Severe upper thigh trigger points

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chi'smom
Regular Member


Date Joined Aug 2013
Total Posts : 24
   Posted 12/20/2016 7:17 AM (GMT -7)   
Hello and wishing all a Merry (and hopefully painfree!) Christmastime.

I'm sure many are familiar with painful trigger points, but does anyone experience severe upper thigh pain that actually radiates into the groin and abdomen? I have had this for several years, so I'm fairly sure it is not anything intra-abdominal, but it gets so severe at times that it is worrisome. I know we tend to blame everything on just being a fibro symptom, but would just like some assurance that others have had this (although I wish you didn't!) It tends to come in flare-ups, which would be expected, and when the severe thigh pain abates, so does the abdominal pain. Also, if you do get this, do you notice a sudden severe cramp-like pain in the thigh on trying to move it, such as when turning in bed? This is sharp and scary to the point that I have to wonder about a blood clot or something else causing it, but there is no warmth or swelling, so again attribute it to the fibro trigger points in that area. Thanks so much.

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2076
   Posted 12/20/2016 9:56 AM (GMT -7)   
I get this sometimes...it is really painful...

I twisted oddly yesterday and that area went into spasm..i could not walk till it released.l

Have you ever read the trigger point handbook?

It so nice to have on hand and check a problem point and know you have tools to help get yourself out of it...

I have had A gentle physical therapy to help release those points a couple times in recent years,

Lj

chi'smom
Regular Member


Date Joined Aug 2013
Total Posts : 24
   Posted 12/20/2016 1:04 PM (GMT -7)   
Thank you, Lj. I know, I do need to get a trigger point book, as I have them in multiple areas and I'm sure it would help. I use a lot of external pain cream, which after a while and using so much, I'm sure is not good. Take care -

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2076
   Posted 12/20/2016 8:50 PM (GMT -7)   
The trigger point handbook is a great tool to have on hand...

It is not an easy read..but as you know if a trigger point is bad enough, you can look up that area, and not just read it from front to back...

I do not always have time to get help from a physical therapist, so at least i know i can reference this book, and sometime release a trigger point within minutes...

Its so empowering to be able to help ourselves, through a painful time.

Also you can google specific trigger areas, and it will take you to a youtube video of how to release the area..

Lj

chi'smom
Regular Member


Date Joined Aug 2013
Total Posts : 24
   Posted 12/21/2016 12:26 PM (GMT -7)   
Thanks Lj. I didn't even think about catching it on YouTube. I think it's easier to comprehend when you actually see it visually. Merry Christmas!

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17528
   Posted 12/22/2016 6:22 AM (GMT -7)   
I use the Trigger Point Therapy Workbook. I found it on Amazon and it's quite inexpensive. This has diagrams as to where to find the trigger points for the pain you are experiencing. It really does work.

I had extreme raw nerve pain that went from the inside of the groin down to the middle of the calves on both legs. I almost couldn't walk because of the intense pain. I needed two canes to walk. I saw a rheumy and got a muscle relaxer plus was told to use ibuprofen as needed and this took care of the problem. I still take a minimal dose of the muscle relaxer daily. I can walk all,over with no leg pain now.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

chi'smom
Regular Member


Date Joined Aug 2013
Total Posts : 24
   Posted 12/22/2016 9:31 AM (GMT -7)   
Hi Sherrine,
Thanks so much. I unfortunately should not take NSAID's due to ulcerative colitis history. Also I have dysautonomia. i have never actually seen a rheumatologist and diagnosed with fibro, but have had the pain for many years and believe that to be the case. I know I need to get a definitive diagnosis, but my neurologist said that some people are diagnosed with fibro who have dysautonomia, but the pain is actually nerve pain from the autonomic nervous system dysfunction. I think the two conditions are very often found together, as is chronic fatigue syndrome, etc, unfortunately. That is what interested me when you said yours was nerve pain. I also was diagnosed with neuropathy in the legs by EMG, so that may play into it. Very confusing picture. Unfortunately, I don't think I could take muscle relaxants either because I am really sensitive to medications and everything makes me dizzy. Would usually rather have the pain than be even more dizzy, although some days I wonder! I notice in your signature line it says you have autoimmune inner ear disease, and was wondering how you were effected by this. Has it menifested as hearing loss, or do you have dizziness also? Was wondering how you tolerated the muscle relaxants in this regard? It is amazing that your description of the pain sounds very similar to mine. Was just wondering if your pain goes from the groin also into the pelvic area, and if it radiates down the inner aspect of the leg to your calf or on the outside of the leg? I actually have pain in all areas of the thigh, though. Was yours extremely sore to touch? Thanks for your help, and Merry Christmas!

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17528
   Posted 12/22/2016 2:25 PM (GMT -7)   
Yes. Doctors are thinking fibro is a neurological problem. In Fibro 101 there is a good article with Dr. Clauw who explains this. But it's very important to get a diagnosis because there are other illnesses that have many of the same symptoms as fibro...things like Lyme disease and lupus! These can be ruled out with testing but there isn't a good test for fibro. They aren't using the tender point test a lot now since doctors vary on how much pressure to use plus people like me who take ibuprofen don't feel as much pain. So please see a good board certified rheumatologist and be thoroughly checked out.

After all the tests, my rheumy diagnosed me with not only fibro, but also ankylosing spondylitis and sacroiliitis. I wasn't taking ibuprofen at the time because I had recently been diagnosed with a bleeding stomach ulcer. My gastroenterologist said no NSAID's. I listened and ended up in this world of extreme pain. They tried Tramadol and Vicodin and these didn't touch the pain. It became a quality of life issue for me. So my board certified internist had me start taking ibuprofen with food as needed and he also prescribed a medication called misoprostol that helps protect the stomach from ulcers and so far so good. I've been doing this for almost five years now.

My pain was mostly in my hips and inside of the thighs and legs. Just trying to get my legs in bed was unreal. The pain was so great that tears streamed down my cheeks when trying to get in bed or walk. I thought I was going to have to sell my home. My daughter would stay with me and also would clean for me. The pain was so intense, I started not eating much or drinking much so I wouldn't have to walk to the bathroom! I've never had such intense pain...even after major surgery!

I have Crohn's disease. I can get ulcers anywhere in my digestive tract...not just the colon. I have been using ibuprofen for other illnesses that cause pain and inflammation. Fibro is not an inflammatory illness. I have gotten ulcers only two times in nearly 29 years. I do see my internist every three months and he keeps close tabs on me.

The muscle relaxer I use is called Robaxin (generic is methocarbomol). The prescription says to take two 500 mgs. four times a day. I only take one tablet twice a day. It is so little and I'm not dizzy or sleepy. It works well for me. I always take as little medication as possible because I also am sensitive to medications and am allergic to three medications.

I have no dizziness with autoimmune inner ear disease. It has caused me to be profoundly deaf in the high range of sound and I have to lip read to understand speech because 96% of speech is made up of high sounds. I also need closed captioning and use a special phone. I was told I will go totally deaf and have been a candidate for a cochlear implant for many years but as long as I can communicate with others I'll skip that surgery.

I think I've answered all your questions. Do read the article in Fibro 101 by Dr. Clauw. It is very interesting. Merry Christmas to you too!

Sherrine

[\blue]
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

chi'smom
Regular Member


Date Joined Aug 2013
Total Posts : 24
   Posted 12/22/2016 4:10 PM (GMT -7)   
Sherrine, Thank you so much for sharing this info. I'm so sorry, it sounds like you have and are dealing with a lot of conditions, and bravely, I'm sure. I'm glad you can take the NSAID's as long as you take the protective medication, as you certainly need it. It is hard when you need medication for one thing, but taking it will cause something else. I guess it boils down to what you said, that it became a quality of life issue. Wow, the sacroiiitis and SA alone could cause that kind of leg pain - probably a combination of it all. Good advice about getting a diagnosis, I know. It is all so confusing, as so many of these conditions overlap, and one neuro I saw actually diagnosed fibro just by history. I think it's just easier than evaluating the patient thoroughly when they have different complaints. The pain you had sounds similar to what I am experiencing - can't roll the leg over in bed, etc.

I am glad, though, that you don't have dizziness with the ear disease, but so sorry about the hearing loss. I have done some research on the different vestibular disorders. trying to figure out the cause of my dizziness, and I remember reading that the autoimmune causes the hearing loss. Interesting that you have the autoimmune ear and also Crohn's - probably all autoimmune issues. I think someday they will find that fibro is autoimmune also. Can I ask you just one question on your ankylosing spondylitis? I have had spinal arthritis since my teenage years, and an orthopedic doctor years ago thought it could be AS, but another doctor said no because I was female and also had a negative HLA-27. Was yours positive, if you had that lab test done? How did they diagnose it? I think maybe if I had treated it as AS years ago, I might not have ended up with the severe kyphosis that I have today. Thank you for mentioning the Fibro 101 - will definitely read that.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17528
   Posted 12/22/2016 6:01 PM (GMT -7)   
Yes,I tested positive for AS and my inflammatory markers were very high also. A good rheumatologist would run all of those tests plus my doctor took my family history too. I was there for three hours for my first appointment. Fibro is not considered an autoimmune problem nor is it inflammatory. But I have several autoimmune illnesses. They basically attack the body. With my hearing problem, the disease attacks the nerve endings in the ears that transmits sound. But, the good news for me is researchers have grown new nerve ending in deaf mice using adult stem cells and they can hear after the treatment! Trust me, I'll definitely try that when it becomes available...probably within the next 5-10 years. This is one reason I won't have the cochlear implant. When they drill a hole in the cochlea to insert the transmitter, you will be stone deaf in that ear forever. So, if the implant didn't work as it should. I'd be in a world of problems.

I think you are thinking of Ménière's disease. People with this illness have dizziness along with hearing loss.

By the way, the Robaxin is scored so you could cut one tablet in half and see how that might help you. As I said. I try to take as little as necessary...especially when I'm taking something for the first time. Robaxin has been around for ages. I was given this back in the late 1970's for back pain I had back then. The rheumy said I most likely have had AS for years but have kept it under control with ibuprofen. It is an autoimmune problem and also inflammatory.

Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

chi'smom
Regular Member


Date Joined Aug 2013
Total Posts : 24
   Posted 12/23/2016 7:23 AM (GMT -7)   
Sherrine, Thank you for providing the Robaxin name. I will definitely suggest that one, should a medication be suggested in the future. I prefer medicines that have been around for a long time and have a profen "safety" record! That research into the stem cells sounds so promising. I certainly hope that it comes to fruition and that you will be a candidate for it. I can understand your hesitancy on having the implant. So kind of you to be so active on the forum and trying to help others when you are dealing with all these things, but I know that trying to help others takes the focus off our own suffering - that along with faith, for sure! Good luck to you and all on the forum!
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