Could horible pain in knees and hips while on prednisone or imuran be fibromyalgia?

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calvin1242
New Member


Date Joined Dec 2016
Total Posts : 19
   Posted 12/20/2016 12:44 PM (GMT -7)   
Hi everyone, I have a serious problem that has kept me from being able to work for about a year and I'm worried about losing everything. I have proctitis and i've tried prednisone and imuran and on both drugs I have the worst knee and hip pain that makes it hard to walk while on these drugs. I've tried humira and remicade but I get insomnia, anxiety, and panic attacks while on both biologics. This pain in my knees and hips feels like it's in the muscles and joints and sometimes the muscles in my legs are so tight and feel like I'm walking on stilts. Hydrocodone does nothing for the pain but xanax almost takes all the pain away. My dr checked for pressure points for fibromyalgia but I didn't respond to them. My dr did say i have myalgia type symptoms and nothing is showing up in x rays. Could this be fibromyalgia? Any answers would be much appreciated thank you!

dmb124
Regular Member


Date Joined Sep 2016
Total Posts : 26
   Posted 12/20/2016 2:32 PM (GMT -7)   
I'm sorry to hear you are having these issues. I cannot take steroids of any kind due to severe hip, knee, and leg pain. My rheumatologist told me that 1% of people have this reaction to steroids. He said it is not related to my fibro. I have to remind my gp not to mix steroids with my antibiotic shots every time I go in sick. If I get a steroid shot, I am in intense pain before I every make it to my vehicle. Like you said, opioids do not really help with the pain. Avoiding steroids has been the only solution I have found. I hope you find answers soon!
Michele

Fibro, RA, GERD, hiatal hernia, migraines, TMD, hypermobility joint disorder

calvin1242
New Member


Date Joined Dec 2016
Total Posts : 19
   Posted 12/20/2016 3:18 PM (GMT -7)   
Thank you for your reply Michele. It's good to know there are other people out there that have experienced the same side effect.
Diagnosed with proctitis August 2013
Current meds- lialda 3 a day, 100mg imuran, canasa 1 nightly Multivitamin .
Past meds- prednisone, humira, remicade, apriso, pentasa, delzicol, turmeric, vitamin d3, fish oil, ambien, folic acid, nicotene gum, boswellia.

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2076
   Posted 12/20/2016 8:23 PM (GMT -7)   
I had never heard of that as a side effect, but something that would be great for people to know of.

Dr's add steroids to antibiotics?

Wonder if they woukd always say so?

dmb124
Regular Member


Date Joined Sep 2016
Total Posts : 26
   Posted 12/21/2016 9:08 AM (GMT -7)   
My dr likes to mix an antibiotic shot with a steroid shot for things like upper respiratory infections instead of giving oral steroids or two shots. Sorry, I should have been clear on that. I've learned the hard way to remind him and the nurse that comes in to give the shot that I do not tolerate steroids. smile

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17524
   Posted 12/22/2016 6:00 AM (GMT -7)   
Calvin, I'm wondering if a muscle relaxer might help you. Since xanax relaxes you by helping with anxiety, you aren't tensing your muscles so much. This is why I'm guessing a muscle relaxer could help you. Then you wouldn't need the xanax.

Also, there are steroid enemas. I used to have to use those when my Crohn's disease was really acting up. These put the steroids where they were really needed instead of taking pills that affect the whole body. It still could affect you somewhat because the steroids are absorbed In the intestines I think, but this is what my doctors had me use with Crohn's disease and they did help.

I'm not a doctor but these suggestions sound like common sense to me. It's worth asking your doctor about since you are having all these problems. Do let us know how you are because we do care about you.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
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God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
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