Sherrine, Thank you so much for sharing this info. I'm so sorry, it sounds like you have and are dealing with a lot of conditions, and bravely, I'm sure. I'm glad you can take the NSAID's as long as you take the protective medication, as you certainly need it. It is hard when you need medication for one thing, but taking it will cause something else. I guess it boils down to what you said, that it became a quality of life issue. Wow, the sacroiiitis and SA alone could cause that kind of leg pain - probably a combination of it all. Good advice about getting a diagnosis, I know. It is all so confusing, as so many of these conditions overlap, and one neuro I saw actually diagnosed fibro just by history. I think it's just easier than evaluating the patient thoroughly when they have different complaints. The pain you had sounds similar to what I am experiencing - can't roll the leg over in bed, etc.
I am glad, though, that you don't have dizziness with the ear disease, but so sorry about the hearing loss. I have done some research on the different vestibular disorders. trying to figure out the cause of my dizziness, and I remember reading that the autoimmune causes the hearing loss. Interesting that you have the autoimmune ear and also Crohn's - probably all autoimmune issues. I think someday they will find that fibro is autoimmune also. Can I ask you just one question on your ankylosing spondylitis? I have had spinal arthritis since my teenage years, and an orthopedic doctor years ago thought it could be AS, but another doctor said no because I was female and also had a negative HLA-27. Was yours positive, if you had that lab test done? How did they diagnose it? I think maybe if I had treated it as AS years ago, I might not have ended up with the severe kyphosis that I have today. Thank you for mentioning the Fibro 101 - will definitely read that.