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Regular Member

Date Joined Feb 2014
Total Posts : 225
   Posted 10/17/2017 12:48 PM (GMT -6)   
Most days I can get 2-3 errands done but today I am wiped out and I was wiped out yesterday. The weather is changing here in Wisconsin. I always have trouble when that happens. I am supposed to go to warm water exercises today but can't muster up the energy to even get ready.

I've asked my husband to drag me out today - sometimes getting moving pulls me out of this extreme fatigue.
Starbucks Mocha Skinny is also good for a pick me up.

A niece is getting married. She has fibromyalgia and is just starting her journey with it. She has a lot of pain. My doctor once said younger people get the pain predominantly and the older get mostly the fatigue.

This too shall pass.

This is why I don't volunteer at church I never know when this will hit and I wouldn't be able to do whatever it is I volunteered for; which has happened. I also forgot to buy the food that the church donates to the homeless.

Feeling useless

Regular Member

Date Joined Aug 2015
Total Posts : 89
   Posted 10/17/2017 2:08 PM (GMT -6)   

I also get that extreme fatigue. It usually leads to a few tears and fights with my two very active teenage girls. They don't completely understand and to be honest, I hope they never have to! Try to get some rest and sleep. That usually helps with my moods as well. Hugs!
Fibromyalgia/ Celiac Disease / Depression / Tension Headaches

Too blessed to be Stressed!!

Gabapentin/ Zoloft / Topamax / D3 / Buspirone / Bentyl / Restoril / Flexeril / Calcium / Turmeric

Veteran Member

Date Joined May 2014
Total Posts : 2228
   Posted 10/17/2017 3:13 PM (GMT -6)   

With you on the weather changes, making for a bad day..

I am taking a recooperative day!!

I was posting on another post that even my breathing changes with the barometric changes, which can even make me anxious..and i use a microcurrent unit ,which calms that down and also helps with pain issues.

My husband does not get the drag me out thing..te he..he just says he will do the errands..i often have plenty that needs done here, so i often go with it..

Hope tomorrow is much better for you, lj

Regular Member

Date Joined Jun 2008
Total Posts : 59
   Posted 10/18/2017 7:05 AM (GMT -6)   
Hello Barb, and Mel and Lj. I am fairly new here. At least my understanding of what I have been trying to live with is.
Your posts are so familiar.
Funny I called the YMCA yesterday about swimming and a program I might fit into. It’s the only form of exercise besides walking that I can even think about right now.
It is miserable about your niece, so young but she has you that’s a good thing. I have Lupus too and I met a young woman at a wedding this year who was diagnosed with it as well, she peppered me with questions. We are from a small town so no support groups.
I hate that this interferes with your ability to plan and do your volunteer work. I understand totally the fear of letting people down.
I am supposed to go on a holiday in two weeks with my sisters and am so worried I just will not be able to. It is a 5 hour drive and me and the sun especially in a car with all the glass scares me. Lupus hates sun. But maybe things will settle, and thankfully they do get It took a year working with an oncologist/hematologist at the cancer clinic, a year of high does prednisone and finally chemo before they truly understood that this had nothing to do with will alone. Now I will have to try my best to explain fibro.
Well, enjoy your Starbucks, have a good day.
Yesterday I got my little goodie bags ready for all my little spooks who will arrive at the door for tricks or treats. Today I will work on my rug weaving. Wishing you all the best, tuffymason.

Veteran Member

Date Joined Apr 2008
Total Posts : 2750
   Posted 10/18/2017 5:41 PM (GMT -6)   
Barb, hope your fatigue is gone, or at least better. I had to watch myself today and I almost bit off more than I can chew. I started on outside projects, got tired after a while, and finally told my dog I was tired, was going in the house, and couldn't stick around to throw things for him to fetch any longer-- after entertaining him with his "fetch" toys for a little while (BTW, we have great 'conversations,' LOL!). smile Tomorrow I intend to do more mellow projects inside the house!

Never feel useless--and so sorry you're feeling that way. But I surely know what you mean when you say you never know when a flare will 'hit' and you won't be able to do what you volunteered for. Oh wow--been there, done that, and more times than I like to remember!!

I found if I wanted to do something for my church or school, I had to ask what they wanted help with---something that I could do from home.

I'm sure they can think of all sorts of things: prayer chain phoning, organizing upcoming events on paper, make things for the school (cutting out, gluing, etc.), keeping track of things they collect like Labels for Education points (sometimes involves some cutting or trimming), being in charge of a collection for the poor or other charitable organizations, helping with church bulletin prep, anything that you could do on the computer, etc..

I help out at church/school from home when I can, and once had to turn down another project they offered me that would have involved lots (more) phone/contact work (I already make several phone calls a week and also some computer contacts). I move slowly, and can just do so much.

Anyway, I would guess they could come up with a few ideas for you. Best wishes and take care! smile
"Pray, hope, and don't worry."

St. Padre Pio

Post Edited (Luvzminis) : 10/18/2017 5:01:56 PM (GMT-6)

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