I'm brand new on the forum, and I'm wondering why this blood test isn't more widely known and discussed. I was given a kind of half-hearted fibromyalgia diagnosis by my former family medicine doctor in about 2006, but I just managed the condition on my own before and since. By managed, I mean that I try to get the rest I need, try not to overtax myself, and just live with the symptoms. Painkillers don't do anything, so I don't take them. And doctors, I find, are worse than useless with conditions like this.
But recently, due to misplanning, I recently found myself with flexible spending money that I needed to use or lose, so I looked online to see what's available for testing for fibromyalgia and learned all about the fm/a blood test. I'm aware that it's controversial, but it sounded reasonable to me as I read about it, so I decided it was worth it to go ahead and get it. The fact that many insurance companies cover it, including medi-cal, gave it some more legitimacy in my eyes. So I went to an alternative MD that I had seen in the past for my thyroid, and asked him if he could order it for me. I got it and the results were a very strong positive. A score of 50 to 100 is considered positive, and my score was 94. For a few reasons, I was glad to at least get a confirmed diagnosis. It's also helpful to know that there seems to be a genetic basis for the disease and that, if needed, my kids can be tested for the gene pattern sometime in the future.
Before I did the test, though, I searched online forums like this one, expecting there to be lots of discussions about the test and lots of people who had it done, and I was so surprised that the discussions were few and almost no one has had the test done--even since insurance companies started covering it. And I wonder why that is. If nothing else, aren't people curious?