Natural Remedies & Supplements?

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jlm8149
New Member


Date Joined Jan 2014
Total Posts : 3
   Posted 1/8/2014 10:12 AM (GMT -6)   
Hi all,
 
I am normally a "lurker" on these types of sites but wanted to get some input from others with fibro. I am 29 and was diagnosed 4ish years ago. I currently only take 1 medicine prescribed by my doctor, and that is flexeril to help my legs. I normally take 2 ibuprofen during the day to "dull" the pain, but that's it. I do not take any narcotics as they have never been offered to me, and they have made me sick in the past when I have been prescribed them for dental procedures and my gallbladder surgery.
 
I would like to learn more about natural remedies and supplements... and I have tried a few, but I am not too sure that they were helping, although I thought they might be. I tried Inflamacare (pain supplement) and while I thought it was helping, I haven't taken it in a while and I'm not really seeing a difference. I also tried Magnesium Malate and I don't think that helped, either. Maybe I didn't give it enough time?
 
My pain varies but my worst pain is in feet/legs, hands, occasionally shoulder, and hip.
 
Any tips and/or recommendations are greatly appreciated! 

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 1/8/2014 10:37 AM (GMT -6)   
Hi, welcome to the forum!

There are a number of ways to treat fibro without using prescription meds. One of the best treatments is exercise. Getting in a daily walk and doing gentle stretches during the day is very beneficial. Using moist heat also helps with sore achy muscles. I found deep breathing exercise and meditation to help with stress and pain too. Doing things you love is a great way of distracting pain also.

Supplements like Vitamin D-3 and Vitamin B-12 have helped me with achiness and energy.

I also have been on prescription meds for fibro.., Savella and flexeril that are helpful. Trial and error, finding what works is common...we are all so different.

Hoping you find a great combo that works for you! Glad you have joined us. keep posting, we care:)

Hugs, Robin
Fibromyalgia, Adenocarcinoma survivor, Lung Lobectomy, Heart Disease, Pulmonary Hypertension,
MCTD (Lupus, Scleroderma and RA)
Raynaud's, Degenerative Disc Disease, Osteoarthritis,
Osteoporosis, Hypertension and Migraines
"Where there is a will, there is a way"

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 42613
   Posted 1/8/2014 10:55 AM (GMT -6)   
Hi jlm1849,

Welcome to the fibro forum... There is an awesome thread called "fibro 101" at the top of the forum. It is the first thread. You will find a lot of help there.

You took the magnesium malic, is it the same as malic acid? If so, did you give it time to work? I started out really slow on it and worked my way up.

I agree with Robin, exercise helps so much. I am in a very cold climate right now and haven't been able to get out and walk. I sure see a difference when I can walk. I feel much better. I have been walking in place, it helps. I do that to music. Makes it more fun...

I wish you the best. Keep posting, you are among friends here... We all support eachother...

Best wishes for a good day...

Hugs, Karen...
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17897
   Posted 1/8/2014 12:49 PM (GMT -6)   
Hi, JLM, and welcome! I use magnesium malate and, yes Karen, this is the same as malic acid/magnesium supplements. The magnesium is bound to malic acid that can be found in apples and the body then recognizes this as food so it is one of the best absorbed of the magnesiums. Magnesium Oxide does not absorb well.

How long did you take the magnesium malate? It has helped quite a few members here but yet there are some that it didn't help. Unfortunately, with this illness, what works for one doesn't necessarily work for another. It's trial and error.

I also take vitamin D3. Many people...not just ones with fibro...are deficient in this vitamin and this can cause pain and fatigue. I was checked, was low, and I now take 5,500 IU of D3 a day. I live in sunny Florida and was still low in vitamin D because I wear sunscreen when I'm outside.

Other supplements that help me with pain are CoQ10, which is an enzyme found in nearly every cell of our bodies, and I also take krill oil. Fish oil gives me diarrhea but krill oil doesn't. Krill is in the shrimp family. You can google this and find a lot of good info about these.

I also use ibuprofen with food but I take three at a time (600 mg). Two at a time did nothing for me. But be sure to take with food to help protect your stomach since ibuprofen can cause stomach ulcers. I also use Tylenol as needed.

If you keep moving, you will do better, too. Since you are so young, you probably do move a lot. Pacing yourself helps, too, along with gentle massages. So, there are quite a few things you can do to help yourself without taking more powerful medications. The only prescription med that I take for fibro and another illness I have, is a muscle relaxer called Robaxin. This has made a significant difference in my pain and I take fewer doses of ibuprofen because of that.

Be sure to read Fibro 101...the first thread on the forum. There are good links about fibro and you will learn a lot there. There are links about magnesium malate and also vitamin D3 and how these work in your body so you might want to check those links out, too.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

jlm8149
New Member


Date Joined Jan 2014
Total Posts : 3
   Posted 1/8/2014 1:43 PM (GMT -6)   
Thanks all for the warm welcome! It's appreciated.

To be honest, I keep my fibro a secret. The only people who are aware that I have it are my Mom and my best friend, both of who are supportive and understand that I'm just not making stuff up. Being young, I don't expect most of my friends and/or peers to understand or believe what I'm going through. On some days, it's tough to hide it, but I prefer it to be this way.

I will definitely try taking the magnesium malate again. Is there a good dosage to start off with..? How long should I try it out?

As far as vitamin D goes - I wasn't low the last time I had bloodwork done, which I admit, has been quite a while. I may be low now. I do know that these wind chills of -30 in the past 2 days have not helped my body! :)

I'm an accountant - so my job is sedentary. When I have sat at my desk for a while and go to get up - I literally feel like my bones and joints are 100 years old. I DO notice that when I get moving and walking for a bit, that I do start to "loosen" up and feel a little better, but that is also hard with a high volume job. I have a recumbant exercise bike and I would like to get in a routine of riding it every night to possibly help with the pain.

I am constantly doing research on this disease and I'm always open to suggestions on what to do/take/try!

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 42613
   Posted 1/8/2014 1:59 PM (GMT -6)   
Sherrine would know more where to start with the magnesium, I do know you need to start slow because it can cause diarrhea. I have found it really helps with the muscles. Also guaifenison, I spelled that wrong. It is what is in musinex. That helps the muscles too.

I am sorry that you had to get this so young. I was in my early 40's when I got it. But reading here and getting support and answers can help you to still have a good productive life. And attitude helps. You got to think positive.

Keep moving. If you exercise late in the day, it gives you energy so it might interfere with sleep. I would set a time like 6:00 and no later.

I walk as much as I can. I haven't been able to this winter much. But today is nicer and I might try to get out and walk or cross country ski...

Take care and have a great day!

Hugs, Karen...
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

stinky634
Regular Member


Date Joined May 2012
Total Posts : 167
   Posted 1/8/2014 5:06 PM (GMT -6)   
I got it young too, and it does suck to try and explain it to everyone that I can't do certain things because my body hurts. Especially yelling it to someone over 50, haha.

I got sick if the Meds and worked one exercise and diet. It's amazing how much impact treating your body well will have on your health. My pain is not gone but it's leaps and bounds from where it was. I'll let you research the diet as to not upset the higher ups here about discussion diets, but again it's a huge part of our healing for a lot of us. Read the food thread, look up different diets and try them out, I notice I have a 2 week period before I started seeing results from gluten, so give it a few weeks of whatever you are trying, vitamins or food or whatever.

Constantly moving is beneficial to me too as everyone has mentioned. Even though it may suck sometimes you just gotta do it to avoid getting worse.

Vitamin D has helped I think too.
1984 male, fibromyalgia, IBS

Omeprazole 20mg, Vitamin d, tramadol

AnnaBananna
Veteran Member


Date Joined Jun 2013
Total Posts : 789
   Posted 1/9/2014 1:38 PM (GMT -6)   
Ugh, my hand pain never goes away regardless of what I do/take. The only time I don't notice it is when I am busy. I do think typing on my keyboard keeps my hands 'loose' but its awful when I wake up. I can't open a door, put on socks, etc. After time and moving them a lot (petting my kitties helps with this!), they tend to me more flexible. For my feet pain, the ONLY thing that has helped has been Lyrica. And sadly, my feet is the only thing it benefits.

Other than that I take my opiates for muscle/joint pain and have started taking coconut oil. Man, that alone has done wonders for my fibro. It has corrected my GI, it reduces inflammation, and has severely increased my endurance throughout the day at work and well into the evening. This is a new addition (I'm going on 9 days) so I don't have any long term anecdotal info for you but I am happy so far. I also take strong probiotics (haven't noticed anything from that). I still have to take advil (it just works better for me than tylenol) but it's been dramatically reduced. I recently 'took myself off' fent patches with the approval of my pain doctor. We're seeing if it's doing more harm than good (I started to think the adhesive was giving me systemic allydonia, and I haven't had it since I stopped, hmm).

I guess that's it, outside of general vitamins. But even then, I get much better energy from coconut oil than the B12 in my vitamin regimen. But we still need vitamins. I tried to do the magnesium thing but I didn't find any changes in my body, so I will leave that to Sherrine. :)

I also went gluten and sugar free recently and have been very happy with the results, although I am not sure how long I can sustain it. I think sugar really hurts us fibromites, i just don't have any science to back that statement up. lol

Good luck!

Wackers34
Veteran Member


Date Joined Apr 2013
Total Posts : 694
   Posted 1/9/2014 2:39 PM (GMT -6)   
hmmm Annabananna - im interested in coconut oil...where did you get yours?

Im the same - have found magnesium malate to help somewhat, I used the one suggested on fibro 101...I also take vitamin C, Olive leaf, fish oils, eve primrose oil, B complex, and co enzyme10...was taking vit d but my levels were exceptionally high, after blood test so was advised to stop.

I take a lot to tackle my immune system - I have not had a proper cold for a long time now

Also D Ribose is a good powder supplement for energy and whey protein powder in a smoothie can help...I alternate these.

I recently found out I have adrenal fatigue also, so I was prescribed Adrenal cortex by a nutritionalist...not sure if these help or not yet?

I take melatonin for sleep - these are also good immune helpers

I took a pro biotic, but not sure it does anything for me

I have also dipped in and out of homeopathic remedies, along with massage and acupuncture...they all help a bit, but im still trying to figure out a good regime for me

Hope that helps a bit..warm hugs x
Diagnosed with Fibromyalgia in March and now looking for friends to help me in my fibro journey :o)

AnnaBananna
Veteran Member


Date Joined Jun 2013
Total Posts : 789
   Posted 1/9/2014 2:51 PM (GMT -6)   
Sprouts. It's like a smaller version of Whole Foods. I purchased the Nature's Way organic, virgin, for $10. I have taken 3 tbl a day for 9 days and I am not half way through it yet so it lasts for some time, but there is an expense that you'll need to find room for. But, I am serious, it's ability to energize without tanking the adrenals is awesome. Just do not eat any after, say, 2pm. I had a hard time going to sleep...

PhDiver
New Member


Date Joined Sep 2013
Total Posts : 2
   Posted 1/9/2014 2:58 PM (GMT -6)   
I can only tell you what works for me! I have migraines as a result of my chronic pain that seems to originate in my neck and spread throughout my entire body. In addition to Lyrica which I am prescribed currently and Nuerontin which I've been on before I actually supplement with this stuff called Nerve Numb-er (it seems to enhance the effects of the prescription. It was recommended to me on another forum. Don't take my word for it though read the cited literature on their site yourself:

http://www.elkhavenherbals.com/products/4575298865

Trix007
Regular Member


Date Joined Apr 2013
Total Posts : 113
   Posted 1/12/2014 2:44 PM (GMT -6)   
Costco started carrying organic coconut oil about a year ago - it's a huge tub for the same price as the medium ones that we used to buy at the food co-op. It's the exact same brand. In addition to taking coconut by the spoonful, you can use it in cooking and baking. I also use it to condition my hair, on my face for minor skin breakouts, and as a moisturizer if I get dry patches of skin anywhere. It is truly an amazon product!
TMJD - Fibromyalgia -Mayofascial Pain Syndrome - Osteoarthritis (shoulder, spine, knee) - Central Canal Stenosis - bulged discs in the cervical and lumbar spine

DianeB
Veteran Member


Date Joined May 2013
Total Posts : 1352
   Posted 1/21/2014 5:22 PM (GMT -6)   
Just came across some herbal info on Susun Weed's forum / site - which has a search function ..
( yes her name is spelled with 2 'u's )
Diane
Old enough to be a grandma !
Herniated cervical discs & other disc / spine issues, Arthritis,
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis
Fentanyl, oxocodone & muscle relaxers - 1,000 Vit D & multiple daily vit

txcola
Regular Member


Date Joined Jul 2013
Total Posts : 194
   Posted 1/23/2014 8:38 AM (GMT -6)   
I take one 1000 mg extra virgin coconut oil daily ( when I remember LOL) it has helped significantly, I also do d3, and b12. If the pain gets very intense I eat turmeric or curry. If nothing else helps a hot tub and baclofen work wonders.

designcharm
New Member


Date Joined Aug 2018
Total Posts : 2
   Posted 8/8/2018 3:02 PM (GMT -6)   
I've been a fibromyalgia sufferer for over 10 years now. I've taken mostly just Prozac, and Nortryptiline as far as prescriptions go.

Naturally - I've tried the magnesium which worked for a little while but doesn't seem to help the big 'ol pains.

I did a bunch of research on essential oils and made myself a blend that is a nervine, anti-inflammatory blend and it seems to REALLY help with the pain. I've kept the recipe proprietary because I'm considering turning it into a business one day. The results were absolutely phenomenal. If anyone is interested in the recipe you can send me a message.

The key in this blend is the helichrysum and the german chamomile. Take a look at those two online and go ahead and make your own blend - I apply just a little before bed in my major trouble areas (for me it's hands, wrists, fingers, toes, and feet) and the pain is literally gone in under 5 minutes.
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