Is it? Or isn’t it?

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New Member

Date Joined Dec 2017
Total Posts : 3
   Posted 12/5/2017 12:24 PM (GMT -7)   
Brand spanking new member.

For some time I’ve been experiencing wide spread mild body pain which felt like bruising but with no visible marks. And what I can only describe as occasionally feeling spaced out, like I’m physically there but not really. vision being watery, and feeling kinda giddy and shakey.
I currently have osteoarthritis in my left hip and I’m awaiting a hip resurfacing operation. I regularly take tramadol, gabapentin and occasionally amitriptyline.

I was diagnosed with hypothyroidism back in August and I put the symptoms down to that. (I know the symptoms of both hypothyroidism and fibromyalgia have many similarities) My thyroid screen check show my levothyroxine is working well and I’m within the normal range, however I’m still very symptomatic. I visited the GP a few times with this widespread pain and was found I had a Vitamin D deficiency.
I’m on a loading dose, and should be feeling some relief, but still I remain symptomatic.
Most recently I went on my staff Christmas party, and came home in agony. In the space of a few days my entire body feels like it’s in agonising pain. From my fingers aching and burning up my arms, feeling weighted and heavy as well as aching. Pain across my shoulders, down my neck and back. My hips and buttocks. Down my thighs, my shins, calves and feet. I’m struggling to walk or simply move around, even resting I’m in terrible pain. I get little relief from my current analgesics.

I know there are links between hypothyroidism and fibromyalgia and vitamin D deficiency all occurring together..
I’ve now been referred to a rheumatologist and hopefully will get answers soon.
I’m signed off work, but I’m terribly worried I may have to give up working, or change my job to something less physically demanding.


Post Edited (AlfaLady) : 12/5/2017 12:41:30 PM (GMT-7)

Veteran Member

Date Joined Apr 2008
Total Posts : 2672
   Posted 12/6/2017 4:09 PM (GMT -7)   
Welcome, AlfaLady!

Your symptoms sound very familiar. You're making a smart move--seeing a rheumatologist. I hope you can get a definite diagnosis.

Microwavable "bed buddies" help my pain a lot, as do a heating pad and topical muscle rub creams. Soaking in warm water helps, too. This time of year is cold in my area, so I dress in layers, and that seems to ward off pain and achiness somewhat, too.

Any chance you could do your work from home or work part-time? I know some here do that.

I try to keep moving as much as possible and also pace myself when working. Alternating sitting and standing is sometimes helpful.

Hope you keep posting and letting us know how your appointment with the rheumatologist turns out.

Have you read the very first post on this forum--fibro 101? It has some really helpful ideas. I also like some of the videos on this forum.

Wishing you the very best! smile
"Pray, hope, and don't worry."

St. Padre Pio

Forum Moderator

Date Joined Apr 2005
Total Posts : 17556
   Posted 12/8/2017 7:56 AM (GMT -7)   
Hi, Alfalady, and welcome! Those sound like typical symptoms of Fibro but I'm so glad you will be seeing a rheumatologist. They should run tests to rule out other illnesses like Lyme and lupus, since they share many of the same symptoms as fibro.

I was struggling to walk, was getting raw nerve pain down the inside of my legs to the midddle of my calves. I saw a rheumy and was diagnosed with ankylosing spondylitis and sacroiliitis along with fibro. I was put back on ibuprofen and also given a muscle relaxer called Robaxin (methocarbamol) that has made a significant difference in my pain. So there are answers out there for you. Keep looking until you get the help you need.

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro abd you will learn a lot there.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Right now members are bogged down with Christmas preparations...including me...but we do respond to questions. Please let us know how your rheumy appointment goes because we do care about you. Hope to hear more from you soon.


Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

New Member

Date Joined Dec 2017
Total Posts : 3
   Posted 12/27/2017 7:37 AM (GMT -7)   
Thanks luvsminis and Sherrine for your replies.

I had a bunch of bloods done prior to my referral to check my infection markers, for coeliac disease and other hormone levels.
Tomorrow I am being seen in the rheumatology clinic for the first time.
I’m hoping for some answers, but in the reality of things I’m expecting this being a long process.
I’m soooo low at the moment as I’ve just qualified in my job, and fear having to give up. It’s very physically demanding, and in my current state I couldn’t work.
Im not low just due to the love of my job & it being threatened, but the financial strain this would place on our family if I did have to give up.

Veteran Member

Date Joined May 2014
Total Posts : 2086
   Posted 12/27/2017 12:50 PM (GMT -7)   
Hi alpha,

I often felt like i was coping with fibromyalgia, until vit d sank too low..and the combination of those two was really took me a while to get my levels back up and feeling better, but i did..

You may have the combo effect of more than one thing happening also..but just believe you can get some help and feel better !

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