New here - scared and sad

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scaredalone
New Member


Date Joined Nov 2016
Total Posts : 6
   Posted 11/30/2016 5:15 PM (GMT -7)   
Every time I do a load of laundry I am in terrible pain the next day that just gets worse and worse. Not just 1 day only usually either.
Did a load yesterday. So much pain now.

I have neck misalignment. Causes dizziness if I look up or bend neck down.
Must bend over washer to lift wet clothes out.
Severe muscle spasms in neck and all the way down spine.

Feel like skull being squeezed.

Had partial flare up day before due to spilling something on floor and have to look down to vacuum it up.

Cold weather is terrible for the pain. Frig and freezer increase pain badly.
Homebound with cold weather.

Been trying to stay hopeful and upbeat since moved. Away from area I lived all my life last yr. But my health worsening is dragging me down.

Thinking I going to have to give up my birds.
They cheer me up. Give me company and don't judge.
But I can't even take care of myself. And I can't go outside when weather is cold.

Feeling scared and sad.

Sorry for downer post for my first post.
Like to be positive but that's not how I feel today.
Haven't felt this sad in years.

Post Edited (scaredalone) : 11/30/2016 8:50:33 PM (GMT-7)


Luvzminis
Veteran Member


Date Joined Apr 2008
Total Posts : 2660
   Posted 11/30/2016 6:29 PM (GMT -7)   
Hi and welcome, scaredalone. Have you checked out Fibro 101, the first thread on this forum? Very helpful!

Yes, fibro can be a real pain (literally and otherwise). Be assured we can all relate to what you're saying.

Have you seen a doctor, board-certified rheumatologist or neurologist for your symptoms? That would be a good place to start. I started with our family doctor and was referred to a neurologist.

For me, it's easiest to pick one problem at a time and work on that. You could also use the search box above for specific issues.

When I feel really yucky, I try to scale back on hard work and do more things sitting down, if possible. It's important to change positions often, though, or the stiffness is worse.

Sometimes (often) we need meds to help if the pain is bad. Otherwise, things like microwavable 'bed buddies,' hot water bottles, heating pads, muscle rub creams and related can help the pain.

What kind of birds do you have? I have pets and they always cheer me up, too. I'm keeping them as long as I can. They are work, but such sweet 'critters'!

Don't apologize for feeling sad. We hear what you're saying. Maybe you just need to take a little more time for yourself and do something you enjoy, such as reading, music, a hobby, etc.. Walking can be helpful, too. A good diet is also important and there's a specific thread on diet on this forum that you might want to check out.

Sending gentle hugs!
"Someone who goes through life with an open heart always finds something to be thankful for."

---Father Kentenich

scaredalone
New Member


Date Joined Nov 2016
Total Posts : 6
   Posted 11/30/2016 6:45 PM (GMT -7)   
Luvzminis - thank you for your response

I haven't been able to get into hobbies since I moved.
Sitting is very painful and therefore quite limited.
Eyesight is difficult so hard to do even jigsaw puzzles.
Something in me lacks ability to enjoy my old hobbies or care about them since I moved which is odd because they were very helpful when I lived alone before I moved last year.

I have 3 small finches and 4 parakeets.
Finches r cute but not very chirpy and tend to want to make nests and with
1 male and 2 female definitely can't let them have babies.

Parakeets r very active and chirpy and toys keep them happily entertained.
Unfortunately I am finding that I'm allergic to their dander, they don't bathe like the finches do.
Both in breathing and itching.

Thank you for understanding that my birds r important to me.

My pain is a beginning to be a little better. Which is a relief.
Cold causes the partial numbness in my arms and legs to worse to greatly limit strength and movement, so I'm homebound once weather turns cold.
Looking towards spring and warmer weather to get out again.
Tho due to falls from balance/dizziness and weakness problems walking has become quite limited outside.

Walking in the Livingroom is a problem due to birds causing breathing problems.
Air purifiers helping some but not always.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17524
   Posted 12/1/2016 6:21 AM (GMT -7)   
Hi, Scared, and welcome! Lubs gave you some good advice. I think you dizziness and more pain can be because of your neck problems. And I think your overall pain is due to stress. A move can put incredible stress on you. You don't know the area, don't know people, etc. It's like starting all over again. That sure can be stressful.

Do see a good board certified rheumatologist and get checked out and see what really is happening. You could just have extremely tight muscles and need a muscle relaxer. I do take one called Robaxin and he did make a significant difference in my pain.

I also do Trigger Point Therapy on myself. I bought The Trigger Point Therapy Workbook on Amazon and it shows where the trigger points are that are causing the pain. They feel like tender knots. I had neck problems and I found two knots at the base of my skull on each side of my spine. They were the size of marbles! Most knots are smaller. Anyway, according to my massage therapist, I pressed as hard as I could stand on the trigger point and then massaged it and repeated it. Then I worked on the second knot. I could do this while watching TV. Those knots kept getting smaller and now I don't have the. Anymore AND I don't have neck problems either.

I do get gentle massages once a month. If you decide to go this route, be sure your massage therapist has been trained in how to massage fibro clients.

In Fibro 101 you will find links to vitamin D3 and magnesium malate. These do help with pain. Also there is a wonderful link about how to maintain a positive attitude when you have chronic pain. These might help you. All of Fibro 101 is good so do read it.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

scaredalone
New Member


Date Joined Nov 2016
Total Posts : 6
   Posted 12/1/2016 3:14 PM (GMT -7)   
Sherrine - thank you for your response.

I did forget my vitamins the day I did laundry so that definitely didn't help.

I have spinal problems and inflammation problems. I've been dealing with my health for 16 yrs. Severe Fatigue began about 3-4 yrs ago. My legs became bad and I started falling 3-4 yrs ago.

My physical therapist said long ago that when I do activity that it sets off a chemical inflammatory reaction throughout my body.

I tried muscle relaxers many yrs ago. My body couldn't handle them. Gave me severe headaches. Dr didn't listen and gave me stronger ones. Caused migraines that took yrs to stop having.
I researched the muscle relaxers give. Me and their #1 side effect was Headache.
I got fed up with drs who didn't know anything about the Newest drugs they were handing out just because they had been given samples by some drug company rep. Muscle relaxers work with the brain not with the muscles. So fogginess, headache and depression (since they r like tranquilizers so are downers are side effects)
Doesn't mean everyone will get these side effects but for me due to severe spasms which were als causing reducedblood flow to the brain, it had a very strong and powerful effect vry quickly. Didn't help the spasms at all, made them worse since migraines certainly don't help one relax.

Anti inflammatory drugs were the best for me but my stomach couldn't handle aspirin any more and they made me very nauseous. I still took because only thing that helped the pain but the 2 were taken off the market because of side effects too bad and dangerous.
A doctors recommended Inflamed. But since it was made of all natural ingredients it was costly for me to use.
I used for 2-3 yrs before the cost was too much for me with my financial difficulties at the time.
Looking back now several yrs later I think that was the start of my declining badly.
But they r now more expensive.

Kirkland Rapid Release for some reason works as a muscle relaxer for me.
That and staying regard with my magnesium and calcium.
Plus protein drinks helps with my muscles esp after activity.
I messed up and didn't do any of these and then got too foggy brained with the pain to remember them the next day.
Plus black cherry daily helps with the arthritis pain and inflammation. I have arthritis in a facet joint in my lower spine.

Everything costs money. And I need to take care of myself but it's easy to forget or try to save or think it doesn't matter.
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