Posted 11/23/2013 2:39 PM (GMT -7)
I only started taking ER pain meds in January. From May 2010 to Feb 2011, I was maybe taking 1 percocet a day, and tried a few muscle relaxers. I wasn't getting it filled every month, though, as that doctor would have mood swings and suddenly freak out and refuse to write a new script. Prior to that time I never took anything, as no OTC's helped. I did also take Darvocet, which seemed to help a little, but of course they stopped making that...
I switched to a PMD, and from Feb 2010 until I think Nov 2012 I was taking up to 2 percocet 5mg/day and muscle relaxers. Then she bumped me to 3. Also, nausea meds, and Baclofen (daytime muscle relaxer) and Tizanidine (nighttime muscle relaxer). It wasn't nearly enough for the pain, for sure, but during that time I was trying a bunch of different treatments, pretty much all of which were my idea. Some of those things are at least a little helpful, so now I do a variety of things, and take my scripts on top of that.
Really in all this time, and even now when I can take more per day, I had to choose when to use the pain meds and when to just power through the best way I knew how. Not that it's the ideal, but I think it's the reality. Some PMD's will say their goal is to have you at a 3 most of the time (I wish), but mine doesn't even have that as a goal. Her goal, as she said it to me, is to give me enough meds to keep me from doing anything crazy, like experimental surgeries or…
This past January my PMD finally gave me ER meds - but in reality, I never doubled my doses or ran out of medications early in almost two years with her, and she knew that I tried and continued to do a variety of things to help my pain. Without those two factors, I don't think she would have ever increased my medications, even though she knew that I wasn't getting sufficient pain relief. Most doctors seem reluctant to prescribe, and when they do it seems they have to be cautious to the point of leaving us in pain, which I understand in theory- but in practice it's really hard for CP sufferer's!
Now I take 15mg Opana ER 2x/day, and 7.5/325 percocet 4x/day, plus muscle relaxers as needed, Gabapentin, muscle relaxers, Lidoderm patches and Voltaren gel, and a few targeted supplements. We have figured out that I do not get the same level of relief that others do from medications. The perocet really only reduces pain for about 2.5 hours for me, rather than the 4-6 for others. It's always been that way, even when I first started taking them.
For now I spend most of my days around a 5 on the pain scale, if I keep my brain busy it's an effective 3-4 - so I can't afford to not keep engaged mentally activity almost every waking minute, so I have a lot of hobbies. Mornings suck - I wake in extreme pain and it takes 2-4 hours to get it down, and my last 4 hours or so every day I'm back to bad pain, with 4-5 nights a week reaching excruciating. For me this is pretty good pain relief, but it's been a long road getting here. But, it also goes to show that we have to give up the idea of ever having "enough" to eradicate the pain, though I think there are a select few who can achieve that.
Sorry this is so long, I'm recovering from trigger point injections and prolotherapy, so I have too much time on my hands today.
TMJD - Fibromyalgia -Mayofascial Pain Syndrome - arthritis