Good morning all.
I began posting a bit ago. I was a mess, to the point I just didn’t want to do it any more.
I have delt with allot of autoimmune issues for decades. Mainly Lupus.
I moved this summer, which set off terrible inflammation in my spine from top to bottom. The pain inflamed my head too. I could not move or think. The pain so bad I could not sleep.
I then ended up with terrible tissue pain, this is when I learned of fibromyalgia and everything it is.
I ended up in the ER. I have only a nurse and even with her help and my own tool box I had been suffering unimaginably for weeks and weeks. I knew I needed heavy pain medication, if not to help break the pain cycle to be able to sleep for a few nights. I
I was given morphine and anti-inflammitories by IV.
It worked, I slept.
I was given only two 5mg tabs and told to cut them in half.
I went home. I only had to use the one tab. I gave the other back to the pharmacy.
My nurse finally put me on Meloxicam too. Then my rheumy prescribed
Baclofen which worked well for sleep.
But I only used it for a few days as it made me real dopey.
So things settled down to a manageable pain, but still pain and still terrible brain fog.
I had learned allot from this forum and also did allot of reading.
I learned of treatment options.
I learned of Osteopathy. I read that many specialists studying fibro felt it was very benificial.
I made an appointment. I went with fairly low expectations as I had done physio for years and felt I only benefited for a few weeks before that option plateaued and then never really did much after that.
This is the part I need to share with you. To give something back for all you have done for me on this forum.
The osteopath works on your spine with her hands. She also used acupuncture. She told me my spine was out of alignment.
She did manual traction, and worked on my entire spine including my cervical spine. She worked on my head that had been hurting so bad I could not lay on my pillow.
The treatment took two hours including the assessment.
I swear to you, I got up off the massage table and I felt free.
I felt no pain. Like a marrionette that had been knotted so tight that it could not move had been untangled.
I could move everything, without pain. I thought Imwould cry, complete disbelief that the treatment that felt so good, could end up freeing me.
My brain fog had lifted I could think. I was me.
I made an aapointment for one week as I felt, baby steps are needed with my body that had been through so much.
I did not know how long this new freedom would last.
It was funny after two more days, I began to look at my gardens that needed tending for the spring. I looked at the unpacking that still needed done. I looked at my new house and how to take my things and make it a home.
But I was careful and did not jump into it.
I asked the osteopath the next week about my want and will to carry on with my life, doing things again.
She told me not so fast. That the high dose pred from the year before had de conditioned my muscles so bad was the reason I got to that horrible place. My muscles were not there to protect my spine.
I would now need to work on strengthening exercises.
So it has been about a month and true I am far from back to life.
I can do zero heavy lifting. I tried to move a table last week and messed myself up good. So from now on no heavy work period.
I saw my rheumy yesterday. We had a good talk. I explained from this side, the side of manageable pain and clarity, that I had no idea what fibro really was.
I told her of the journey.
She was particularly interested in y experience with the osteopath.
She said she had a colleague in Toronto studying fibro and that her colleague believes that the spine is the key to fibro.
I know I do.
My rheumy also explained that she knows how important it is to live, to do the things you want to do and to accomplish daily living.
That when the pain is manageable, sitting in fear, doing nothing is not an option either. It too will end up harming me.
But that what I must know is that after a couple of days of it I am going to pay. I will hurt and be at home resting and even in bed.
She assured me that even doing so with every flare up I will not do detriment down the road to my body. It was a concern I had.
That I will just rest, and heal over and over aga8n.
She said to keep the meds that had worked handy and use them as needed for inflammation, pain, fibro and sleep.
And keep my osteopath’s phone number close by.
Sorry for the length of this post.
But it is how I went from a very painful very dark place back to life.
I want you to know that it can be done and for many of us just will have to....over and over and over again I’m afraid, but...I’m now I’m not afraid!
Thanks so much, Tuffymason.