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skin on FIRE
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laineyk
Regular Member
Joined : Sep 2013
Posts : 234
Posted 11/30/2013 2:00 PM (GMT -7)
I am going to post this on anxiety forum also because I just have no clue (and neither do the Drs.) know what causes this.
It happens mostly when I am 1st waking up, My arms, back and hands all fall like I have a severe sunburn. It lasts for at least 1/2 hr or more. ususally goes away once I get up and start MOVING. could this be Fibro related?
Acheybody
Veteran Member
Joined : Nov 2008
Posts : 6009
Posted 11/30/2013 10:17 PM (GMT -7)
Gee, Lainey...I have no idea.
But it sounds awful! Did you get any help on the anxiety forum?
Debbie
Moderator, Fibromyalgia Forum
Fibromyalgia, degenerative disc disease, discectomy L4-L5 - (w/lots of Sciatic Nerve damage), frozen shoulder, Hashimoto's Thyroiditis, IBS, migraine, dizziness (mostly from visual stimuli), elevated liver enzymes, tachycardia, hearing loss (probably Menieres).
diznyfrk
Regular Member
Joined : Aug 2013
Posts : 298
Posted 12/1/2013 7:33 AM (GMT -7)
Lainey, this is exactly what happens to me. Usually when I first wake up and off and on during the day. Once I take gabapentin, it goes away for a while, so it must be related to the nerves in the body. I have often told my brother that it feels like my veins are on fire.
Sharon
Rheumatoid Arthritis, Sjogrens, Fibromyalgia, Chiari 1 Malformation, Osteoarthritis of the hip and neck, Heart Murmur, Acid reflux/gerd.
laineyk
Regular Member
Joined : Sep 2013
Posts : 234
Posted 12/1/2013 7:49 AM (GMT -7)
Sharon, well at least someone can relate, it feels like a bad sunburn to you too?
do you have any anxiety?
Married, three grown children and two grandchildren/ Christian
Anxiety/depression with a little OCD in the mix/ Fibromyalgia dx Sept 2013, after having two severe stomach infections/ dry eye/ menopausal...shall I go on?
Meds: Zoloft 50mg, weaning off slowly, no longer works
Clonazepam .5 mg BID
Motrin when pain is 7-10
crazykitty
Veteran Member
Joined : Jul 2009
Posts : 4796
Posted 12/1/2013 10:01 AM (GMT -7)
Do you get any light redness at all with it? At one time I would get erythema...the capilaries would become inflammed and I would feel like I had severe sunburn in different areas of my body. Sometimes my entire back would be involved or maybe just the size of a baseball on my thighor stomach. It would last up to an hour or so and would dissapear. I haven't been bothered with it for a few years now.
Sometimes during bad flares I feel like there is hot oil and shards of glass coursing through my veins.
Make sure to mention it to your doc. Good luck to both of you :)
Hugs, Robin
Fibromyalgia, Adenocarcinoma survivor, Lung Lobectomy, Heart Disease, Pulmonary Hypertension,
MCTD (Lupus, Scleroderma and RA)
Raynaud's, Degenerative Disc Disease, Osteoarthritis,
Osteoporosis, Hypertension and Migraines
"Where there is a will, there is a way"
laineyk
Regular Member
Joined : Sep 2013
Posts : 234
Posted 12/1/2013 11:37 AM (GMT -7)
no redness at all just feels sunburned
Married, three grown children and two grandchildren/ Christian
Anxiety/depression with a little OCD in the mix/ Fibromyalgia dx Sept 2013, after having two severe stomach infections/ dry eye/ menopausal...shall I go on?
Meds: Zoloft 50mg, weaning off slowly, no longer works
Clonazepam .5 mg BID
Motrin when pain is 7-10
sofina
Regular Member
Joined : Oct 2013
Posts : 73
Posted 12/1/2013 12:10 PM (GMT -7)
I have this sometimes when waking up only on hands and sometimes it doesn`t burn but itches.
spinal soldier
Veteran Member
Joined : Dec 2009
Posts : 687
Posted 12/3/2013 3:00 PM (GMT -7)
have any of your physicians mentioned scleroderma? it is another auto-immune syndrome they say.
L4,L5,S1 bilateral Laminectomies, Foraminotomies 2002
L4-S1 PLIF with instumentation 2008, Intractable Cardiac-Adrenal Syndrome, high BP,Tachycardia, Agoriphobia
current Rx: MScontin 400mg/24hr, dilaudid 40mg/24hr, oxycodone 150mg/24hr ,phenergan 25mg , gabapentin 600mg 3/day, soma 3/day, diazepam 10mg 2/day prn, dexedrine 10mg 1 upon waking 1 3pm, elavil 100mg HS, clonidine 0.4mg/24hrs
Wackers34
Veteran Member
Joined : Apr 2013
Posts : 694
Posted 12/4/2013 12:06 PM (GMT -7)
i had this at beginning of my illness. Ive not had it though since being on amitriptyline, which tells me mine could be nerve related, as this is meant to help with neuropathic pains...i do know this can be a symptom of anxiety also, which I also get
Diagnosed with Fibromyalgia in March and now looking for friends to help me in my fibro journey :o)
diznyfrk
Regular Member
Joined : Aug 2013
Posts : 298
Posted 12/4/2013 1:10 PM (GMT -7)
laineyk: yes, it does kind of feel like a sunburn without the redness. I feel it mainly in the upper half of my body. My skin gets very sensitive to touch and my doctor said all of this is related to fibro.
Sharon
Rheumatoid Arthritis, Sjogrens, Fibromyalgia, Chiari 1 Malformation, Osteoarthritis of the hip and neck, Heart Murmur, Acid reflux/gerd.
laineyk
Regular Member
Joined : Sep 2013
Posts : 234
Posted 12/4/2013 2:39 PM (GMT -7)
wow so glad (not for you) that someone can relate. Mine happens mostly in the morning, but I do get it at other times occasionally.
I am so fed up with feeling so CRAPPY all day long....just wish there was an answer
Married, three grown children and two grandchildren/ Christian
Anxiety/depression with a little OCD in the mix/ Fibromyalgia dx Sept 2013, after having two severe stomach infections/ dry eye/ menopausal...shall I go on?
Meds: Zoloft 50mg, weaning off slowly, no longer works
Clonazepam .5 mg BID
Motrin when pain is 7-10
diznyfrk
Regular Member
Joined : Aug 2013
Posts : 298
Posted 12/4/2013 3:35 PM (GMT -7)
Me too! It actually hurts and makes me feel so much worse.
Sharon
Rheumatoid Arthritis, Sjogrens, Fibromyalgia, Chiari 1 Malformation, Osteoarthritis of the hip and neck, Heart Murmur, Acid reflux/gerd.
acupofme
Regular Member
Joined : Dec 2013
Posts : 28
Posted 12/4/2013 5:22 PM (GMT -7)
I to get this, my dr. Believes its related to my nerves. Its not nice for sure
Reanna
Regular Member
Joined : Apr 2013
Posts : 90
Posted 12/4/2013 10:30 PM (GMT -7)
This is how a lot of my flares start -- the constant sunburned feeling. It gets so bad that clothing or blankets touching my skin puts me in agonizing pain.
My Diagnoses:
Migraines (since appx 1997)
Depression/Anxiety - 2004
Bi-polar disorder - 2006 (recently changed to "mood disorder otherwise not specified" by new psychiatric nurse practitioner?)
Fibromyalgia - 2012
Take:
Wellbutrin SR
Klonopin
Geodon
Flexeril (stopped 4/23)
Tramadol (as needed)(more regularly now that I am off Flexeril)
Amitryptiline (to aid in sleep)
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