Posted 4/18/2015 6:26 PM (GMT -6)
Hi, it's my first time on these forums, but I feel like I need to vent to people that understand and empathise with fibromyalgia, that might have some idea of what I'm going through at the moment.
I'm only 23, but I've suffered with fibro since I was 13/14. It started gradually, with pains and muscle ache in my wrists and forearms similar to writer's cramp, then spread up the arms and into the back, and then spread further to the full body pain (including face) and fatigue/brain fog that I have to this day.
I've been working very hard, over the past few years in particular, to learn to live with this condition. I'd got very used to balancing stress and working around good and bad days. Learning to rest and hold myself back when I was laid flat out with pain and fatigue, and instead trying to get everything done on the better days. It's through this that I managed to get my university degree (though a 2:2, when I was originally and verbally predicted a 2:1/1st).
However, over the past 6 months, things have gotten much, much worse. There has been a fair bit of stress, but there have also been calm periods where nothing has improved. My health has deteriorated to the point where I can't make my own meals or even look after myself- I have had to move in with my grandparents who make sure that I eat.
I have a job as a cover supervisor at a local school, and I love the work so much. But it's a very physically and mentally demanding job, and I've been signed off work for 3 months now. I have just 2 weeks now to make a significant improvement, or else I'll have a medical assessment which will prove me incapable for the job and give them legal grounds to fire me. Of course, this is if I don't quit first, which the head teacher has suggested.
I've had lots of blood tests done over the years, particularly to repeatedly check my thyroid, but everything has come back negative, including the tests I had a couple of weeks ago. I've been on BuTrans buphrenorphine patches for the last couple of months, as unfortunately I can't swallow pills, but the pain and fatigue are still absolutely debilitating.
Has anyone else found their fibromyalgia to be progressive? Or is there any other underlying cause that it could be? I'm so crushed that everyone keeps looking at me like I'm faking it, being lazy and making excuses, just because I'm so young and it's an invisible illness. Even my own mother doesn't really believe me.
I really don't know what to do, about my job or my health, and I know this has been quite the rant, but any feedback would be most appreciated.