbidden' in Fibromyalgia? Why do I deserve to live my life like this? What happened to my right to have my pain as controlled as possible? What am I doing wrong? Should I just give up, and accept that there is no salvation to the pain I'm in, and just suck it up? Or should I just bail on this doctor, and try and find one that will actually listen to me?