Pridgen protocol

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Tton
Regular Member


Date Joined Nov 2014
Total Posts : 28
   Posted 11/22/2015 10:20 AM (GMT -7)   
Hey all,
Been forever since I've been on here, but I was wondering if anyone is on or has tried the Valtrex and Celebrex combo?
I just started it and Contrave last week and day one I felt 90 % better, day 2 I felt completely cured, Best I've felt in 3 years, don't know if it's the Contrave or the pridgen protocol or the combo, or maybe I'm just having a good couple weeks, hate to get too excited and then b let down again...

tangodancer101
Regular Member


Date Joined Nov 2014
Total Posts : 326
   Posted 11/22/2015 10:25 AM (GMT -7)   
Tom,
I haven't tried either, but I am glad to hear you are getting relief. Enjoy and don't fret too much about it changing.

What's the pridgen protocol?

Take care,
T
Fibromyalgia, Depression, Anxiety, PTSD
Gabapentin 1200mg, Cymbalta 10mg

AndreM
Regular Member


Date Joined Feb 2015
Total Posts : 138
   Posted 11/22/2015 2:42 PM (GMT -7)   
Pridgen uses antiviral to treat fibro - red FLAG WARNING. First fibro is not a viral or inflammatory disorder

Next antivirals are extremely powerful drugs that can and do elicit a CNS stress response that can be a temporary pain killer - the CNS is already not functioning property causing fibro.....anytime you activate the immune system you stimulate the nervous system

pumping rocket fuel into the brain is more than risky and may result in a very hard landing

Contrave is another drug that alters the CNS - many suicides and psychosis from this drug

I would immediately run from any physician prescribing these drugs

Tton
Regular Member


Date Joined Nov 2014
Total Posts : 28
   Posted 11/22/2015 7:21 PM (GMT -7)   
Thanks Andre,
I will definitely research more. I also have had a positive Anain the past, but just got my results in and it is normal now! Or Neg. My husband is also a physician and specializes in neuro with top notch training at barrow! And he has helped me research over the years and says this makes sense, and I am not cutting you down at all, I will def. do more research, but as for now, this seems to have cured me, the big test will be, after 6 months, to come off these and see if the results are indeed a "cure"
Thank you!
Ton

Fibromyalgia, Chronic Fatigue, Chronic Pain, sleep disorder
Lyrica, Klonopin, Nuvigil, provigil, Adderall

Tton
Regular Member


Date Joined Nov 2014
Total Posts : 28
   Posted 11/22/2015 7:27 PM (GMT -7)   
Tangodancer101,
It's a combination of Valtrex and Celebrex. Under the theory that fibro has been set off due to viral infection that has affected your whole body, such as EpV, mononucleosis, or if you've ever gotten cold sores. Makes sense... Muscle soreness, aches, rash, extreme fatigue, these are also symptoms of EPV OR MONO
Ton

Fibromyalgia, Chronic Fatigue, Chronic Pain, sleep disorder
Lyrica, Klonopin, Nuvigil, provigil, Adderall

tangodancer101
Regular Member


Date Joined Nov 2014
Total Posts : 326
   Posted 11/22/2015 7:35 PM (GMT -7)   
Ton, (sorry, fuzzy eyes early today and I misread "Tom")

How has this effected your chronic fatigue? Do you have more energy?

I've wondered if fibromyalgia is neuro inflammation. Maybe the treatments impacted that. Who knows. It's always good to hear of success.

Andre, tone down the know it all thing. It really reduces your believability and credibility, every time.

T
Fibromyalgia, Depression, Anxiety, PTSD
Gabapentin 1200mg, Cymbalta 10mg

Tton
Regular Member


Date Joined Nov 2014
Total Posts : 28
   Posted 11/22/2015 8:31 PM (GMT -7)   
Hey T,
Yes, indeed more energy, my pain is almost completely gone, therefore I feel like doing more, I have had a few muscle aches and pains, but it is more of a good kind of pain from excercising I presume. I've started jogging again, only up to a mile, but hey it's better than what I've been doing. I have tried adderall, Nuvigil, pro vigil, and none of the above have even came close to eliminating my fatigue. My next step was to bite the bullet and try the really expensive drug xyrem, found out my insurance would pay, but have been scared to try it. Supposed to work wonders, but all that aside, ( it doesn't matter now anyway) because for now this is working. For how long, idk. But I will try and update weekly at minimum!

Post Edited (Tton) : 11/22/2015 8:37:10 PM (GMT-7)


Tton
Regular Member


Date Joined Nov 2014
Total Posts : 28
   Posted 11/22/2015 8:35 PM (GMT -7)   
T,
Also, how is the gabapentin working for you, I got up to 900 mg, and worked wonderfully for about a month, then my Rumy didn't want to go any higher on dosage, switched me to lyrica, which I still take that. Both of those seem to have affected my vision terribly, but also help with pain.
Ton

Fibromyalgia, Chronic Fatigue, Chronic Pain, sleep disorder
Lyrica, Klonopin, Nuvigil, provigil, Adderall

AndreM
Regular Member


Date Joined Feb 2015
Total Posts : 138
   Posted Yesterday 4:02 AM (GMT -7)   
I am not a know it all or totally antidrug - the information on these drugs is well recorded and they are involved in a series of law suits

I also know from clinical work that a doctor can use you as the guinea pig and if you are damaged he has little culpability

It is up to us to do 100% due diligence before we start taking powerful drugs that can cause more damage

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17501
   Posted Yesterday 5:38 AM (GMT -7)   
I believe we all have to be very careful and do our homework when it comes to our doctors and our treatments. After all, they still are not sure what is causing Fibro and some of us could be misdiagnosed to boot! I've seen this happen before.

I've also seen members who have been given prescription meds whose combination can cause serotonin syndrome...under their doctor's care. Doctors can make mistakes since most are extremely overworked. Remember also that....50% of the doctors graduated in the lower half of their class.

I'm very careful as to what I put in my body because it could affect me down the road.

Tyson, I'm very happy that you are doing so well and I hope it continues.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

tangodancer101
Regular Member


Date Joined Nov 2014
Total Posts : 326
   Posted Yesterday 8:59 AM (GMT -7)   
Doing homework is indeed important. There are also people who have died by not following their doctor's advice and/or not sought treatment. 2 sides to a coin, a double edged sword.

Ton, gabapentin works fairly well, I sleep better and have less of the severe burning sensations. I've noticed a big difference as well on cymbalta, that my new cleveland clinic doctor prescribed. He was entirely supportive if I decided I didn't want to try it. He is also supportive of any alternative treatments I would like. I was scared to try it due to negative reviews by some that I had seen. But for the first time in years, I had a fantastic day of working on a Saturday morning, shopping all afternoon, an outing in the evening, then a dance workshop on Sunday. If the positive uptrend continues, I may be able to add a few more work hours to my week and to feel like some semblance of a human being, have friends, contribute to society. I've always been against prescription drugs but now I'm beginning to see the benefits with careful management. I'd rather be on one or two prescriptions than laying in bed crying all day in pain, too sick to work, severely depressed and poverty stricken.

Ton, I'm so glad your energy levels are up. That's wonderful! And brings us so much hope to hear. Do keep us updated.
T

Rockon
Regular Member


Date Joined Mar 2013
Total Posts : 329
   Posted Yesterday 9:01 AM (GMT -7)   
imo, to say that fibromyalgia cannot be caused by a virus and to never be open minded about what variety of circumstances may exist for causing fibro is a mistake.
Duffy's research with Pridgen has apparently been missed. “I told him I wanted to see the tissue because nobody is going to believe us unless we show that the virus is there,” she said.  Pridgen brought Professor Duffy on board because she is a virologist and imo it would be odd to completely discount her and her findings.  You can read about her and this research here:
http://www.as.ua.edu/home/professor-surgeon-team-headed-to-third-phase-clinical-trials/

Post Edited (Rockon) : 12/22/2015 9:17:17 AM (GMT-7)


ACS228
New Member


Date Joined Dec 2015
Total Posts : 1
   Posted 12/7/2015 9:22 AM (GMT -7)   
Hello Tton! I have been looking for anyone who has recently tried the Pridgen protocol as I am set to visit Dr Pridgen next week. I am so glad to hear its working for you! I have been doing extensive research on this treatment and its seems to make sense to me so I am going to give it a try. Is Contrave a part of the protocol? Is it just something to give you energy?

Tton
Regular Member


Date Joined Nov 2014
Total Posts : 28
   Posted 12/8/2015 7:05 AM (GMT -7)   
Obviously, no one knows what causes fibromyalgia there could be a series of different things. I myself after everything I've been through what totally be willing to be someone's guinea pig. What works for one person may not work for another. I'm still bad week or bad days for that matter. I have been working out at the gym running cleaning my house running kids back-and-forth, I feel better than ever! Well, better than i have in years!

Hollybrex
New Member


Date Joined Oct 2017
Total Posts : 1
   Posted 10/24/2017 9:32 PM (GMT -7)   
Tton , I'd love to hear how you did with Pridgen protocol for Fibromyalgia?
I'm considering this myself.
Thank you,
Sandy

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2069
   Posted 10/25/2017 3:25 AM (GMT -7)   
I have read studies that suggested there could be a virus that hangs at the cellular level,causing us many issues..

I habe not know people doing this particular protocol, but always open to new ideas..

I have heard of people going on antivirals , but not this protucal and not having them work..

Hope the updates will continue.

Rockon
Regular Member


Date Joined Mar 2013
Total Posts : 329
   Posted 10/28/2017 3:42 PM (GMT -7)   
If you go to myPatientMatch and search the names of antivirals, some people are doing versions of Pridgen's protocol. Should be some Celebrex reviews as well. I see people review famvir and maybe some can't use famvir but I also see zovirax reviewed. There are also ME/CFS patients writing reviews, perhaps other patients as well.

Interesting thing I saw recently about Celebrex. I was not too keen in the idea of it, since some NSAIDs can trigger some people's mast cells (an immune cell type that I believe might cause my fibro SX, definitely seem to cause some comorbid SX that I have). Dr Afrin, one of the leading mast cell experts told a patient in one of my groups that he finds better odds of Celebrex being useful than some other COX inhibitors. I believe he said it works only on one of the COX's? But my memory is horrid, I might have the detail slightly off. I did post just what he told her somewhere on myPatientMatch recently in a mast cell thread.

For those who don't know, my understanding (and memory, lol....be suspicious) is that COX (there's a COX I and COX II) is the precursor for making the various prostaglandins. Mast cells release some, but not all, of the types of prostaglandins. I believe I might have posted in that very same thread, (and prolly mentioned Cort's blog about Pridgen getting funding for stage III trials) that I found a study of one or the simplex viruses that said that herpes can activate mast cells. That one can, anyways. Funny how the pieces fit?

Post Edited (Rockon) : 10/28/2017 5:00:31 PM (GMT-6)


Rockon
Regular Member


Date Joined Mar 2013
Total Posts : 329
   Posted 10/28/2017 3:52 PM (GMT -7)   
Correction! Never trust me fully!!
I found my thread at myPatientMatch. I said that I found a study that found that an influenza virus could trigger mast cells. So a virus can trigger them, does not mean herpes in all its forms does, tho.
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