No Fibro...but still burning....

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Date Joined Aug 2017
Total Posts : 13
   Posted 10/4/2017 8:25 AM (GMT -6)   
I was told that I don't have Fibro. When I saw the Rheumy a month ago, she did a thorough exam, & ordered bloodwork. The bloodwork came back completely normal.

I am seeing the Neuro tomorrow. There are things going on in the spine, but nothing serious, or I would have received a call by now. There's more going on in the cervical spine than in the lumbar.

The burning sensation in my feet/legs drives me crazy. I fail to understand just why the culprit is so difficult to find. After extensive & exhaustive research, I've learned that EMG & NCD does not check for small fibre neuropathy, & a lot of EMG & NCD tests can give off a false negative. Pins/needles most definitely is a nerve symptom, yet things in the lumbar spine don't seem to indicate the problem would originate from there.

I'm of two minds to ask the Neuro for a doppler, skin biopsy or to be tested for small fibre neuropathy. I also need piece of mind to know if the progression of my symptoms can be stopped. I now have sensations in my right arm (probably due to severe neural foraminal stenosis), & the odd pins/needles in my facial area.

I realise that damage to nerves can't be healed or it would take a long time for them to heal on their own, but surely progression can be stopped.

I do apologise in advance if this posting is in the wrong area, but in Neurology, there doesn't seem to be a slot for me to post this.

Any and all comments would of course be welcomed! Thanks in advance!!!

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Date Joined Feb 2003
Total Posts : 16573
   Posted 10/4/2017 9:40 AM (GMT -6)   
Hi Kookai, hopefully you can get some answers about what exactly is going on. I don't know which website you have used to read about small fibre neuropathy, but either the Mayo Clinic or John Hopkins give great information about how to dx small fibre neuropthy. One has to be extremely careful looking up information on the internet because there is so much garbage out there. By the way, a doppler is not listed on either of these websites as a tool to help dx this condition. Skin biopsy along with EMG studies are still used. We have had some members over the years that were dx'd this way.

You mention neck & back issues that I am assuming have been long standing. I would not discount either of these to be a contributing factor. Neck issues causes upper extremity problems & back issues can cause lower extremity issues. Many of the symptoms you mention can cause these type of problems.

Good luck with your appt.
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