Well. Honestly I haven't had internet for five years - I was on these forums back when I first was diagnosed.
I was diagnosed in my early 20's. I was experiencing an array of symptoms and having no support at home I believed my doctors understood what was going on. I was niave.
I didn't understand that doctors could prescribe medication with the "hope" that it would alleviate symptoms and that the medications they were trying me on would have side effects. I've taken gabapentin, lyrica, Effexor, amitriptyline and took Ativan for panic attacks.
My anxiety stemmed from my health drastically deteriorating. There were times where I couldn't get up my stairs. I was scared and confused at what was happening to me. I had symptoms when I was a kid, but after a very stressful experience it flared up.
My doctor told me that the western medical system was not designed for people with my condition and that there were some things in life worse than death, and I had it. - he was frustrated that he couldn't just "cure" me. I haven't seen a doctor since and went off all my medication. (I could blab on about ignorant doctors - the medical system on the islands I live on have a high turn-over rate)
I haven't taken any medication for 3 years now - except Cannabis (which I'm ashamed of, since its not necessarily legal) which I find has its own side-effects, but the side-effects are less than the medication I was on before - I couple it with an honest attempt at regular exercise. I've found, the more muscle mass I have the less symptoms I have. I still have my bad days - and the pain doesn't really go away.
The way I explain it to people is that I can compartmentalize the pain most of the time, but if I add stress or I'm over tired, I can no longer mentally cope with the pain and the pain consumes me. I hate that I'm not comfortable talking about my condition to my peers. In all appearances, besides only working part time, people would never guess I suffer from it.
Are there any other fibro-sufferers who have been able to not take meds? I'm really curious if I am causing myself a detriment, maybe my quality of life would be better if I found the right combination. I know I should be seeing a doctor, but my experiences with them were poor.
Anyways. Thanks for reading.