What is your situation mara24?
Do you work outside the home?
Do you have a doctor that is helpful?
Are you getting the help you need as far a pain management and good sleep?
I find that if I am I so much pain that my body can’t relax and sleep well I end up in a downward spiral of pain, exhaustion and then it’s easy for my mood to darken.
When the mood darkens it is very hard to think period.
I was where you are a few months ago, actually for the entire summer.
I was told I had fibro long ago but never really experienced more than sore shoulders.
It was when I had to move this summer that the real fibro hit me.
I didn’t understand what was happening to me.
Fibro was never really explained, I guess it didn’t need to be until it got real bad.
That’s when I found this site.
But first I just gathered my strength and got good and mad.
I marched myself down to the emergency and demanded some pain relief so I could sleep.
It was a bit of an ordeal, as the doctor didn’t know me from Adam and I was asking for str9ng pain meds.
But soon she began to understand my story, did some blood work which showed allot if inflammation from the lupus which is probably what triggered the fibro.
I was given IV anti-inflammitories and morphine in a small dose.
The doctor could literally see my pain, anger, struggle really melt away.
I slept, finally.
I was so thankful someone understood, and I was sent home with a couple more tablets that I was told to cut in half. Which I did twice. I am happy to say I did not need them after that.
Strong pain meds long term is NOT the answer.
Then I saw my GP who gave me anti inflamitories and my rheumatologist added Baclofen a muscle relaxer that helped me sleep. After just a few days maybe five max, I was myself again.
A little drowsy as the baclofen can make you dopey, which I didn’t like, but I knew for a little bit I needed them.
I ended up stopping these meds and going to extra strength Tylenol after about five days.
Then I made myself get up and move.
If you are laying in bed or on the couch it may feel like it’s where you feel most comfortable but is really detrimental after a while.
Muscles that atrophy make it very easy to hurt yourself when you do try to do anything.
I had been on high dose prednisone and chemo last year because of lupus and that is how I got where
I am now.
High dose prednisone decondtions muscles. So when I moved, with all the pa king and lifting I ended up
InflMming my spine from top to bottom...then the fibro started after that.
So mara24 I see through your posts that you are in a terrible place. I have been there.
You can get out, but not by doing nothing.
It is a slow steady determination and it may have to start at the Emergency Room if you don’t have appropriate healthcare with your doctor.
Don’t wait anymore mara24, life is good, demand better care and take it back.
Your life is not over unless you want it to be and that is NOT the answer.
We all know and care where you are and we want you much better.
Hope this helps, Tuffymason