Please Help!!!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

fibrocushie
New Member


Date Joined Nov 2016
Total Posts : 4
   Posted 12/7/2016 7:13 AM (GMT -7)   
Hi all.I am a 40 yrs unmarried girl living in Abu Dhabi.I am a sufferer of Cushing Syndrome and have had 2 transphenodial surgeries to remove pituatry adenomas in 2013 and 2015.For one year after after my second surgery I remained on high steroid till I found a doctor to taper it.With Gods grace my pituatry started functioning since oct but I am still on 20mg steroid.It should take a couple of months to get off the steroid completely and my pituatry to make a normal amount of steroid.When my doctor started the taper he asked me to see a rheumatologist as he suspected fibromyalgia.The rheumatologist confirmed it Since April he put me on Lyrica 75 mg two tablets and one Xanax for sleep.Things were fine ,when I started experiencing some strange sensations in oct ,started with hot flash,then chills ,heat sensation followed by sweating.I started getting them everyday when I decided to ask my internist and she checked cbc,thyroid ,sedimentation rate etc but they all came back normal.Then for the first time in my life I got an anal fissure.I was constipated few days but this thing  had never happened.Iwent to my internist she asked me to apply a rectal cream ,stitz baths and laxatives.the trauma began since then.I have not known soo much pain in my life before.Soon my whole body got drowned in pain sensations and headaches also followed tight ones which I never experienced before,burning sensations,dizziness,nausea,gas and nervousness, anxiety have followed.Its 2 weeks 3 days since the fissure and my position remains the same.I have stopped using the laxative I was getting too uncomfortable and now it was difficult passing stools myself so I don't know what to do.I have increased lyrica to 3 tablets to help the pain myself and informed my rheumato,Most important I realize the severity of the condition I am in.I have pain I think wherever u press in my body I think more than all the points,insreased sensitivity to lights,sound.I don't know whether it was a flare up as I now read and don't know how to handle it.I asked my doctor but he doesn't advice anything besides giving medicine.I request advise and suggestions from everyone.No one has ever measured my pain like I read here.I have tried to find pain centres here in Abu Dhabi to don't seem to find any.Please  advice who should I see ,which places I should contact and other techniques to manage my pain.Thanks for reading my post and would be grateful for any help.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17524
   Posted 12/7/2016 7:41 AM (GMT -7)   
Hi, Fibrocushie, and welcome! I don't have tany me right now to truly welcome you but I did find a hospital in Abu Dhabi that is affiliated with John's Hopkins here I. The US. John's Hopkins is one of our top hospitals. So, check out this link and perhaps call them and see the f they treat fibro,patients. Let us know what you find out because we care about you.

www.hopkinsmedicine.org/international/international_affiliations/middle_east/tawam_hospital.html

Okay, I'm back. I'm expecting company in a few minutes but I did find another hospital that deals with fibro in you community. Here it is.

www.medeor24x7.com/fibromyalgia-fibrositis/

These hospitals sound good and hopefully you will get the help you need.

Do try to relax and stop worrying! It does t help one bit and can definitely cause more pain. Take one day at a time while you try to find what works best for you. Unfortunately, what works for one doesn't necessarily work for another so it's a trial and error type thing.

I use ibuprofen with food, Tylenol, magnesium malate, vitamin D3, and a muscle relaxer called Robaxin that has made a significant difference in my pain. I also walk daily as a gentle form of exercise. Water exercise and yoga are good too. I pace myself when doing thing too.

I have a positive attitude and I think this has helped me as much as medication. I take one day at a time and expect it t be a good day. I don't get up and say, "Oh my God, I ache all over." Instead, I get up and set doable goals for myself and if I have a bad day I know I can handle that. I do not project myself in the future since no one know what the future holds. This type of thinking has helped me from being depressed over all of this.

Be sure to read Fibro 101...the first thread on the forum. There is a lot of good info there. There are links about vitamin D3 and magnesium malate and how they work in the body. There is also a wonderful link about how to maintain a positive attitude when you have chronic pain.

Check out the new thread I started about common misconceptions about fibromyalgia too.

Also, here is another good link full of information about fibromyalgia.

umm.edu/health/medical/reports/articles/fibromyalgia

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we do care about you. Hope to hear more from you soon.

Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 12/7/2016 8:32:08 AM (GMT-7)


fibrocushie
New Member


Date Joined Nov 2016
Total Posts : 4
   Posted 12/8/2016 3:50 AM (GMT -7)   
Dear Sherrine,
Thanx for your quick response...the former hospital you mentioned is in AL AIN about 2 hrs from Abu Dhabi but the one mentioned below..well that's within Abu Dhabi and not very far from where I live.Thanks for your information cos though I searched I couldn't know this.I have got an appointment for Tuesday with the rheumatologist there and they said he would arrange the physiotherapy,they do it in their hospital, if I would need it.Lets just hope things work in our favour and we come out with good results.I have been reading the threads and will continue to .Please send me links for any other important information you find about fibromyalgia...
Love
Simrita

fibrocushie
New Member


Date Joined Nov 2016
Total Posts : 4
   Posted 1/19/2017 2:06 AM (GMT -7)   
Hi.I am back..need some help.I had met the rheumato at Medeor hospital.She gave me reassurance that since the fibro is induced it should get better with the treatment.But the gastro says my constipation is due to the painkillers.I myself am concerned about it .I take 2 lyrica 75mg at 6 in the evening and anti depressant Xanax at bedtime.I am on these meds since april.I am also going through steroid withdrawal.I have gone off 20 mg and I am still on 20 mg.I don't know if I am better with these meds or without them. The pain sensations haven't changed even with the meds.I haven't tried any natural remedies yet.I would invite advise about how I can improve my situation.I want to try natural ways .Also how should I reduce Lyrica while trying natural ways.Thanx.

Kriya
Regular Member


Date Joined Dec 2016
Total Posts : 70
   Posted 1/19/2017 7:04 AM (GMT -7)   
HI Fibrocushie. Natural remedies are't as easy as it should sound.

its ether a long way in lifestyle changes, and other than, when one practices natural remedies, one can only progress each day at a time. natural remedies are a bunch of work and the reward only of being one hundred percent successful in them all by then it is perfect, i would say.

But i can sympathize with fibro sufferer's, as a simple as a human being, there is nothing to hard to understand, that fibro is serious as illness, and surely needs more attention on global level.

Meditation is a great way to practice compassion for peace and peaceful mind of view, it increases your awareness, and can make you more will in power, which don't help physically at all.

Then Yoga, yoga can be very simple for once, all you need to do is bend one leg on your couch/chair, and try to move as less as possible or better if not moving at all.

Also praying before food, it is a great way to increase your awareness on your own apitite and the way you eat, makes it easy to control food with praying.

Onside Note, i must be honest here with you, its not enough for to be happy, i know there is few stronger ways which are too difficult to practice, like finding a quiet place in the nature.

Kriya
Regular Member


Date Joined Dec 2016
Total Posts : 70
   Posted 1/20/2017 5:01 AM (GMT -7)   
I might should add. before starting any natural remedies, its important to note that the first step to feel better. is in becoming a vegan, or in practicing vegetarianism, then your mind can results in meditations without limits.

Post Edited (Kriya) : 1/20/2017 5:07:53 AM (GMT-7)


Mrsppmrxky
Regular Member


Date Joined Jul 2006
Total Posts : 384
   Posted 1/21/2017 10:32 PM (GMT -7)   
fibrocushie, not knowing what is available to you in your area what I am suggesting might not work. Epsom Salt baths are good for helping with the tight aching muscles.

Taking a supplement of magnesium can be a big help with muscles as well as helping the bowels to act easier. You must drink lots of water to stay hydrated.

I hope you feel better quickly.
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 13, 2017 8:10 AM (GMT -7)
There are a total of 2,904,773 posts in 318,793 threads.
View Active Threads


Who's Online
This forum has 158171 registered members. Please welcome our newest member, suerawarrior.
325 Guest(s), 11 Registered Member(s) are currently online.  Details
suerawarrior, hopeful44, Solaris719, overthepond, gabybee, AZ Guy, FLBeachgal, Loquito, three 5's and a jack, jdiane, jackinthebox