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hanginin
Regular Member


Date Joined Jun 2008
Total Posts : 46
   Posted 10/25/2017 5:54 AM (GMT -7)   
Good morning all, hoping you are all coping well.
I am having a terrible time. I didn’t sleep again.
I saw 2:30 last night. I just cannot get comfortable.

I have a terrible time with pain in my head when I lay down especially the back of my head just behind my ears on both sides...and my sinuses are just a mess.
And my teeth! I just can’t stop clinching and my jaw and face hurts so bad.
Is this ALL part of fibro? Am I nuts?

I saw my nurse again and she put me on antibiotic thinking it may be a sinus infection from chronic sinusitis.
Plus the pain in my neck at the base of my skull and spreading down the sides of my neck and down my shoulders is terrible.
I just cannot lay down and so just cannot sleep.

The Meloxicam just doesn’t seem to be working at all.
But it is upsetting my stomach.
The Baclofen does ease the pain but I’m a zombie.
What do I do? Is there anything I can do?
Or is this my life now?
How do you cope?
Thanks for being here.
Tuffymason

kodaska
New Member


Date Joined Aug 2016
Total Posts : 14
   Posted 10/25/2017 9:03 AM (GMT -7)   
Despite the fact that you have not answered my question in one of your recent posts, I am going to shed some light on health problems you are having right now.

Fibromyalgia is not a condition that comes from nowhere. It is a body condition that develops through the life, pretty slowly but steadily. It counts to dysautonomias (look under Dysautonomia International) meaning to disorders in functioning of autonomous nervous system. This area is relatively little known and the research work is underway in this past years. For now, there is not known medicament that can cure you, but there may be the change in the coming years. If you ask me, my estimation is that the cure may be at our disposal sooner than expected. I hope to have encouraged you a little bit and that the waiting will be easier for you...

Kodaska

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15707
   Posted 10/25/2017 9:37 AM (GMT -7)   
Hanginin, I do not know what mg of Baclofen you are taking, hopefully it is 5mg.. The zombie feeling should go away in a week or two. If you on a higher dose contact your dr & ask for a lower dose, or ask if you can cut them in half. It takes awhile for the Meloxicam to kick in & should be taken with food so it doesn't mess with the stomach.

I have chronic sinus issues have discovered that saline works very well for a nose spray. I can flush my sinuses out much better with saline, helps put moisture in the nose & washes out the pollens. It is inexpensive & I go through a lot, lol. I am having great luck with an OTC for my sinus situation.

I do not have Fibro, however I have many issues that have resulted in chronic pain for a good 30 years. I had to accept how chronic pain can change my outlook on life & the limitations. Myself & many others have learned how distraction helps, anything to occupy my mind other than pain. I stopped years ago starting my day thinking about how bad I felt just trying to get out of bed. By me doing that, I automatically set the tone for my day & it was not pretty. Instead I get up & not go there. I basically was shooting myself in the foot before my day actually started. Instead I concentrate on the things I still can do & remind myself quite often there are a lot of people in this world a whole lot worse than I am. Coming here to Healing Well & reading helps me keep a better perspective of things.

Have you tried Melatonin for sleep, this may be something to try. There is nothing in it to harm you. A friend of mine had been on Ambien for 13 years. Because of the hype her dr cut her off, no warning nothing. She took Sleep Time by Tylenol PM, without the Tylenol in it. Worked like a charm when everything else failed. I bought some & used it for 2 weeks & managed to turn my internal clock back on. I had been sleeping anywhere from 2-4 hours per night for years. It took a huge toll on my body because I was so sleep deprived. I now sleep 8 hours a night without anything. Anyway just wanted to give you some ideas.

I hope you get to feeling better. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Post Edited (straydog) : 10/25/2017 11:11:15 AM (GMT-6)


hanginin
Regular Member


Date Joined Jun 2008
Total Posts : 46
   Posted 10/28/2017 8:08 PM (GMT -7)   
Thanks so much for sharing.
I have been explaining allot in the short time I have been here.
I am humbled at not only your inclusion but your generosity to listen to it all and compassion to share what you already know to
help little old me to feel better. You guys are awesome.

I want you to know that although it is true I have allot going on, like many of you, that I also know it’s normal for this kind of illness.
I have dealt with other facets of it for years and years.
I have always been accepting and had the attitude “why not me?”, and “I’d better get up and get going because tomorrow could be worse”. Also that I know how lucky I am, there is always someone who is dealing with things that are so much worse. In fact often what has made me feel better on not great days is to offer help to those same folks.

I guess this last year with the ITP and the learning curve about the problem, the proticols and treatments, along with the high dose prednisone which is so very difficult. And the chemo I guess.
The deconditioning of my muscles from the pred and the subsequent
muscle injuries and inflammatory flares all ending in this whopper of a fibro flare.....so more learning....has me wanting to sprint to
a well informed finish instead of the slow steady day to day learning curve and trial and error.

That’s me everytime....let’s fix this I’ve got tulips to plant!🙂
I suspect too that this kind of idealism is also a protective mode of thinking as if I sit to long studying all this stuff no matter how important, dwelling one might say...it would scare the biggebers out of me!

Two weeks ago I walked into my emergency room asking for pain relief, big time. I never do that. Things were very bad and that made me so confused.
Tonight I write to you from a hotel room 4 hours from the familiar safety of my own bed. Visiting our sister. Yea, I hurt some and I will be tried maybe for a bit but have had a great time with my three sisters nephew and our fellas. Good wine, good food, good
times. I am so proud of myself and feel so lucky.

I find it harder and harder though to want to deal with the research and the learning curve. Oh what it must be like to never have to consider one’s health as a variable in everything I do.
It’s tiring on it’s own isn’t it?

But you kind folks have helped me just as you have done making it much easier and then I’ll know fibro too....
Have a great nights sleep and a beautiful morning.
Tuffymason
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