Hi all, I have never posted here but have read several comments over the past year trying to educate myself. I was very ill over the past year at different times and knew I had something going on with me. I don't have insurance so extensive blood work was not an option for me.
My M.D. diagnosed me with vasculitis about
6mo ago due to an awful rash and other symptoms but we didn't know the underlying cause. I saved money to see a Rheumatologist, and with the help of my receiving medicaid (because I have been unable to work) recently I was able to get the blood work needed. I found out yesterday I have Lupus and Fibromyalgia.
The Rheumy was very cold about
telling me I have lupus. He said it wasn't active at this time so no big deal. I told him well "duh" if it was I wouldn't be able to get out of bed. I was told there is no tx for Fibromyalgia and that I would have to live with it. I am already on Cymbalta for depression (which started when I got so sick and I couldn't move for weeks). He told me that was a tx for it. I told him that the Cymbalta was not working for the pain at all. Needless to say, I will not be returning to him and since I am self pay with my Dr.'s I can see whomever I want, I choose just to stay with my M.D. who is smart, kind and compassionate. So my question is what are other people doing as far as tx goes for these diseases?
What has helped, what hasn't helped. Where do I go from here. I have an appointment with my M.D. this Friday, I know he will be shocked to hear my news. I am on 15mg of Prednisone, Leflunomide, 5mg Oxycodone 5 times a day, 4mg Xanax a day, Temazapam, Abilify and Plaquinil, all prescribed by my MD. Methotrexate did not work for me. I still only sleep 2-4 hours per night and am still in pain.
If anyone has any ideas please let me know, I'm at my wits end in dealing with this. Does Prednisone even help Fibro, or just the Lupus? I have done a lot of reading on the subjects and I find that a lot of my reading is just repeated stuff. I figured I may need advice from real people with this problem. I am very shy and do not usually post things anywhere, but I am pretty desperate at this point. I realized I needed a support group and this site offers me hope. Thanks, Lisa
Post Edited (Sugaree67) : 7/30/2014 8:01:43 AM (GMT-6)