I want off Cymbalta ...

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New Member

Date Joined Nov 2017
Total Posts : 1
   Posted 11/5/2017 10:37 AM (GMT -7)   
Hi everyone

I’m new here, but not new to fibromyalgia ... I was Dx about 2 years ago. My Rheumy put me on Cymbalta after a trial on Elavil which did nothing. Cymbalta gave me my life back, but after 2 years the side effects are getting worse - mainly the most hideous fatigue causing sleep attacks. You know something is not right when you are falling asleep while STANDING at your standing desk at work. It makes so much sense reading after about how it impacts your REM sleep.
I am no stranger to fatigue. I have psoriatic arthritis as well, so fatigue and I are old friends ... 😘 but this is like nothing else I have experienced. I take nothing for my PSA as I am lucky to have it mildly, and the side effects from the drugs are worse for me than my PSA symptoms.
My Dr told me nothing about Cymbalta when I started on it, if he had I dont know if I would have tried it, but I was in pretty bad shape when I started it. He said most people tolerate it just fine, and it worked very well for them and that was it. So it is only recently, as I started trying to get answers for this crazy drowsiness, that I started looking at the side effects of Cymbalta, and realized what a nasty drug it actually is.
To cut a long story a little shorter, I want off Cymbalta, but I am nervous about how I might be once it is gone. I’m only on 30mg, and have started taking it alternate days. Towards the end of the second day I start getting some withdrawal symptoms (brain zaps and weird tinnitus) but otherwise I am doing ok. Although my husband did mention I was pretty cranky yesterday, so maybe not as well as I think I am.
I’ve read the thread on withdrawing from Cymbalta ... and I’m thinking I will try taking beads out rather than stepping down to every 3rd day.
I’m also going to try Malic acid/magnesium. And find a good massage therapist and yoga group.
Anyway, that is my story. I’d love to hear from others who have managed getting off Cymbalta. And positive stories of life after Cymbalta and how you manage.

Veteran Member

Date Joined May 2014
Total Posts : 2067
   Posted 11/10/2017 12:02 AM (GMT -7)   
Hi, welcome to the forum,

I am pretty med sensitive , so i was afraid to try it...i think that others have said it stopped working after a couple years..

So some here have tapered off..

Hope you will do ok with it, lj

Regular Member

Date Joined Mar 2013
Total Posts : 328
   Posted 11/10/2017 12:34 AM (GMT -7)   
Some people have a horrific time trying to get off of it. I have this fading memory...and I think it is that if they have a lot of problems, sometimes switching to something else is the way to go. Then come off of the "something else. I have it in my head that Prozac has been useful for this.

I am sorry to tell you that I have memory problems, which isn't that just what you want to read, after someone suggests a course of action?

If you search "Brain zaps" at one of the ME/CFS forums, seems like I saw an interesting thread reply from an old hand. That patient group is really experienced, and tend to also have sensitivities. PhoenixRising at be where I saw good thread. In the old days (before I knew about it) they had a terrific group there.

Or...if my famous memory is off, maybe I saw the thread at ProHealth. Some of these people from both groups wound up at HealthRising (possibly there was an insurrection... PhoenixRising and HealthRising...very similar names, ehj?) so maybe there has been info there also. But it's much newer, so not as much info was archived to this point.

Some people wound up at myPatientMatch. You might ask there about brain zap solutions...just for certain topics it takes longer to get replies there, as it is not the kind of busy group where all people who have joined check in every day or even every 2-3 days. Only some of us are there everyday.
I also suggest turning to them because ME/CFS patients seem to have read more and network (like on Facebook) a lot more than fibro patients, who can just keep trying one after another med, and maybe get lucky. The CFS folks struggle more....imo. I find fatigue far worse of an enemy than my pain. It's far more motivating.
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