Posted 1/11/2015 12:41 PM (GMT -7)
I'm not sure where I read it, possibly one of the excellent articles posted here, but I was fascinated to read of the strong genetic component to fibro. I wrote a post at the time mentioning that now I realize that my mom had it, and that no one was nice to her, as they are now; she was called a hypochondriac and essentially ignored. I'll always regret that.
Recently, I saw some reporter or announcer or something like that on a television interview. She smilingly discussed her fibromyalgia and the degree of pain she had and she didn't have a hair out of place and her makeup was perfect and she said that she NEVER misses an appointment, NO MATTER WHAT. I felt like a worm.
On the other end, I had a client, a young woman, who told me about her hospital stays and her debilitating pain and illness over a number of years in her late teens and early 20s. What was the diagnosis, I asked? Fibromyalgia. I'm from a generation where people with these things were called just what we called my mother: hypochondriacs. Or they were depressed. Or had deep psychological issues. Something like that. To this young woman, though, her illness was genuine, and she got the care she evidently needed. She was in law school when I met her, so something must have worked.
I had bilateral knee replacements a few years back, and my fibro became far worse afterwards. I concluded that the invasiveness of surgery probably was the culprit. On the other hand, having struggled with this for at least ten years, I can say that--other than this time of year!--my flares are far more infrequent, and I've learned to deal with my pain, for the most part. That doesn't mean I don't occasionally whine plenty, but I kind of know there's a beginning and an end to my episodes.
I guess each of us has to decide how to take care of ourselves and make peace with our decisions. I take almost-narcotics, by the was, Monica....i.e., synthetic ones, such as Tramadol. I also take Neurontin. I felt guilty for years, and now I'm okay with it. It gets me through my days and I don't feel high, even if I am, no doubt, dependent. I never take more than my prescribed dose, and I'm okay with it.
I do wish someone could tell me how to get off Ambien, though....I'm so habituated to it, and I keep thinking that if I could just give up wanting to sleep, I'd be fine....