After 7 years, I have figured out what my fibro is.

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Klambert1
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Date Joined Mar 2010
Total Posts : 350
   Posted 8/27/2017 12:00 PM (GMT -6)   
Hi, hope all is well, it's been a long time since I have been on this forum.
I was diagnosed with fibro in 2010. I had 2 years of severe symptoms. I lost my job and now I'm on disability.
My symptoms were very weird, almost in a certain order. From one thing to the next and it moved up my body.
Anyway after all this time, I'm 100% certain that I am suffering from cipro toxicity. I have had many bladder infections since I was young. I was put on cipro quite a few times, probably at least 5 since young adult. I am now finding out, after researching fibro again, that how extremely dangerous and toxic cipro is to the body. The symptoms are in line with mine, and it explains alot of wjat I was going throigh. I know I have nerve damage, and mitochondrial damage. (Explains the severe post extertional malaise) my last dose of cipro was 2014, which left me very sick with c-diff for 3 mths after that. Cipro is a powerful antibiotic that should not be used for UTIs. It also contains fluoride.
I can honestly say, even though I accepted my fibro diagnosis, I always felt something else was causing it. I just feel fibro is not a disease on its own, as well as CFS.
And in my case, it was cipro that killed my body.
Makes me wonder about other antibiotics also. If you have ever taken a flouroquinoline antibiotic, do some research, might be worthy.

Post Edited (Klambert1) : 8/27/2017 11:03:11 AM (GMT-6)


Ljm2014
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Date Joined May 2014
Total Posts : 2229
   Posted 8/27/2017 2:47 PM (GMT -6)   
Interesting,

It may have been a catalyst ? Or created other symptoms that you thought were fibro?

Are you saying you do not think you had fibro..

Oh i read back..ok well i do believe its a disease on its own..but maybe not in your case..

I do think at times when drs are stumped , some may fall back on fibro as a possibility..

And i have heard many people tout the evils of that antibiotic..

We had an aunt who was hospitalized for c diff for a long time..

Is there some way people can treat if cipro harmed them in this way?

Klambert1
Regular Member


Date Joined Mar 2010
Total Posts : 350
   Posted 8/27/2017 7:15 PM (GMT -6)   
I mean for me, I feel fibro is caused by something, other than being a disease or symptom on its own. After I was diagnosed, I knew several others diagnosed in the hospital I worked at. Just to fishy to me. Yes, that antibiotic is bad! I did not know this. It had 2 black box warnings. It can go in your body and change the DNA in your own cells, if I remember correctly. Same chemcial process as chemo medicines. It destroys your cartilage, tendons, and robs your mitochondria in your cells. It is also known to drain all the mag from your cells, cause B levels to go wacky. Extremely close to fm symptoms.
No, there are no treatments for the damage cipro causes. If someone takes one or two pills and starts having problems I think they can have a good chance of recovery with proper doctors care, who actually believe in cipro toxicity. Most deny it when there have been thousands of people who have the same symptoms.
It is very interesting. Even if no one took this antibiotic, how do we not know it wasn't used in animals? Our meat. Flouroquinolines- don't take them!

Ljm2014
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Date Joined May 2014
Total Posts : 2229
   Posted 8/27/2017 10:50 PM (GMT -6)   
Well its excellent for you to share your story,

Because so many of us have more than one thing going on.

I am medicine sensitive, so my body just needs a childs dose of any medicine..so normal amounts of meds are way too much for me..that can present treatment issues by itself.

I can understand how suspicious you would be , with several co workers all diagnosed at once like that..wonder what you all had in common?

Same dr? Exposed to something?

Anyway sharing what we learn is always a good idea..if it does not apply to all , it may apply to some...

Lj

Klambert1
Regular Member


Date Joined Mar 2010
Total Posts : 350
   Posted 8/28/2017 8:47 AM (GMT -6)   
I am sensitive to medicine too. Tylenol can put me to sleep lol. No, I don't think we were exposed to anything, just new diagnosis were suspicious. My managers husband was diagnosed too. I truly think it's medicines, or the food we eat. I just came across how canola oil is used as a pesticide. I mean how much do we really know about what is used in our foods? I think alot of people are misdiagnosed with FM.

Klambert1
Regular Member


Date Joined Mar 2010
Total Posts : 350
   Posted 8/28/2017 7:06 PM (GMT -6)   
For me, I don't think it's fibromyalgia at all. These antibiotics damage the cartridge, tendons, mitochondria, crosses the blood brain barrier, can change the DNA in your mitochondria, and lot more. They also rob your body of vitamins, esp B vitamins and depletes mag from your cells. This is just the tip of the iceberg of what this medicine can do to the body. For me, I just feel FM (and alot of other syndromes) are really damage to the body from medicines, foods, etc. Plus, after being on this numerous times and the last time suffering c-diff, I certainly believe it did more damage.

Klambert1
Regular Member


Date Joined Mar 2010
Total Posts : 350
   Posted 8/28/2017 7:08 PM (GMT -6)   
And thank you Rockon, I'm hanging in there!

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2229
   Posted 8/28/2017 10:54 PM (GMT -6)   
Do you have a support group for the cipro thing?

If not , feel free to talk to us here about it..

😊Lj

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2229
   Posted 8/28/2017 10:55 PM (GMT -6)   
Oh and tylenol helped my pain, but made me sleepy and tired..so i cannot use it..

So i totally get that

Lj

Klambert1
Regular Member


Date Joined Mar 2010
Total Posts : 350
   Posted 8/29/2017 6:44 PM (GMT -6)   
There is a group on Facebook that I have joined, they have been really helpful..and so has this group!
And like fibro, Drs do not want to hear you have cipro toxicity. That's what I have been learning. I am going to so some more researching, print some info out and take it to my doctor.

Lj
I took immodium one time and it knocked me out for 3 hrs! I woke up feeling drugged and in slow motion. Lol

Kct
Regular Member


Date Joined May 2016
Total Posts : 237
   Posted 8/30/2017 8:10 PM (GMT -6)   
t research is suggesting FM is autoimmune driven. MGH is doing a study with an old TB vaccine to stimulate deficient WBCs. Your immune system could have repaired itself thus eliminating your FM symptoms.
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