Does your Fibro flare in hot tubs or baths?

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Belles1211
New Member


Date Joined Aug 2014
Total Posts : 7
   Posted 8/9/2014 7:20 PM (GMT -6)   
Hello everyone! I am new and have found the post I have been reading very interesting and supportive! I was wondering if anyone else has experienced severe flares after soaking in a hot tub or a hot bath? I noticed that if the water temperature is set above 98 degrees,(which is generally every hot tub except my own), I can feel the severe nerve and muscle pain and stiffness spread through my body within 15 minutes after getting out if the tub. If I make this mistake, I won't be able to get out of bed the next day because the pain becomes so overwhelming. I am so sensitive that even putting my feet in a tub that is too hot will leave my feet and ankles throbbing for days. When I described it to my Dr., he acted as though it was an unusual reaction. I would blame the Raynauds but it can effect my whole body. Thoughts?
"When you get to the end of your rope, tie a knot and hang on!" FDR.
Fibromyalgia, CFS, Raynauds, GERD, IBS

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17895
   Posted 8/10/2014 6:17 AM (GMT -6)   
Hi, Belles, and welcome. I don't get in hot tubs but several members do and like them. A hot shower helps me loosen up. Maybe it's too much heat for your particular body. I did google this problem and there were a few others with fibro that have this same problem.

We are all so different with this illness. Yes, we all have pain in all four quandrants of the body, we have fatigue...some more than others...and we have cognititive memory problems. This is the criteria for a diagnosis once other illnesses have been ruled out. It doesn't go further because our other symptoms are so varied, I think, and some suffer from symptoms that others don't have. This is a crazy illness and this is why it's taking doctors longer to figure it out. It's also why some doctors dismiss it as an illness.

But for you, I would just stay away from hot tubs. It could be the heat, the jet-driven water, and maybe even chemicals used to keep the water safe. I have a pool and love it when it's between 80-83 degrees! Most say that's too cold and they like a warm pool but I find the cool water settles down my back muscles and I have less pain. I have a floating lounge and I get in that and the warmth of the sun feel great but yet the cool water on my back feels great, too. Go figure! But it works for me so I do this.

Do read Fibro 101... The first thread on the forum. There are links to good info about fibro and you will learn a lot there. I've had fibro for decades and am still learning new things.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Myself 09
Veteran Member


Date Joined Dec 2009
Total Posts : 6226
   Posted 8/10/2014 10:48 AM (GMT -6)   
No, the hotter the better, IMO.
Ulcerative Colitis 2003, Fibromyalgia DX 2005, Crohn's 2013, Enteropathic arthritis, 2013. Family History of Fibro--2 out of 3 siblings diagnosed. Started SCD-June 2013. *There are three kinds of people in the world: ones who see the glass as half-full, ones who see the glass as half-empty, and others who see a big crack in the side which is leaking all over their %$#@# foot

ak angel
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Date Joined Apr 2011
Total Posts : 3197
   Posted 8/11/2014 1:58 AM (GMT -6)   
I recently got a hot tub. I love it! I keep mine at 103. I have been taking notes to see how my fibro does after it. So far it has been the best thing for my fibro. I do know friends that their bodies just can't stand the heat. You might be one of those. I have learned I can't sit in one too long or I get over heated and weak.

Belles1211
New Member


Date Joined Aug 2014
Total Posts : 7
   Posted 8/11/2014 10:47 AM (GMT -6)   
These are interesting comments. As bad as this illness is, I find it fascinating how differently we all respond to the same stimuli. I know that there are some very common triggers. Maybe heat sensitivity is less common. Thank you for your input!
"When you get to the end of your rope, tie a knot and hang on!" FDR.
Fibromyalgia, CFS, Raynauds, GERD, IBS

bwfm
Regular Member


Date Joined Apr 2010
Total Posts : 442
   Posted 8/11/2014 7:06 PM (GMT -6)   
I'm a weird one. I don't use heating pads or anything with heat on my fibro. I'm so hot natured I just start sweating and it's unbearable. I use ice packs on a daily basis for my low back pain and hip pain. However, I love hot tubs and get a lot of relief from them.

scifigal2k
Veteran Member


Date Joined May 2012
Total Posts : 3465
   Posted 8/11/2014 11:59 PM (GMT -6)   
Mine is the opposite - cold makes me hurt, and a hot bath just feels amazing. But we are all so, so different. I also have Crohn's, and it's the same way with us - different foods will be ok or make us flare.
CD, c. diff., gastroparesis, fistula

Remicade

"For this thing I besought the Lord thrice that it depart from me. He said, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities; I take pleasure in infirmities, reproaches, necessities, persecutions, distresses, for when I am weak, then am I strong." 2 Cor 12:8-10

skyeblue74
Regular Member


Date Joined Jul 2014
Total Posts : 78
   Posted 8/12/2014 7:14 PM (GMT -6)   
I don't know if this is coincidence or what but I find it very funny there's a hot tub ad beside this thread.

Belles1211
New Member


Date Joined Aug 2014
Total Posts : 7
   Posted 8/12/2014 7:35 PM (GMT -6)   
I missed that! Make sure it has a temperature control!;)
"When you get to the end of your rope, tie a knot and hang on!" FDR.
Fibromyalgia, CFS, Raynauds, GERD, IBS

NikkiScorpio
New Member


Date Joined Aug 2014
Total Posts : 5
   Posted 8/13/2014 7:21 AM (GMT -6)   
One of the recommendations for fibro patients is to take hot baths or sit in a hot tub. I haven't been in any hot tubs recently, but hot baths bring me quite a bit of pain relief. The only problem I have in the bathtub, though, is being able to get myself out. It's so low to the ground and sometimes I just don't have the strength to push myself out. I know someone else has to have that same problem. It's pretty embarrassing for me though, lol.

Although I enjoy my hot baths, I do NOT enjoy hot showering. It makes me dizzy and sometimes the water hurts my skin. Unfortunately, this is the only thing that makes me feel cleen. Baths don't do that for me.

Fibro is such a personal experience for all of us, so we won't all have the same tolerances/intolerances. So although I guess it is unusual for you to have this intolerance, I hate taking showers. So we all have something weird about us. Lol

StephSinagra
New Member


Date Joined Aug 2014
Total Posts : 9
   Posted 8/14/2014 3:10 PM (GMT -6)   
Yes! I can't take hot baths anymore and have to be careful not to take too hot of a shower! I have a friend who has fibro and she also can't tolerate it. She takes cold showers and they seem to help her manage things a lot better!

I definitely do miss those steamy bubble baths and hot tubs though!
Peace & Love,

Stephanie :)
Living With: Fibromyalgia, chronic/adrenal fatigue, tmj, migraines, pyroluria

StephSinagra
New Member


Date Joined Aug 2014
Total Posts : 9
   Posted 8/14/2014 3:11 PM (GMT -6)   
bwfm said...
I'm a weird one. I don't use heating pads or anything with heat on my fibro. I'm so hot natured I just start sweating and it's unbearable. I use ice packs on a daily basis for my low back pain and hip pain. However, I love hot tubs and get a lot of relief from them.


I use ice too bwfm. Heat is definitely NOT my friend. You aren't as weird as you think wink
Peace & Love,

Stephanie :)
Living With: Fibromyalgia, chronic/adrenal fatigue, tmj, migraines, pyroluria
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