Posted 9/4/2015 9:13 AM (GMT -6)
Hi, This the first time I have come on this type of website and not really noticed anyone with my recent diagnosis so thought I'd post something to see if anyone had the same issues as myself. I first started suffering with general aches and pains well over 12 months ago, I had OA in the right foot diagnosed 3 years ago and had a steroid injection - never looked back if worked brilliantly! Then noticed pain in my hip/groin area, x-ray confirmed early OA Lt hip :(. I'd previously had problems with my hands ( mainly down to my job as a medical secrectary - typing all day ) but in general, feeling constantly exhausted more than the norm after a busy week at work. Finally, saw Rheumatology last Sept (2014 ) diagnosed with De Quervain's Syndrome Rt hand, had partial steroid injection, no benefit whatsoever.
Over the coming months I have been seen by Rheum on 4 occasions, different meds given, none of which I have been able to tolerate more than 2 wks! The tiredness just seems to be getting worse and worse, I have a strong family hx of OA, and arthritis in general. My GP finally thought it was a good idea to seek a second opinion, plus given i work with doctors was constantly asking their advice.... I finally got my gp to refer me for not only ultrasound, but xray and MRI scan of upper limbs.... seems not only are my joints the brunt of my pain but my tendons and muscles! Having took these results to a different Rheumatologist, he diagnosed me with 'Inflammatory Arthritis' - It is believed that there are 300 types of arthritis of which these are put into 3 catagories - 1. Rheumatoid Arthritis. 2. Synovo Arthritis and 3. Inflammatory Arthritis, the latter I'm told will never go away as like the other two, but it can be 'controlled' better, as I will get 'flare ups' and given how long I have gone without any formal diagnosis, Im at a 'peak' to say the least.
Background over, I was started on Hydroxychloroquine x2 200mg, and Prednisolone a week ago, 4 days into these drugs I develop not only a cough / sore throat, Shingles along my forehead/hairline, overwhelming muscle pain/weakness ( couldnt even climb my own stairs at home without having to stop half way! no sleep ( eyes felt like that 'rabbit in the headlights' ). Rang my GP, who believed it to be the Prednisolone and advised me to stop ASAP, also had to get checked at the hospital and get my bloods done ( still awaiting results ).
This is crap! the feeling, the impact on family etc, not to say I have now been off work 4 mths! I love my job, but right now feel and wonder whether I will ever be able to go back.... Just wondering how others are doing and if they too have felt the same with the fatigue, tiredness, etc?
Today, is two days off the steroid, my pain is back, but to a degree I can kinda control that, but attempted to wash my hair, and I am absolutely exhausted!!!! the other day I couldnt even hang out washing, its ridiculous!
So, am wondering - has anyone any ideas or suggestions or even been recommended any alternatives/remedies that can be taken along side Hydroxychloroquine to help the fatigue....pleaseeeeeeeee