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Regular Member

Date Joined Jun 2008
Total Posts : 46
   Posted 12/9/2016 7:15 AM (GMT -7)   
Hi all, good to be back for a visit. Hope you are all doing well.
I have multiple auto-immune issues and fibro. Things have gotten kind of crazy this past year with a new dx of ITP, a low platelet disorder. I had to go on high dose pred which has been a nightmare. I just posted on the lupus forum about how it is making me feel flat.
Anyway, I was given Lyrica to try for pain management. I find that if I don't take it regularly it will work for a really bad night, but only once. The next night it does nothing? Any of you find that? Plus it make me gain weight real fast!
I have an appointment to see my GP about pain management next week as things are much worse, probably because of the high dose pred and taper.
I did try a cream called Voltaran and it has helped quite a bit but it is just a topical that is short lived for muscle pain, but it does nothing for the fatigue and cognitive problems.
thanks for listening. keepn'on

Veteran Member

Date Joined Apr 2008
Total Posts : 2674
   Posted 12/25/2016 9:00 AM (GMT -7)   
Late reply here, hanginin, sorry. I think everyone has been busier than usual lately.

I only took Lyrica for a short time. It caused some digestive issues (upset) and didn't seem to help much, either. I guess sometimes it's trial and error, and meds hit people in various ways. I hope you find a med that works well for you.

Personally, I take Neurontin and Flexeril. My doctor allows me to take them as needed, but it's something to check out with your doctor, of course. For some reason I'm doing well now and haven't had to take any meds. But you never know from day to day with fibro, right?

Anyway, when I need them, low doses of Neurontin and Flexeril seem to help; at least they "take the edge off."

Fatigue can be frustrating! I find I have to avoid caffeine or my fatigue gets worse. Believe it or not, sometimes driinking more water actually seems to help my fatigue, but maybe I'm a little dehydrated at that time. Short power naps or just lying down for 10 minutes or so can also help at times.

Hope you're having a good day! Take care.
"You are never too old to set another goal or to dream a new dream."

C.S. Lewis
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