Fibro and Sjogrens

livenlaugh

Regular Member

Joined : Dec 2009

Posts : 387

Posted 8/22/2015 4:48 PM (GMT -7)

Has anyone here been diagnosed with both? Please tell me your experience.
Thanks,
Lisa

almost medfree

Veteran Member

Joined : Jan 2004

Posts : 2570

Posted 8/23/2015 4:27 AM (GMT -7)

Hi Lisa,

I have been diagnosed with both. Yes, I have issues with a dry throat. I drink a lot of water and when I lived up north I needed humidified air in the winter to deal with the dryness.

I also have dry eyes. My eye doctor recommended eye drops without preservatives. She likes the Retaine eye drops the best.

What are your issues?

Fibromyalgia, CFS, MCS, scoliosis, herniated disks, spinal stenosis, osteoarthritis, sjorgens, sleep apnea, asthma, allergies, headaches. On a regiment of different supplements including sleep supplements. I eat nutritiously and do not eat foods I'm sensitive to and ever since a back injury triggered my fibromyalgia, I have been doing prescribed stretches twice daily.

livenlaugh

Regular Member

Joined : Dec 2009

Posts : 387

Posted 8/23/2015 6:13 AM (GMT -7)

I am not diagnosed but having alot of issues. I have Fibro and seeing a rhumatologist for it. She does not think I have sjogrens but my oral medicine dr says my mouth should not be as dry as it is even after radiation treatment. I did have radiation treatments 18 yrs ago from lymphoma and thought the problems with my teeth was from that but now she feels otherwise. My teeth are so bad I am going to need dentures in the very near future I had the lip biopsy done but the surgeon found only one gland and so the results were inconclusive, I am constantly tired, in pain and wondering if I should get a second opinion.don;t have any issues with my eyes but my skin is always dry, itchy and cracking. Advice would be greatly appreciated.
Thanks

Lisa
Fibromyalgia, GERD, Iron deficient anemia, ADD, and15 yrs. survivor of Hodgkin's Disease.

Luvzminis

Veteran Member

Joined : Apr 2008

Posts : 2788

Posted 8/23/2015 10:34 AM (GMT -7)

Lisa, I have not been diagnosed with Sjogrens, at least not yet, but like you, have issues.

The past several months, I have an extremely dry mouth and yes, dental issues. I've never had radiation, and my dentist said he thinks 'it's my health condition.' I sip water through the day, but at night if I wake up, my mouth is as dry as cotton! My eyes don't seem affected.

Any idea how to hydrate my mouth at night? I often rinse my mouth with water if I'm awake, but even then, by morning my mouth is soooo dry.

"Never be in a hurry. Do everything quietly and in a calm spirit. Do not lose your inner peace for anything whatsoever, even if your whole world seems upset."

St. Francis De Sales

almost medfree

Veteran Member

Joined : Jan 2004

Posts : 2570

Posted 8/25/2015 4:15 AM (GMT -7)

For dry mouth, there are several Biotine products but for me these cause digestive side effects.

I drink plenty of water.

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