Posted 10/21/2017 7:53 AM (GMT -6)
Tuffy, quite a few members do get the heat but I'm not sure if it is as severe as you described. I get hot spots and cold spots and also wet spots. Feel like water is running down my leg or that a bug is crawling on me. Of course there is nothing...just nerve involvement. Since it happens when you lie down, try changing your position. I cannot lay flat on my back and can only lay on my left side for a few minutes. So I lay partially on my right side with a pillow behind my back so I don't end up flat on my back in the middle of the night. I have to have my legs bent also. Then, I'm comfortable. You might have some nerves being pinched when lying down that is causing this extreme heat.
Feel each side of the base of you skull, where your skull meets the spine. Do you feel a couple of knots? I had two knots, one on each side, that were the size of marbles. If so, these cause a lot of neck and head pain. They are Trigger points. I pressed as hard as I could (they are tender) and then I massaged them and repeated this. I did this several times a day and before long the knots disappeared and so did my neck and head pain.
Trigger points can be found throughout the body. I bought The Trigger Point Therapy Workbook on Amazon and it has diagrams showing where to look for Trigger points that are causing some of the pain you are having. You use the same technique that I explained for the skull Trigger points. I was able to fix my frozen shoulder this way!
I get the tingling and bizzing. It's not often but it happens. I have an Apple Watch and it buzzes your arm if you are getting a text message. Well, my arm will buzz and there is no text message coming through. That's fibro.
Stress really affects fibro. You have mentioned you have been through a lot of stress and that's producing more symptoms. I went through a horrible time years ago. My husband died suddenly at only 51 years old and 17 days later my mother had a brainstem stroke. We were in the process of relocating when this happend and our home up north had been sold. So here I was with no husband, no home, and my Mom in intensive care. I moved and didn't know a soul or even how to get around the area. Tuffy, the pain hit me between the eyes and my cognitive memory went down the rat hole. I had conversations, I was told, that I still don't have memory of having! It was a horrible time in my life. Then I was in church one Sunday and the message was on fear. I realized fear was causing a lot of my pain. The scripture used can be found in my signature below. I put it there because it has helped me so much throughout the years and helps me relax instead of worry.
Your shortness of breath can be from anxiety. Many of us suffer with anxiety because of this illness and we aren't sure what is happening to us...and neither do our doctors. Anxiety, again, is fear so I turn to that scripture again. It really helps me.
I keep a positive attitude and that can help me almost as much as medication. You seem to have a good attitude too. In Fibro 101 there is a good link about how to maintain a positive attitude when you have chronic pain. It's very good and I go back to it when I'm having one of those bad days.
I hope this helps you some. I'm sure others will pop on with their suggestions too. We are all so different.
Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7