Pain when using muscles?

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Spunkymom
New Member


Date Joined Dec 2016
Total Posts : 7
   Posted 12/21/2016 1:27 AM (GMT -7)   
Hello! I'm new here. I have read lots of posts over time but never joined in. I'm a 43 yr old lady with 3 almost grown kids and a wonderful husband. Have had lots of issues through the last 12 yrs - some with actual causes and many not. Last February things tipped and I had constant bilateral and pain, exhaustion, and general unwellness for no reason. The exhaustion and unwellness subsided mostly but the calf pain wouldn't go away. Explored every possible cause sand came up with nothing. Long story short, a doctor suggested fibro but didn't treat it herself. Had the most difficult time finding one who would. Finally did and he grudgingly gave me the diagnosis. Put me on 100 mg of gabapentin. I think he was trying it as a placebo as that amount does nothing. Finally got up to a therapeutic amount and went about 2 weeks without pain! I still have some pain- and some really bad days- but don't want to increase the dose because I feel like it's making me put on a little weight.

Now to the question. I often have pain in my muscles when using them - mostly my arms when doing things like opening a new jar. Does anyone else have that? I don't exercise and it makes me afraid to start. I don't know if it's due to fibro or just weakness or a combination.

I look forward to hearing other people's experiences!

Luvzminis
Veteran Member


Date Joined Apr 2008
Total Posts : 2660
   Posted 12/21/2016 6:47 PM (GMT -7)   
Hi and welcome, Spunkymom!

Yes, I think it's fairly common to have pain in your muscles when using them--seems par for the course for us fibromites. At times, I tend to luck out and avoid pain, but fibro, as you likely know, is so variable and tricky.

Today, I baked and made sure I sat down most of the time, or else walking constantly can kick in pain and/or stiffness for me. I do try to do as much walking as I can, but try to vary with occasional sitting or my legs can get too stiff.

I know what you mean by pain in your arms. Seems no matter what we do, they almost scream, "too much!"

I take gabapentin as needed, per my doctor (not all doctors want to do this; you could always check). I take 100 mg just to take the edge off, but I think I'm very sensitive to meds, so it's often enough for me. You're right---that's another med that can cause weight gain at higher doses. Ugh!

I hear you about exercise, but I've found I have to force myself to do gentle exercises every day. I started small, just stretching and lifting small cans as "weights," gently twisting my head and body, and mild exercise in general.

Dancing can be fun---even a simple line dance type. YouTube has lots of things like that, and I would guess many gentle stretching exercises, too. You could always check with your doctor before you start an exercise program to get his opinion.

Nice to have you here! Have you checked out Fibro 101, the very first post here? Good stuff!

Hope things are going well for you today. Best wishes.
"You are never too old to set another goal or to dream a new dream."

C.S. Lewis

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17528
   Posted 12/22/2016 6:16 AM (GMT -7)   
Hi, Spunky, and welcome! When you don't use your muscles and then start to use them, they will rebel. But the more you use your muscles, the more they will respond to being used and you wont hurt as much.

When I started walking as a form of gentle exercise, I could only walk four houses down and had to turn around if I wanted to make it back home. Now, I could have told myself I really can't walk and then nix the idea of walking...but I didn't do that. I went out the next day and could go a little further. I now walk at least a mile a day plus all the walking with shopping, working around the house, etc. I had strengthened my muscles by using them.

So don't throw in the towel. It's very important to keep moving with fibro. If you sit or lay too much you will be stiff as a board and have more pain.

I use ibuprofen with food, Tylenol, magnesium malate, vitamin D3, and a muscle relaxer called Robaxin that has made a significant difference in my pain. If you are deficient in magnesium, that can cause muscle spasms and pain. Same with calcium. A deficiency in vitamin D can cause pain too. I also walk daily and pace myself when doing things. All of these things keep my pain under control and I've had a full and enjoyable life in spite of this illness.

Be sure to read Fibro 101...the first thread in the forum. There is a lot of good information there that can help you too. There are links about magnesium malate and vitamin D3 and how they work in the body.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Spunkymom
New Member


Date Joined Dec 2016
Total Posts : 7
   Posted 12/22/2016 11:09 AM (GMT -7)   
Thanks for replying! I tried magnesium and that didn't help. Tried malic acid, too, with no results. I've had low D in the past and so stay on that. Have also has problems with B12 and tested positive for the MTHFR gene mutation so I stay on B12 cobalamin.

I like to walk but don't live in a place where that is very easy or relaxing. I liked yoga in the past and need to kick my butt and start again - at home with something easy.

One of my biggest problems is living in a place that is very hot and extremely humid with not very much air conditioning. It really does a number on my energy and pain. I have enjoyed reading the threads on the best place to live with fibromyalgia. It seems that some do better in the cold and some do better in the hot but no one does well in the humidity.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17528
   Posted 12/22/2016 1:39 PM (GMT -7)   
You might get a walking in place video to do at home. I used them when I lived up north and their was snow. Leslie Sansone has quite a few good ones. I didn't get the ones with a lot of aerobics.

I live in Florida and do very well..much better than when I lived in northern Ohio. I do have air conditioning though. Is there a YMCA nearby? Swimming is a wonderful gentle exercise plus they have water aerobic classes that would help. And, yes, yoga is another good gentle exercise for fibro.

So, there are options. You just have to pick one and stick with it. You will feel better for the effort.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Spunkymom
New Member


Date Joined Dec 2016
Total Posts : 7
   Posted 12/23/2016 11:49 PM (GMT -7)   
I'm a Texan 😉😉 but live in Dar es Salaam, Tanzania. I was a member of a gym for a while but when drive time varies from 10 minutes to 45 minutes or more it gets a little tedious. I just need to make myself do it at home.

I'm thankful that I'm not as severe as some who are on this forum, though it is sobering to know it can get that bad. I can get my medicine over the counter here. I don't have a doctor to work with- not here or in Kenya and South Africa doesn't recognize fibromyalgia. I'm looking for a well versed doctor who would be willing to work with me by email.

lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 460
   Posted 12/25/2016 4:50 AM (GMT -7)   
Merry Christmas everyone.
I have osteoperosis, osteoarthritis, osteopenia, degenerative disk disease, bulging disk ,acid reflux, My left knee had to get another injection. I was really miserable , and have not quite yet recovered. ) I also have fibromialgia, high BP anxiety disorder, TMJ, cryptogenic liver disease non B non C hepatitis. I have been on this site since 2006. Was listed as a transplant patient at a transplant center, fortunately my lab work and MRI improved and been stable since 2009 and was taken off the list. Still have to go 600 miles just to be tested and examined every year.
I have chronic pain disorder, and Dr.s won't give me anything for pain not tylenol, not even ibuprofen, because every drug, red meat, or ammonia builds up and leaves me with encephlopathy.
Merry Christmas lavendar
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