Posted 2/12/2016 5:26 AM (GMT -7)
Hi, bbd, and welcome! Joy gave you some good ideas. I don't see a psychologist but I am a positive thinker and that helps me a lot...that and my faith. I've learned how to focus on other things and the pain somewhat fades in the background.
I had to have my entire colon removed so I have a permanent ileostomy due to Crohn's disease. I also have ankylosing spondylitis that causes back, shoulder and hip pain and pain in some joints and tissue. It is considered a rheumatic illness and it seems to be similar to what you have. But I don't take medications that are used for Fibro. I can take ibuprofen and Tylenol without too much of a problem and I do take a muscle relaxer called Robaxin that has made a significant difference in my pain. I was prescribed two tablets four times a day but I take one tablet two times a day...hardly anything...and it really helps me. I too can't take some medications so I back down on some.
I also take magnesium malate. Many with Fibro can be deficient in magnesium and the malate is malic acid which is found in apples. This combination has shown that it helps with Fibro pain...and it has worked for quite a few on the forum. Magnesium malate is more gentle on the intestines too. I started out very slowly and worked up to the doses I take now. A deficiency in magnesium can cause pain and fatigue. So this might help.
Also, I take vitamin D3. Again, many are deficient in this important vitamin. I live in sunny Florida and was deficient in this because I wear sunscreen when I'm outside. Low D3 can cause pain and fatigue too and one member can go into flares when her levels get low. So this is another suggestion. Both magnesium and vitamin D are needed by the body.
I walk about a half hour daily. This has helped me, too. When I started out, I could only walk four houses down before I had to turn around. But I didn't quit and my distances got further and further. By the time I get back home, I have less pain and more energy! I also pace myself when doing things, do stretching exercises, get gentle massages from a massage therapist who has studied how to massage Fibro clients, and I do trigger point therapy on myself when needed. All of these things have kept me from taking powerful medications and I've had a full and enjoyable life in spite of the illnesses I have!
Be sure to read Fibro 101...the first thread on the forum. There are links to good info about Fibro and you will learn a lot there. I've had Fibro for nearly 29 years and am still learning more things. There are links about the magnesium malate and vitamin D3 and how they work in the body and there also is a great link about how to maintain a positive attitude when you have chronic pain. All of Fibro 101 is good so do read it.
I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.