Posted 4/8/2014 7:00 PM (GMT -6)
I am sorry to hear this - but at the same time you've been given the chance to sort out your health while you're young, before it becomes a chronic illness.
I got sick with FMS (or at least it worsened dramatically) when I was 16. I was referred to a pediatric rheumatologist, and she organised for me to be admitted to hospital for 4 weeks for comprehensive testing to see what was going on. When the spot in hospital was finally available (after months of waiting), my symptoms had improved (they weren't gone, just not debiliting anymore) and my mum told the doctor that I didn't need to go to hospital anymore.
The trouble was this - fibromyalgia flares up and it goes down. Sometimes you can feel so much better, other times the symptoms come back with a vengeance (flare-up). When my symptoms flared up again a few months later, it was hard to get into hospital because I hadn't taken the opportunity the first time (but it was my mum, not me, who had rejected the opportunity).
Then when I was 18, and I asked again without needing parental permission, they said there was no point because I am no longer technically child so I cannot get pediatric testing and treatment. Studies show that children and adolescents with fibromyalgia have a much better chance of getting better than adults, provided they have treatment in time.
I just want to warn you - don't let what happened to me happen to you. See a pediatric rheumatologist ASAP and make sure they test you for EVERYTHING that could be causing your symptoms. Get a very definitive diagnosis so that you never wonder, "is it really fibro or is it something that could have been fixed or is it something worse than fibro?" The sooner you find out the causes of your symptoms and treat the causes, the better your chances of complete recovery and not having to deal with FMS for the rest of your life.
It's hard getting it at 16 - you're trying to succeed in high school (and in my case, trying to get good marks for university entry) but the fatigue affects your abilities to study - not to mention the fact that it's often hard to focus on schoolwork, sleep, eat, move, even speak sometimes, when you're in a lot of pain. Not even mentioning socialising.
Stick around here - we'll give you management tips. If you want to know more about other things that could be causing your symptoms apart from fibromyalgia, please feel free to email me by clicking on the blue envelope in the side bar under my name "Jasmine Grace".
Don't give up.
We're here for you.