Posted 3/29/2014 6:34 PM (GMT -6)
Hi Mugrad03, I was told that I did not have Celiac based on blood tests, so I continued to eat gluten. After a while, I decided to try going gluten free anyway, in case I had non-Celiac gluten intolerance. It helped me a lot! I kept to it because it made such a difference. Then some people started to convince me that Celiac was the only "real" gluten intolerance and it must all be in my head. So I started having bits of gluten when I was with those people. Then my new doctor ordered a blood test for Celiac for me - testing for IgA antibodies, IgB antibodies, total IgA, and TTG. It showed up that I have IgA deficiency, which had skewed my blood test results in the past to look negative even though they were really strongly positive. Also, it showed positive for TTG levels, even though I've only been having small amounts of gluten infrequently.
My main Celiac symptoms have been: joint pain, neuropathic pain, brain fog, migraines, headaches, anemia, fatigue, anxiety, depression, weakness, constipation alternating with diarrhoea, severe stomach cramps, nausea,
Basically, based on my experience, I recommend you do this:
1) ask for a blood test that tests for IgA deficiency, TTG levels, IgA antibodies and IgB antibodies.
2) negative blood test > trial gluten free because you may have non-Celiac gluten intolerance (even if you don't have digestive symptoms; you may have an atypical presentation)
2) positive blood test > have an endoscopy to assess internal damage and confirm Celiac diagnosis > then go gluten free AFTER the endoscopy
Going gluten free will be beneficial if you have Celiac or non-Celiac gluten intolerance.
Conditions: Celiac disease, Fibromyalgia, Chronic Fatigue Syndrome, neuropathic pain, FODMAP intolerances, allergies, anxiety, depression, acid reflux, dermatitis, tinnitus, and more.
Being tested for: Lyme, Lymphoma, Bartonella, thyroid disorders.
Goals: to be an occupational therapist; to explore and change the world. "Reach for the moon; even if you miss, you will land among the stars."