The REAL cause of all your pain is something else, but the docs just aren't looking deep enough? I've had fibromyalgia for at least 30 years. Considering the pains in my childhood, I'm thinking I was born with it. I did have an abusive childhood, so maybe that triggered it (as some theories suggest). I also have pretty bad osteoarthritis, and I've heard that can feel quite systemic). Anyhow.....in November, I woke up one morning with incredibly worse joint and muscle pain, and constant tingling in the legs....along with spasms, jabs, tingling in other areas. It seems to just be getting worse and worse. I also feel sick a lot. I just can't feel well.....even on some days that aren't so horrible.
My Internist wanted me to try gabapentin, slowly......since I'm so acutely sensitive to just about
everything. I'm on 200mg and on Friday, it will go up to 300. I've had absolutely no change from it, except to have a lot of small headaches.
I've had all the usual tests run......all normal (Chemistry, CBC, inflammatory markers, a few muscle labs, a lumbar spine MRI). All normal for the most part.
I have an appointment with a supposedly really good neuro doc, but have a 2 month wait.
Do you ever feel like you're slowly dying? ......like something terrible is wrong and nobody is trying to help? I like my Internal med doc, but I feel he always treats all my symptoms as Fibro. He's never referred me to any other doc, so I have done that myself........but nobody seems to dig very far.
Do you ever feel like you're slipping through the cracks constantly, and nobody is helping?
Yes, I have to take responsibility for not wanting to try a lot of SSRIs and other meds (Plaquinil), because they usually give me side-effects that I just can't tolerate.
Maybe all this pain has depressed me and made everything worse.
My husband is an M.D.......and he's, unfortunately, the same as other docs.........he has given up even trying to figure this out, which is very sad to me. .....since if he had this, I would work hard to find some solutions/treatments, etc.
I just needed to whine.
But I do feel like I might not live long, and that makes me very sad.