It sounds like you are both wonderful together.
It is huge help if Family understands limitations due to pain and fatigue. Yes, pain can go up and down some. I have only had a handful of days for the past 12 years that I was feeling less pain and almost on the edge of feeling normal. It is great when it happens.
I tried to stay in my job that I took pride in. I have one son. I was a working Mom. I always thought I was doing everything well. When not on vacation all I did was work, come home to work, cook, eat and sleep. We worked hard and played hard. You are truly a very understanding Husband. I am on LTIP and CPP Disability. I had to accept that with all that is happening inside me, I could no longer perform the duties of my position. You do need full support from your Doctors and sometimes a Lawyer to assist with claims.
On LTIP I have to always be trying to get better in hopes for a return to work. There, however, is no cure for the many things I am inflicted with.
My Husband does help now with laundry and shopping. I can't lift heavy stuff. He is still working and has one more year to retire. I will teach him a few more chores to not get bored in retirement. I am less demanding of myself and can except non perfection in my home.
I am sorry but I have not got my pain under control yet. I was on Lyrica for a couple years. I did not have bad symptoms from it. It was weight gain that was the decision to take me off. I did have withdrawal symptoms even though I came off slowly. I now know that it was likely masking nerve spasms as I would get little twinges at bedtime. Off Lyrica, nerve spasms in my back and behind began in full force at bedtime. Restless legs were crazy. I tried Melatonin for sleep and 5-HTP which claimed to help Fibro.
I was told my jaw pain is Neuralgia. I was put on Nortriptyline. My jaw pain is far from OK but the med has made the nerve spasms stop. It helps give me a deeper sleep. I used to have so much trouble with sleep. Insomnia many nights. Oddly, when working, the day after a night of total insomnia I was able to function OK at work. Never had 2 days running of insomnia. I no longer use melatonin or 5-HTP. I did think the 5-HTP might have helped some with pain. I also have Osteoarthritis. I use Pain creams. They help when muscles go out on me.
I do a Physiotherapy in a heated pool and I see a Registered Massage Therapist. He is trying to keep the muscles not so tight. The most relaxing massage I have had was in a high end hotel in Athens, Greece. A very good looking young man was such a good Masseuse. It was wonderful. I have tried acupuncture also. I thought it moves pain from one place to another.
I truly feel better when on vacation. Not out of all pain but it is so much easier.
I hope your wife finds something to be able to function better. I find I have to get up and walk some to shake off daytime fatigue. It takes me quite awhile to get moving in the morning though.
Osteoarthritis in multiple joints, Fibromyalgia, Neuralgia, Chronic Daily Headaches, I.B., Hard of Hearing...
Post Edited (Loring) : 8/26/2014 1:30:50 PM (GMT-6)