I’m new here, but not new to fibromyalgia ... I was Dx about 2 years ago. My Rheumy put me on Cymbalta after a trial on Elavil which did nothing. Cymbalta gave me my life back, but after 2 years the side effects are getting worse - mainly the most hideous fatigue causing sleep attacks. You know something is not right when you are falling asleep while STANDING at your standing desk at work. It makes so much sense reading after about how it impacts your REM sleep.
I am no stranger to fatigue. I have psoriatic arthritis as well, so fatigue and I are old friends ... 😘 but this is like nothing else I have experienced. I take nothing for my PSA as I am lucky to have it mildly, and the side effects from the drugs are worse for me than my PSA symptoms.
My Dr told me nothing about Cymbalta when I started on it, if he had I dont know if I would have tried it, but I was in pretty bad shape when I started it. He said most people tolerate it just fine, and it worked very well for them and that was it. So it is only recently, as I started trying to get answers for this crazy drowsiness, that I started looking at the side effects of Cymbalta, and realized what a nasty drug it actually is.
To cut a long story a little shorter, I want off Cymbalta, but I am nervous about how I might be once it is gone. I’m only on 30mg, and have started taking it alternate days. Towards the end of the second day I start getting some withdrawal symptoms (brain zaps and weird tinnitus) but otherwise I am doing ok. Although my husband did mention I was pretty cranky yesterday, so maybe not as well as I think I am.
I’ve read the thread on withdrawing from Cymbalta ... and I’m thinking I will try taking beads out rather than stepping down to every 3rd day.
I’m also going to try Malic acid/magnesium. And find a good massage therapist and yoga group.
Anyway, that is my story. I’d love to hear from others who have managed getting off Cymbalta. And positive stories of life after Cymbalta and how you manage.