Hi there. I don't know your full load of comorbid problems, but the ones you name, while associated with fibro, they are also possible symptoms of mast cell over reactivity. Mast cells are immune cells. I explain in a thread at myPatientMatch. Just search the word "reference", and you'll see Reference thread for sharing mast cell info. Probably onky want to read section one, maybe use the first link to see the symptom list. I link to some fibro/mast cell studies in the fifth section that begins "For the fibro patients...."
Meloxicam being an NSAID, it has potential to trigger mast cells. Every mast cell patient is not triggered by every type of NSAID, but the ones you can still use without problem, I suggest you might reserve for flares, and not risk losing them to over use. I can use 440 mgs of Naprosyn, and on a lucky day, get some help with some headaches.
Just as a quick example of proof, this mouse study showed Meloxicam as one of the NSAIDs that increased histamine, so that means mast cells were degranulating, or selectively degranulating, since they release histamine. /www.ncbi.nlm.nih.gov/pubmed/17321477
It sounds like the muscles hurting the back of your head are the occipitals. I fight those, also, and they are also famous initiators of migraine/headaches. I have to try and discipline myself to look down with my eyes, and not let my head hang down. The head weighs a lot if it's not able to rest on the spine. A lot of work for small muscles with problems. Sometimes a half-step back let's you look down with your eyes only.
There is an NSAID in a gel called Voltaren. Prescript
ion in the US, but over the counter in some countries. I have in the past ***gently*** applied some to the occipitals. In general, my head muscles are freakazoids about
being massaged, so be gentle. Some people's mast cells are very easily triggered, and sometimes it's just those in a certain area that tend more to misbehave. Perhaps there is even a different "phenotype" of mast cells? (For example, I believe there are at least 5 different phenotypes, or we could say
location species, in the lungs.)
Yeah, you want to get help for that jaw clinching, if you can't make yourself stop. Maybe someone can teach you self-hypnosis, and then you can do some imaging work to help be more relaxed. I can get a song stuck in my head, and make myself hurt by thoughtlessly tapping out the beat with my teeth.
Or, if jaw pain gets bad, I would suggest a dentist who is a TMJ specialist. If you can get a recommendation, that would be best, to find someone who knows what the heck they are doing. There are levels of skill and knowledge to it, I have been to two. I had a TMJ dentist who made a clear acrylic set of covers for the chewing side of my teeth, and every two weeks he reground them, depending upon how my bite had moved. Tried all kinds of wearing schedules. Fibro can make that jaw stuff get pretty complicated, so try to get a grip on it yourself soon.
You can get injections into the occipitals by a pain management specialist, but sometimes you put yourself thru it and it doesn't even work. Better to do a good job of managing your body and how you use it.
I have lots of jaw issues. I could write many paragraphs. And I try to be so aware of muscles from my chest, that help move arms, and those in my upper back, and then the neck muscles. I get what I call "muscle creep, and over-use of any of those will creep up to the occipitals or the jaw. From there, other head muscles may join the miserable party. Talking too much was hurting, and I could not do some jobs. The dentist was a big help in my disability decision....one piece of the puzzle, anyways. That dentist also had me on a very soft diet for a while. Eventually got some control, but go to one company Xmas party and I would be right back there. I sometimes would revert to the soft diet in times of trouble. Sometimes my face would feel distorted by the pulling. That hasn't happened in years. It can get better, I promise.
My upper back has a slight curve forward. That makes the head jut forward a tad too much. I got a simple, easy exercise at physical therapy to just retract my head (makes a double chin) for two seconds, then relax. Do that 10X. A few times a day. (2-3?) After about
a week or two, then you can also push the head back a tiny bit tighter, by using two fingers pushing gently on the chin. I used to do the head retractions sitting at traffic lights, or anywhere else.
Sinuses, unless something else is involved, is prolly mast cells. Might contribute to face pain? And I can't fix the problem for myself. Perhaps if I had decent insurance and could afford prescript
ion mast cell stabilizers. But may as well mention that I have seen mast cell patients also have mold in their sinuses, or a pathogen. So of course as immune cells, MCs get in on that! (And we are assuming you have no structural problem like a deviated septum.)
I carry a tiny purse, and wear it cross-body, keeping the weight on the outside of the opposite deltoids/upper arm. So off of the trapezius muscles.
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If it's worse for periods, you could ask your Dr or gynocologist for progesterone troche'. A compounding pharmacy makes them. A soft lozenge I would use as needed for higher pain of any kind, mood, headache, general period pain. My sister needed only one half of a troche' at my dose, or she would get shaky. (She saved money by cutting them in half, I suppose). Mast cells can cause mental issues, as well.
Since finding estrogen receptors on bladder mast cells, the thinking is that maybe estrogen affects mast cells when there is estrogen dominance. Dr Theoharides thinks it could explain more women than men having fibro and ME/CFS. Might explain how a bit of testosterone can help some men (....tho some testosterone can turn into estrogen)
Post Edited (Rockon) : 10/27/2017 10:05:21 PM (GMT-6)