Posted 11/4/2016 11:07 AM (GMT -6)
So, I have had Fibromyalgia since 1998 and in 2000 I had an adorable baby boy, whom I named Cordell. I called him Piazano, because during pregnancy the fatigue from Fibro made me have major memory issues and I could not remember his name... crazy yes yes yes!
So, Piazano is now 16 and guess what??? He has major Fibromyalgia and AMPS * Amplified Muscular Skeletal Pain Syndrome. And many other illnesses too. Tourettes.. Autism.. the list goes on. Hes a happy human, even though he got handed this pile of crap.
So, I had a Rheumatologist for many years... and felt she was not doing anything for him. He was suffering and I changed doctors this year. New Doctor is awesome, and she enrolled him in her study of Physical Therapy / Her own special Desensitization program.
I have a youtube channel, that has a few videos of him doing the desensitization, but we really need to do a serious video to show it. The video is really for a product review of a roller.
The roller we have been using is from Live Infinitely Massage roller... We love that one!!
THe logic behind the desensitization program is that you train your body, and skin not to hurt when it gets touched!! There is not adult programs of this type, but I am doing it along with my son **the things I am capable of doing. He is in a pretty rigorous PT routine that I can in no way keep up with!!
Burpees!! An exercise I never heard of, and I could never do even if my life depended on it!! He has a paper packet of exercises and desensitization things to do. I will try to copy that and post it.
He has seen some difference in some of his pain... but it is still here. He has been on the program only 2 months. And has been on a two week break right now due to getting his tonsils out.
I will try to have him do a video of his routine so that if anyone wants to follow the program, they can do what they are having him do.
This doctor states that she has had some kids that are no longer suffering with fibromyalgia!! But that you have to be very dedicated to the program for it to work.
I will try to get back to you with a video and the info sheets
My You tube is under Dieann63, I think.. if that's not it, let me know.
the videos that have him doing the program are for product reviews of the Live Infinitely Massage Roller and Foam roller.