nuvigil for fibro
life changing - 0.0% - 0 votes
didn't help at all - 0.0% - 0 votes
allergic - 0.0% - 0 votes
helps moderately - 0.0% - 0 votes
helped with fatigue - 100.0% - 1 votes
helped with pain and fatigue - 0.0% - 0 votes
Posted 11/25/2014 8:13 PM (GMT -6)
Im wondering if anyone has had any luck with Nuvigil. Ive been playing the medication game for 2 years with my fibromyalgia pain and Fatigue. I haven't had much luck with the pain but is bearable at best, and everything I've tried has even more side effects of fatigue, which i do not need. i have a 2 yr old and 2 teenagers and 2 in college. 1 of which is about to graduate. I hate for the last half year i have with her for it to be like the last 2 its just not me, I'm used to go go going and happy go lucky. not to mention my 13 year old who is always in sports and half the time i have to miss, I'm a stay at home mom and have had to hire a nanny 2 days a week for help with him, which there is no shame in that, but i want to feel like doing all the stuff with him that i want to do.
My aunt has fibro and her doc put her on nuvigil and she said it has changed her life, i dont know how it works but she is off her pain meds now too.
the only medication i am on now is lyrics and is cost me over 400 after my insurance pays. and it doesn't do that much.
any feedback would be appreciated.
oh, yeah my rumy said he "cannot" prescribe medication for fatigue??? i do not understand, I've read several people have been prescribed nuvigil by their rumy. he was very thorough and i waited 7 months to get into him because he's supposedly the best. so what type of doctor do i need to see?
Posted 11/26/2014 7:48 AM (GMT -6)
My psychiatrist prescribed me Adderall for fatigue. It works good. I took Provigil for awhile, it helped some. I think it is similar to nuvigil. I think different meds work differently on different people, so you may have to try it to find out if it is going to work for you. I hope that it does.
Keep us posted on how you are doing. Welcome to the forum.
I walk daily and that helps with energy and a feeling of well being. Maybe it would work for you...
Posted 11/26/2014 9:13 AM (GMT -6)
Sometimes we need temporary help. At the risk of a situation later on. I take it one day at a time, and if it ain't broke, I don't try to fix it...
I rested (slept) for two years, and I don't want to do that again. No amount of rest helped...
Posted 11/30/2014 8:29 AM (GMT -6)
thank you, for your input! I too try and walk daily Karen. Somedays i Just can't seem to give myself that push. others i may run a 5k. I had worked up to jogging 3-5 times a week, til the cold set in.
@painwarrior, i do not see how it would work either. but for many it has been life changing.
and yes even if temporary i need something to get by. I've been researching vegan vs clean eating, and i believe ultimately that will be the life changer. but i need something to help me get through til i get a good regimen down. right now i can not even make it to whole foods to get a weeks worth of groceries. let alone cook.
i really hate it. i have always been energetic and fly by the seat of my pants:(
Posted 11/30/2014 9:17 AM (GMT -6)
I was always pretty energetic too. I always had something going. I cross country skied and walked daily. I did a lot of guy stuff, such as splitting and stacking firewood. I was really strong. Then all of a sudden, I couldn't walk 50 feet. Then less and less and sleep. My words, I slept 17, 18 hours a day. I listened to life go on without me through my bedroom window. I don't want to go back there... I Hope you find some things to help you. I think you will...
I feel (even with help) once we get going, we can build up our energy and strength, the stamina to continue. That is what it takes, to get started. Once you get going, you manufacture your own energy... You can always go off of the nuvigil after you get going, if needed...
Posted 11/30/2014 1:25 PM (GMT -6)
I am a project manager. One of the scariest things to me with the fibromyalgia coming on is that details matter in my every day life and I can't seem to write enough down to keep myself out of trouble.
My primary prescribed modafinil and it has been very helpful.I like the fact that I can choose whether to take it in a day or not. It tends to help a lot with my ability to focus on detail.
I am on Ambien at night as well as Lyrica in order to help with sleep and fibromyalgia symptoms. I was feeling more rested, but was still unable to get up and function in the morning for work. The first couple of days with the modafinil left me a little shaky, but greatly improved my ability to work. I have since become more comfortable with the modafinil.
I really like the fact that I can choose whether to take it or not. They told me I do not have that choice about the Ambien which I am taking for sleep deprivation/insomnia and was prescribed after they tried CPAP to include improve my wakefulness and functionality during the day.
Posted 12/2/2014 4:50 PM (GMT -6)
well, i got a decent nights sleep last night, woke at 8:40 a.m not wanting to get up still. Thank goodness i have the nanny today. I called my primary to see if there was any hope of getting a work in. its december and i do not have one tree up:( usually have 4. Ive had high hopes of getting in the xmas spirit for i believe this would be a truly exciting year for my 2 yr old. just can't find the energy and cry because i can't get these things done. anyway no openings, but his nurse asked what was going on and i talked with her about all the nuvigil for my chronic fatigue due to fibro, so she seemed like it wouldn't be a problem was gonna talk to my primary and call me back.. long day... she finally called back and said he couldn't call it in because it is not indicated for fibro fatigue. so i feel my life is over I'm not sure that it would've worked but i don't understand why i can't try it? there are so many other drugs that are not FDA approved for fibro that they put us on all with so many worse side effects than nuvigil. Do i just have to accept this is my life my children seeing me in pain and tired most days. and when i do make it out to a school function my hair and makeup is not done and there is no joy to be seen. i would rather die than to go through the rest of my life like this. no suicide thoughts, just realizing this is my life, and theres no hope for anything better, i feel it is taking a toll on my marriage too. My husband being a physician has to be one of the most understanding people but it takes a toll on him too, and somethings he just can't understand because he is not going through this. it also doesn't help it works out of town 3 on 3 off. I really feel alone right now. used to feel guilty for the nanny, since I'm a stay at home mom but since he is away so much i feel like a single mom and justify that. lately i feel guilty because i have a nanny 2 days a week and on those days i sleep instead of get stuff done.. she probably things I'm the laziest person on earth.