You know you have fibro when.....

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bootstrap
Veteran Member


Date Joined Nov 2009
Total Posts : 583
   Posted 10/2/2016 2:32 AM (GMT -7)   
YOU KNOW YOU HAVE FIBROMYALGIA WHEN....

...your version of a "good day" is not spilling food on yourself.

...you count spoons instead of hours.

...getting dressed to leave the house is like planning a war, putting on your armor and weapons as you ready for battle.

...you don't know what day it is because it's all just a blur of pain-killers and sleep deprivation.

... ? ? ?
Follow my story: ronnilee-fightingforit.blogspot.com

Fibromyalgia Warrior
Chronic pouchitis but still a happy j-poucher! :-)
37-year-old single female (retired teacher)

1995 - ulcerative colitis (proctosigmoiditis)
2010 - severe pancolitis
2012 - proctocolectomy, j-pouch, loop ileostomy.
2012 - takedown: massive complications
2014 - scar cyst repair surgery

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/2/2016 11:21 AM (GMT -7)   
When it take 6 inches of memory foam on your bed to make it more tolerable to sleep on.

You spend most of your time wrapped in heating pads.

You can't stand someone to breathe on you when you're in a flare.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2067
   Posted 10/5/2016 9:17 PM (GMT -7)   
Yes on the do not breathe on me😊

Sungirl1
Regular Member


Date Joined Mar 2014
Total Posts : 26
   Posted 10/6/2016 6:12 PM (GMT -7)   
I have just been diagnosed w/ fibro. This is so hard to describe to people the discomfort you feel...all over at times. There are times when I feel as if the muscles in my buttocks move upon getting up or moving a certain way. So weird! I had the frozen shoulder in both arms and had one orthopedic dr. say he thought I was misdiagnosed. All of my issues of hurting and not being able to move well came after I witnessed my mother dying after a long illness. I do have mild arthritis in both hips/ knees but how do you know when it is that or the fibro. causing it? I've had blood tests and do not have Lupus, RA, etc...
I am currently in the 2nd week of taking 100mg of Gabapentin as needed and feel so much relief in my upper back/ neck but still have issues w/ my hip/ knees. It gets better after I have been up and done my stretches/ exercises. I read Bootstrap's comment on putting on clothes is like "planning a war." I dread putting on jeans or anything that binds movement. I mostly wear workout clothes and feel like a frump all the time along with being tired wishing I could have one night of not waking up. It is quite depressing at times and as bad as I hate to say it something that is not life threatening is so life consuming. I am really trying to meditate, plan something fun for each day, and thank God for my blessings. Any advice/ help would be appreciated.

MommyWearsDiapers
New Member


Date Joined Apr 2016
Total Posts : 3
   Posted 10/9/2016 11:38 PM (GMT -7)   
I'm new here. I'm not sure if I have fibromyalgia, but much of what I read here applies to me. I am on a lot of meds for ulcerative colitis, depression and now gabapentin. I have pain in my back that is very severe in the morning when I wake up. Sometimes I can't even move. My job is quite stressful and it also requires standing for 8+ hours with not much of a break. I've been doing this job for 23 years. I have worked evening shifts for most of the 23+ years. I don't like daytime hours because the pain on certain days would make it impossible to get to work.

I used to be a very active person, but now I just feel like a slug. I am a mother of two active children. I do all of the household shopping, cooking, cleaning, laundry, homework, carpooling the kids, etc. myself. I gave up my gym membership about a year ago. The fatigue is awful. I have a +ANA, elevated CRP and sed rate. I have tested negative for RA, Lupus and Ankylosing Spondylitis. My dad and his dad has/had RA and my dad also has AS. My maternal grandmother died of lupus at age 43.

Any insights would be appreciated.

thanks.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/10/2016 1:17 PM (GMT -7)   
Lupus is diagnosed with a list of 11 indicators, not by blood work alone. You need to see a rheumatologist who goes by the list. You can find the list over in the lupus forum.

Fibromyalgia does not present by any inflammatory markers. If you have inflammatory markers (sed rate, crp, ana) then it's not fibromyalgia.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

MommyWearsDiapers
New Member


Date Joined Apr 2016
Total Posts : 3
   Posted 10/13/2016 12:24 PM (GMT -7)   
Thank you, Joy. I have been seeing a rheumatologist since June and I do not yet have a diagnosis. There always seems to be a new symptom popping up.

I'll check out the diagnostic list. I'm just tired of being in pain and tired.

rolleyes

Teenaween
New Member


Date Joined Nov 2016
Total Posts : 4
   Posted 11/6/2016 7:27 AM (GMT -7)   
I know for sure I have Fibromialgia but what about my leaning to left when sitting my pill rolling of fingers..my quick to anger. The love of my active life is a blur I do nothing buticabands.org@gmail.com work full time and house chores & trust me that is a challenge! Can any one comment on these issues? Newest of my 100 other issues. MRI in 2012 fine blood fine..always normal so am I just nuts?

GuyGene
Regular Member


Date Joined Dec 2014
Total Posts : 39
   Posted 11/9/2016 8:08 PM (GMT -7)   
...someone touching my arm is painful. Sheets hurt my body touching me. Fog....fog...fog...frog...frog... Gloom, despair, and agony on me. Deep dark depression, excessive misery. Frustrated because y'all here are the only ones who know...
"That old man, he don't think like no old man."
I thought I was wrong one time, but I was mistaken. Command Sargeant Major Jim.
I am a man. I CAN change, if I want to. I think.
A fellow suffer of The Mess.

Hallahan
Regular Member


Date Joined Feb 2014
Total Posts : 216
   Posted 11/10/2016 3:44 PM (GMT -7)   
You know you have fibromyalgia when…

You are a greeter at church and your hand and arm are sore from enthusiastic handshakes usually from men. :(

Barb

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2067
   Posted 11/11/2016 1:53 PM (GMT -7)   
You know you have fibro when the weather bounces from

85 to 39 and back to 80 and you feel like you were hit by a truck,

Hubby was in hospital recently and that stress and weather roller coaster had me locked up..

I am again working out of it

Hallahan
Regular Member


Date Joined Feb 2014
Total Posts : 216
   Posted 11/11/2016 5:27 PM (GMT -7)   
Ugh
Stress is the worst. I hope things calm down for you ljm2014.

Barb

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2067
   Posted 11/11/2016 6:24 PM (GMT -7)   
Thanks barb

rrrbk
New Member


Date Joined Nov 2016
Total Posts : 4
   Posted 11/14/2016 5:20 PM (GMT -7)   
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I am new here but not new to fibro !!! I can not handle any stress and I know if I feel like my throat starts hurting or I have a fever I am fixing to have a bad flare. I am having mood swings and anger issues lately !!! Wish they would figure out what meds really help !!!

Hallahan
Regular Member


Date Joined Feb 2014
Total Posts : 216
   Posted 11/14/2016 8:49 PM (GMT -7)   
Stress is a part of life. Change your response to it. I know that sounds easy but wow is it hard. When I get a sore throat and fever feeling I too am about to have a flare.
Unfortunately it's a trial and error thing with the meds. Be patient rrbk.

I take Cymbalta, D3, Baclofen for fibro. Winter is coming and I'll surely be aching.
I've been doing okay (a relative term) since I got these meds on board, learned to pace myself and am doing some walking. I haven't felt like I was hit by a truck in a long time (knock on wood).

Barb

rrrbk
New Member


Date Joined Nov 2016
Total Posts : 4
   Posted 11/15/2016 2:21 AM (GMT -7)   
Hallahan thank you for the reply !!! I take Cymbalta, Deplin, I am going to ask my doctor about a muscle relaxer tried flexeril but does nothing for me !!! Something that does not stress anyone else can make me sick I don't understand that!!! I use to be so strong now I'm on disability have been since 2008. I loved my job and miss being around people I feel useless and I get so bored at home all day everyday. People always say they wish the did not have to work I wish I could !!!
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