Today I had coffee with an acquaintance who I'm just really getting to know. We'd talked before about both being somewhat disabled, and I thought she'd said she had Fibro, but it turns out that no....on her new Medicare form, a doctor wrote "CFS," but even he doesn't think that really fits her.
No one knows what's wrong with her. She's had every test known to man. It started when she was 27 (she's now 60.) After a game of racquetball, her legs and hips became extremely sore, and just stayed that way. She can't walk more than halfway around the block...it makes her legs hurt really badly, and the extreme pain will last for weeks. Resting between activities doesn't help. She can't sit too long, either - her lower back will chime in. So she has to spend most of her time lying down. She can't sit through a whole movie. She was a very active person previously, and she's bored out of her mind. And depressed.
It really put some things into perspective for me. With all my pain and limitations, I can get around pretty well. I can walk, sit for hours (with breaks), drive places. We so often say it on this forum, but it's easy to forget: with Fibro, as long as we pace ourselves, and listen to our bodies, we can live a largely normal life. We will always have pain and fatigue and many other maddening symptoms - but they're not completely debilitating with the slightest movement EVERY time we try to do anything.
Not so for my new friend.
Moderator, Fibromyalgia Forum
Fibromyalgia, degenerative disc disease, discectomy L4-L5 - (w/lots of Sciatic Nerve damage), frozen shoulder, Hashimoto's Thyroiditis, IBS, migraine, dizziness (mostly from visual stimuli), elevated liver enzymes, tachycardia, hearing loss (probably Menieres).
Post Edited (Acheybody) : 11/23/2013 12:03:17 AM (GMT-7)