Fibromyalgia and Urinary Pain

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Regular Member

Date Joined Mar 2014
Total Posts : 29
   Posted 1/14/2017 8:48 PM (GMT -7)   
Is there anyone who has or is experiencing urinary problems w/ fibromyalgia?
What happens after urinating is sort of difficult to explain but here it is:
After urinating, I feel a sort of slight burn and maybe like I need to go again.

It got better for about 3 months and now, it is back. I have no idea what it is.
This is how it started:
Had pap test and lubricant used burned me terribly. (Pap test fine)
I got an UTI a week later which was very hard to get rid of.
That is when the pain after urinating started. I still had the UTI, so I contributed it to that.
However, when the UTI was gone, it was still occurring.
This led me to an urologist who did the sonogram and cystoscopy. Kidneys and bladder both fine.
I explained to him what I said above and he said it could have been an allergic reaction to the lubricant.

Now, I am literally terrified of going back to him because I don't know what he'll do or what it is. Because of this fibro thing, it took 6 weeks for my hips to get better due to the gosh awful position I was in for the test. Fibromyalgia is so frustrating, and I want to be careful not blaming every little ache/ pain on it. I have been under extreme stress (another story!) and have read it can cause urinary pain.

So, if anyone has had or know of this type of situation, I'd gratefully appreciate your input.

Regular Member

Date Joined Dec 2016
Total Posts : 70
   Posted 1/15/2017 4:18 AM (GMT -7)   
I have something similar, but dunno if its related. if right after having sex and washing my private parts, makes it painful to urinate. it could be allergy.

Veteran Member

Date Joined Apr 2008
Total Posts : 2660
   Posted 1/15/2017 9:38 AM (GMT -7)   
Hi Sungirl1: Did they make sure your UTI was actually gone? Did they recheck?

I came down with a UTI last year. With treatment, my symptoms got better, but I still had issues. It turned out to be related to dryness (I'm post-menopausal) and also some bladder prolapse.

I had a recheck and the UTI was indeed gone. The ob/gyn gave me a prescription for Premarin, which has helped the dryness. The only issue I have with it is the cost. I now use it more sparingly to make it last and use OTC lubricants or aloe vera gel (as you know, there can be side effects and reactions to anything, including these, so use caution).

To avoid UTIs, I take a cranberry capsule every day, and I bought those at Swanson Vitamins. I also drink a lot more water every day. So far, so good.

I don't know if you're near or in menopause, but just thought I would bring that and the prolapse issue up, just in case. So many things may or may not be related to fibro. I wonder if we'll ever know, in some instances. I'm glad you went to the doctor.

Take care and I hope your problem resolves soon. yeah
"You've only got 3 choices in life: Give up, give in, or give it all you've got."

Post Edited (Luvzminis) : 1/15/2017 11:00:01 AM (GMT-7)

Regular Member

Date Joined Mar 2014
Total Posts : 29
   Posted 1/15/2017 10:27 AM (GMT -7)   
I have thought about it being menopause because I have read it can cause tenderness in the private area when sitting down along w/ other issues. I am in menopause.
I went back to the doctor (my internist, gynecologist, urologist) and all 3 did urine samples. The urologist took urine from the bladder w/ a catheter. No UTI.
I never had any problems until my gynecologist used that lubricant and it was really awful when I had to go back because of this issue. When I went to the urologist, it slightly burned but soon stopped. There are times when it is uncomfortable to sit down for a few minutes but this doesn't happen often. Thank you for taking the time to respond to my concern.

Veteran Member

Date Joined Feb 2009
Total Posts : 844
   Posted 1/15/2017 3:16 PM (GMT -7)   
Just a suggestion. Have you changed any of your clothes washing products recently?

I am extremely sensitive to anything with fragrances, even in that area.
And on the eighth day God created Golden Retrievers.

Regular Member

Date Joined Mar 2014
Total Posts : 29
   Posted 1/15/2017 5:29 PM (GMT -7)   
Excellent suggestion! Thank you!
I've thought about it down to the toilet tissue we buy, and I cannot think of anything except I did have hemorrhoids a few weeks ago and this is about the time this started again. I used Preparation H cream as I always have and I did, one day, think it could've been that getting into my private area. (Such a great topic here! So sorry!) It very well could've been the cream.

Regular Member

Date Joined Jul 2006
Total Posts : 384
   Posted 1/16/2017 4:12 AM (GMT -7)   
Fibro patients also seem to have Interstitial Cystitis. It is another immune thing to win in the lottery of life. smile

I have had bladder issues my entire life. It goes in spasms and the infection is actually in the wall of the bladder due to microscopic pin holes and it really doesn't show in the urine sample. It can cause spasms that are so hard that will also release the bowel and can be harder than labor.

THankfully it goes in cycles and goes into remission at times.

I can't use certain TPs because of dye, perfume or even using gluten. (I also have Celiac Disease) If you have allergies, it is possible soaps, lubricants, laundry soap or fabric softeners as well as body washes or douches can cause urinary burning.
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